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2019 - The Year I Fell Apart

This year I started off by trying to find out why I was infertile. Chronic pain, fatigue, and fevers turned out to be mixed connective tissue disease with Fibromyalgia. Heart palpitations turned out to be a-fib. Started treatment for mast cell activation with allergy injections 2x a week with physical therapy. Finally, merry f***ing christmas here's the flu. I survived, next year..... ???
#autoimmune #AutoimmuneDisease #MCTD #Fibromyalgia #POTS #MCAS #mastcell #afib #ChronicIllness #ChronicPain #younganddisabled #Depression #Anxiety #Migraine

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One Year Later #autoimmune #LymeDisease #mastcell #Anxiety

So, I DID end up "pulling up roots" and moving out to Utah from SC to try to feel better. The dry air, cool breezes, and (mostly) cooler temperatures (at 5500 ft elevation) make a big difference - but I still get sick anytime I get too hot, over-exerted, or in an enclosed & dusty environment. I clean cabins at an RV Park so it still happens at least once a week even in winter, when temperatures are in the 30-40's. I really don't "get it" and neither do ANY doctors I've seen. When I'm sick, I still suffer FATIGUE, Low-grade Fever, Joint Pain, Debilitating Head/Neck Aches (headaches on the TOP of my head, and Neckaches on the sides, under my ears); Left ear ache, stuffy nose, dry cough, diarrhea, stomach pain, burning urine, and mouth blisters.... EVERY TIME! These symptoms last for 1-2 days depending on how overheated I got. All lab tests still inconclusive. Maybe Late Lyme Disease?
Even though I still deal with this, in Utah I'm able to get up & outside, do things, enjoy the outdoors & hike. (All things I hadn't been able to do for 4 years in SC.) I've lost 30lbs & 4 sizes, though. Maybe that's helping. #autoimmune #autoinflammatory #mastcell #LymeDisease #Anxiety #anger #Depression

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Living with "undiagnosed" mast cell disease #mastcell

I recently wrote about what it's like to have mast cell disease but lack a conclusive diagnosis. www.mastocytosis.ca/en/blog/89-limbo-land-of-the-undiagnosed