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Me, Migraines and Mobility Aids

Hi Mighty community. I hope all are having a nice start to 2023. I have an article that discusses my migraine diagnosis, ruling out other conditions and aids that have helped me over time. I hope that you will take the time to read it. Feel free to comment and share if you can relate to anything.

migraine.com/living-migraine/mobility-aids-shame #chronicillnesswarrior #PatientAdvocates #Migrainewarrior #NotAshamed

Don’t Judge Me by My Mobility Aids | Migraine.com

Chronic migraine and vertigo aren't a great combo for ease of movement.
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New here

Hi! I’m new here! I live with chronic intractable migraine & fibromyalgia. It’s been a wild ride over the years but I’m still fighting and won’t stop!! #Migrainewarrior #Chronicintractablemigraine #Notjustaheadache

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Just a little headache - If only they knew

On day four of the lights being too loud, able to look at a screen now without the words blurring. I can now move without falling due to disorientation. Getting hotter and the pressure building in your head making you nauseous until the migraine breaks and you start to come down the other side. Able to eat without being ill and although I have continued to drink continuously throughout the attack I am still struggling to keep hydrated. My body feels like I have been hit by a bus and then reversed back over and left to deal with this aftermath on my own.
When you tell someone you have migraine and they say “ oh, just a little headache then” and you could cry if only you had the energy.
Anyone that is suffering or has suffered with migraine please know that you are a warrior and you are amazing
I know your pain, I know your suffering and I know just how strong you are to survive an attack.
Light and love be with you
Steffie #Migraine #HemiplegicMigraine #Pain #SufferinginSilence #Migrainewarrior #Isolation


Migraine and Pain Everywhere!

Today was a crappy day with a migraine that wouldn’t be controlled and body pain everywhere! I’ve been having some good days and exercising and taking control back and then TODAY happens! Ugh! I feel like I go 2 steps forward and 5 steps back!

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The next little bit of my life is gonna be about me and I’m not caring what anyone else has to say about it 🤷🏻‍♀️ (I know you’re all thinking, isn’t it already!? 🙄) hear me out.
Taking a little bit of time off of work has been on my mind for a while, but I LOVE my job. I love my job. I’d be there everyday if my body would allow me.
But, I’ve finally made the move and I’m gonna rest. I’m gonna make all my Dr’s appts. I’m gonna do the yoga. And drink the smoothies. And just rest. Because that’s what my body needs right now.
3 days off just now has left me with maaaybe a headache that’s maaaaybe a 1/10. There’s still pressure. But. It’s okay. I didn’t take any meds today. Just rested. I listened to my body. I’m being gentle.
Sometimes listening to your body and doing what’s best for you is the hardest part. Easier said than done, right? I get it. I’m right there with ya, sis. I’ve been trying to make this decision for a year. A whole year. A whole year God’s been hearing me talk about and ask for the same thing and has been sending me signs that I’ve been ignoring 😬 but it’s okay. He’s still there and I’m finally doing something good for me other than just medicating and going on about my life.
I’ve had multiple talks with my ladies. About everything I could think of. And they supported me through. And I am so grateful.
You just have to take that first step. Whatever it may be. You know it’s gonna be hard for you, but just know you’ve got an army of supporters behind you who want what’s best for you. You’re not alone. And of course, remember, 💕 #migraineawareness #Migrainewarrior

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#rainydays #migrainedays #rainandpain

A “lovely” rainy day here in SWVA. Went by my parents house and the cat decided we needed a nap 😁
The barometric pressure is crushing my facial bones and extracting my teeth!! Feels like I’ve been hit in the face with a shovel. Amnybody else get terrible facial pain? I can deal with the migraine right now but my teeth hurt so bad I can’t hardly chew.
✌🏻 & ❤️ to all #Migrainewarrior #barometricpressure #dayslikethissuck #chronicmigraine #cervicogenicmigrainewarrior


What advice would you give to someone considering going to the ER for their #Migraine ?

It can be tricky to decide whether or not to go to the hospital. What helps you make the decision? What should a fellow #Migrainewarrior know before going to the ER?


If you have #Migraine , how do you plan to practice self-care in the new year?

Some of the "small" things I plan to work on in the new year include:
– Taking my medication regularly
– Avoiding my trigger foods, no matter how tasty they may be...
– Saying no to events or activities that will make me feel worse

Your turn! What do you want to work on in 2019 to help you cope with migraine? #Migrainewarrior #52SmallThings #ChronicPain


Dealing with fatigue

It depends on the day. On a good day, I get things done and crash in the early evening, maybe take a nap mid-day. On a bad day, I get angry at my body for being so uncooperative for so many years. But the truth is the good and bad days are more dictated by the stress I am under, which is dicated by the responsibilities I take on and how I approach them. Work responsibilities have deadlines and they are rough, but I have learned to adapt. The hardest days are when I want to be creative and my body absolutely does not have the energy. Those days are very depressing and I try to think as little as possible when they show up.