Muscular Dystrophy

Hi, my name is Missmeetsingh22. I'm here because

#MightyTogether #MuscularDystrophy

Hi Mighty Fam 👋
My name is Freddy, and I’m an artist living with muscular dystrophy and breathing challenges. Despite the obstacles I face daily, I’ve found purpose and strength through music.
I recently wrote a song called “Breathing is Everything” — inspired by my own health journey and the message that even when breath feels limited, our spirit can still be powerful. I created the song to inspire others living with chronic illness or respiratory conditions, and to remind us all how valuable each breath really is.
I’m new here and really grateful to be part of a community that understands these struggles. I’d love to connect with others who turn pain into purpose — and if it’s okay to share, here’s the music video:🎶 www.youtube.com/watch
Thanks for having me, and thank you all for being part of this beautiful space. Freddy

#MightyTogether #MuscularDystrophy

Hey everyone! I’m Kishan, just stepping into this new space. I have muscular dystrophy, but that’s just one part of my journey. Excited to meet amazing people and share great moments!

Hi, my name is Rocco_21. I'm here because I have been diagnosed with MD

#MightyTogether #MuscularDystrophy

About 4 years ago I was diagnosed with a very rare form of muscular dystrophy called oculopharyngeal, also known as OPMD. It’s a slowly progressive disease that initially affects your ability to swallow as well as the drooping of the eyelids. My eyelids were so bad that it affected my ability to see well. In October of 2023 I had surgery to correct that. Who knows how long that will last, but for now I'm super happy about the results! For the last year or so my hips and legs have become significantly weaker. It affects my ability to walk and be mobile. I have fallen a few times so now I use a rollator to move about my home. It keeps me mostly homebound and bed bound. It can be so very lonely. For someone who is a people person, this is very hard. I will say that I have a wonderful husband who takes great care of me, at times making me feel guilty and like I am a burden. I also struggle with fibromyalgia, ibs, hypothyroidism and incredible fatigue! #OPMD #ChronicFatigue #Fibromyalgia

Hi, my name is Brad aka mybeckersstory. I am a Canadian blogger and author living with Becker Muscular Dystrophy. Here to raise awareness and support others living with a rare disease.

#MightyTogether #MuscularDystrophy