Muscular Dystrophy

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Collection

Just a snap shot of the San Pedro cactus blooms over the years. Its almost prehistoric looking as you can see the bloom pod grow has protecting scales before they bloom. Starts off as a small nub with hair in it on the side or top of the cactus. Wanted to share some positive pictures something I enjoy.#MentalHealth #MuscularDystrophy #RareDisease #DegenerativeDiscDisease #ChronicPain #Anxiety #Fibromyalgia #PeripheralNeuropathy #CervicalRadiculopathy #Disability #Diabetes

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My best friend and medicine

Just having a great time with my dog Magnus he really is a bright star in my world. He has totally bonded with Mom also very affectionate. The beginning was a lot of work but he is listening better after all he is only 9 months old now.

I have been having a really rough time with my new symptoms the abdominal muscle spasms are all day. I wake up in great pain every morning that's the reality of muscular dystrophy no matter how long you rest it's back to square one. This is where my little buddy Magnus comes in and is so happy to see me every morning. He is so much fun with his toys and loves to play fetch. He is truly my best defense against rough times and he ha captured my heart 💙💙#MentalHealth #DegenerativeDiscDisease #Anxiety #Depression #RareDisease #Fibromyalgia #PeripheralNeuropathy #FootDrop #facialneuropathy #MuscularDystrophy #ChronicPain #ChronicIllness

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Today

Awesome went to a fundraiser at church today for a boy who has muscular dystrophy. It went well. Amen God is good. Unfortunately, I had to let one of my new caregivers go yesterday because I had to do maximum assistance with transfers and my mom and physical therapist don’t like that because if I force the muscles in my leg and knees to work they get really tired, tight, sore, and jumpy.

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Having a hard time

I posted this once and took it down because i felt it may be too negative. I am having problems getting the courage to tell my friend that my Dr said i would die from the complications of my muscular Dystrophy. I don't want to get emotional when i call him because now i have zeroed in on the people that im going to miss when im gone. I know there is no one answer to this task but posting it may make me feel better i apologize for the content. #MentalHealth #MuscularDystrophy #etc

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Gratitude

Thank you so much my mighty friends for your support my heart is filled with gratitude for you all. I put up a post yesterday about my health and you guys gave me love and support 💙💙💙💙#MentalHealth #MuscularDystrophy #DegenerativeDiscDisease #etc

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Dr appointment bad news

I try to stay positive you have to if you're going to survive a chronic illness at least mentally but you can't change the projectory. I already had ten spinal surgeries and last year diagnosed with a rare muscular Dystrophy caused by a genetic mutation no cure no treatment. Lately i have been experiencing severe muscle spasms and weakness in my abdominal muscles and it's affecting my breathing.

Today my Dr sat right next me rather than his usual chair and he said your going to die from this disease and all we can do is make you feel more comfortable as it happens. I knew in the back of my mind that this was true i have researched my condition until my brain was numb and the Neurologist at Cedar Sinai said there was no information on my condition and no cure but it didn't all sink in until today. I am afraid of dying before my Mom she doesn't deserve that i don't know what to tsay next#MentalHealth #RareDisease #MuscularDystrophy #Fibromyalgia #Disability #

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Full bloom

#I know it's redundant however i saw this trio in bloom on our mini rosebush and thought i would share. Happy Sunday 💙#MentalHealth #ChronicIllness #ChronicPain #DegenerativeDiscDisease #Anxiety #MuscularDystrophy #Depression #Disability #RareDisease

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Railing flowers

Mom and i planted these flowers on the railing a couple of weeks ago. Really like the contrast between the two colors anyways just thought i would share 🙂#MentalHealth #Depression #cervicalfusion #ChronicIllness #Anxiety #RareDisease #MuscularDystrophy #Lumbarfusion #ChronicPain #Fibromyalgia #hyoeralgesia

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Abundance

We are having a great blooming on our patio. All three of these plants already gave out blooms in Spring and now there is a whole set of new pics of the same plants i know just we got an abundance of colors this year again thought i would share #MentalHealth #Anxiety #DegenerativeDiscDisease #cervicalfusion #Lumbarfusion #depresio n#MuscularDystrophy #Fibromyalgia #RareDisease #Disability #ChronicPain

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My favorite cactus

This is a picture of my San Pedro Cactus it only blooms every 7 years i have several that will flower this year very happy. I have had this San Pedro for 12 years then i propogated off this one to make more so more pictures to come. This is also known as the moon cactus because it blooms at night 🙂#MentalHealth #DegenerativeDiscDisease #MuscularDystrophy #Depression #Anxiety #RareDisease #ChronicIllness #ChronicPain #cervicalfusion #lunbarfusion

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