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Myasthenia Gravis
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Myasthenia Gravis
Myasthenia Gravis
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I'm new here!
Hi, my name is scribbler30. I'm here because I am a medical journalist, and want information on lower extremity signs of systemic diseases, esp autoimmune disorders
#MightyTogether #BipolarDisorder #MyastheniaGravis
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15 mg Lexapro over 10
Has anyone saw s big improvement with 15 mg over 10 Lexapro!!! #Wondering
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I'm new here!
Hi, my name is SpellboundSole082. I'm here because I know this is a long shot, any chance you have seen of or heard of or helped work with something like the following.
2 years ago I had a severe adverse SSRI drug reaction and the symptoms are brutal and they are not going away and they just get worse and worse.It’s like the drug damaged something in my gene DNA or my bodies chemistry.is there any chance you know how to diagnose this? I think it’s caused by SERT issues, not functioning.
Since I took 20 mg of those escitalopram pills, prescription for sleep, I have had the following symptoms, symptoms were immediate and it was a one time dose:
Sleep is ruinedCan’t nap or wake up sick feelingConstant feeling like I am in agonyCan’t focus / concentrate Can’t regulate body temperatureLoss of appetite Loss of libidoMemory issuesExtreme fatigueUnintentional a weight lossMuscles usually twitching somewhereAbnormal breathing Nausea
Didn’t have any of this stuff before and it is constant.
Do you think there’s any doctor in the world that can help me? My family doctor doesn’t have any idea how the help and so far her referrals have been effective.#MightyTogether
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The Unseen Battle of Living with Chronic Illness
Stronger Than They Knew
The first time Diana felt something was wrong, she was twenty-six. It was late, nearly midnight, and her daughter, barely two years old, had finally drifted off to sleep. Diana sat at the kitchen table, staring at the stack of overdue bills, her arms heavy, her legs weak, her eyelids drooping as if she had run a marathon. She had always been the lively one—the one who could outlast any party, laugh the loudest, and take care of everyone. But now, exhaustion clung to her like a second skin, a weight that never lifted no matter how much she rested.
She had no choice but to push through. There was no one to help her. No safety net. Just her, a tiny apartment, and the daughter she loved more than anything. Her brothers and sisters had their own lives, and she had spent years helping them when she could—hosting family dinners, making sure holidays were special after their father passed. But no one noticed when she began struggling. No one saw how hard it had become just to keep moving.
At work, she was a ghost of the woman she once was. She made mistakes, dropped things, felt her body betray her in small ways that no one else seemed to see. The doctors dismissed her, one after another. Anxiety. Depression. Stress. As if a label could erase the fact that she could barely lift her arms some days.
"You're just tired," one doctor had said with a dismissive shrug. "You work too hard. Try antidepressants."
But Diana knew. She knew something inside her was wrong.
And so she fought. She fought through years of skepticism, through the dismissive glances, the subtle accusations that she was imagining it all. She fought for her daughter, for their survival.
Spring 2022.
It had taken thirty-one years to get an answer. Myasthenia Gravis. The name sounded foreign on her tongue, and yet, it explained everything. The weakness. The fatigue. The strange, unpredictable flares that made her body feel like it didn’t belong to her. She had spent years carrying a burden that no one else could see, and finally, it had a name.
But even with a diagnosis, the fight wasn’t over.
She had to fight insurance companies that denied her treatment. Fight for a doctor who would actually listen and not dismiss her symptoms. It wasn’t until February 2023 that she finally received treatment. And even then, her body betrayed her. Flares came unpredictably—sometimes during meetings at work, sometimes in the middle of a grocery store, sometimes while she sat alone in her quiet home, too weak to lift a fork to her mouth.
And her family? They faded away, quietly.
Not with harsh words or outright rejection, but with silence. They simply never thought they had to help her—after all, they never had before. Diana had always been the strong one, the capable one. The one who made things happen. It never occurred to them that she might need something in return.
She felt their disappointment in the unspoken words, in the way invitations stopped coming, in the way their messages became less frequent. No one said it outright, but she could feel it lingering in the air, in the hesitations, in the quiet shift of conversations.
Now, holidays were different. It was just her daughter, now grown, and her son-in-law. It was quieter, simpler. But it was filled with love. They understood. They saw her.
She still worked. Her job made accommodations, and she was grateful. But every day, she wondered about the future. Would she be able to keep working? Would she lose more independence? Would the world shrink even further?
Still, Diana had hope.
She dreamed of hiking again. Of throwing parties, of laughing without worry, of meeting people without fearing what her body might do. She held onto those dreams, even as reality weighed heavy on her shoulders.
Life had taken care of her before. It would continue to.
And so, she carried on.
Stronger than they ever knew.#MyastheniaGravis
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Spinal cord stimulator implant results?
Has anyone had great success with spinal cord stimulator implant? I have hEDS and chronic pain. I suffer from constant nerve pain.electrical current, tingling, and prickly, sometimes burning pain.. it affects all four extremities. I’m on strong pain meds and only can take twice daily that don’t always greatly help.. And lyrica 225 mg bid-has anyone felt like this? My 2nd spinal fusion, I had a CFS leak and since then i have nerve pain!!! 6 years ago- I just need relief!! Thank you for helping. #HypermobilitySyndrome #EDS
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I'm new here!
Hi, my name is Martin. I'm here because I've been struggling with treatment-resistant depression and anxiety since childhood, for more than 30 years. I was taking amitriptyline 150 mg daily for 20 years, then had to stop taking it because of its anticholinergic effects on my brain. My short-term memory got real lousy. Now my physician switched me to mirtazapine but it's not working so well and I've had repeated bouts with depression and anxiety. I would like to find out if there are people here who have gone through similar experiences.
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Happy New Year
After a night out in the summer of 2023, I came home, sat on the floor and cried. My entire left leg felt numb and very weak. This had been happening for weeks, along with random tingling throughout my legs & extreme exhaustion for no reason. Mark sat on the floor, hugged me and said we are going to figure this out together. Little did I know that the next 18 months would be the toughest of my life.
A shit show rollercoaster of doctor's appointments, endless bloodwork, MRI's, EMG needles in my legs & head, multiple neurologists, fighting with insurance, tears & emotions of questioning myself; But I knew something was wrong and it was progressively getting worse.
In June 2024, I was formally diagnosed with Myasthenia Gravis (MG). By then, the disease had progressed to generalized MG. Imagine having weights strapped to your arms, legs, jaw, neck, and diaphragm. Now try to go about your day normally. Every muscle in my body becomes weak with even minor movement, and the only relief comes from rest. Some days, I have trouble walking. Most days, it feels like a 20lb rock is pressing on my chest, making it hard to breathe. I deal with daily muscle spasms, nightly leg pain, and constant exhaustion.
Receiving the diagnosis was one thing. The next hurdle is finding the right drug for each individual. This autoimmune disease effects everyone differently ❄️. Since June, I have been on multiple medications, tried various infusions, took a fun ambulance ride, faced the insurance denials & surprise medical bills, and had a thymectomy. Right now, the only thing keeping me somewhat stable and able to walk in short bursts is steroids, but steroids are also the devil. They come with a whole list of side effects that are hindering me in other ways.
So while I wait for my immune system to (hopefully) readjust itself after the thymectomy—it can take up to a year to see any improvement in symptoms—I’m preparing to try a new drug infusion soon.
There is no cure for MG and it will always be a part of my life. It has changed the way I see the world and my outlook on life. I now recognize that there are people we pass everyday who may be carrying the heavy load of an invisible disease. Don't judge the person who looks "fine", but is taking the elevator up one floor. Don't judge the person who one day is easily walking but uses a collapsible cane the next.
Looking back to where I was in the summer of 2023 and everything I went through in 2024, I see how far I've come. I know 2025 will not be easy either, but I feel closer to finding my "new normal". I will continue to push myself to reclaim my life, and I couldn't do any of this without the support of Mark, my family and my friends. Happy New Year. Love & Light.
