Myasthenia Gravis

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Hi all

I’m new to the group. I have several chronic and autoimmune disorders. Fibromyalgia, ME, myasthenia gravis, a rare eye disorder and a few other things. I live at the beach (summer traffic!) and have a load of pets. One dog and seven indoor cats. My house is chaotic sometimes. Looking forward to meeting others.

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New Friend. Gone?

Hi. I became fast (instant) friends with someone with MG. Things got touchingly honest, fast. Then, after I shared my feelings (just deep affection, romance), communication basically ceased. They were also going through medication changes. I very much want to remain friends and hate to just walk away, because I, too, have a chronic disease and I know what it’s like when people walk away. They say they are “still here” but there hasn't been any real communication in two months. I don't feel friendship. Is MG like this?


WEEK 2 ✅️

Today marks 2 weeks on my new medicine combination 》》》Zoloft and Lamictal.

I have noticed a little difference towards the better but it's still early to tell. My doctor upped my dose on Lamictal to 50 MG instead of 25 mgs.

Let's see how it goes over the next 2 weeks.

This is my first time on a mood stabilizer so I'm hopeful for something to actually work for me.

Fingers crossed🤞


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It’s nice to see our first members. Welcome! Kinney and Mk. I hope thiwill be a vibrant community for people to learn about and connect with others with MG or those who love or care for people with MG.

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Happy Monday Everybody

I am 31 years old and just two weeks ago I was diagnosed bipolar (combined types) and ADHD (combined types) plus severe anxiety and dark, dark depression.

After a lifetime of different doctors and therapy and Celexa here and there.

Finally, someone listened to me.

Does anyone have experience taking Zoloft 1X a day (50mg) with Lamictal (not sure what mg yet)??
#BipolarDisorder #ADHD #Anxiety

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Finally waking up

Finally after 3 cups of coffee I’m finally slowly waking up. I took 3-10 mg melatonin last night so needless to say the “ melatonin hangover” was with me this morning. Today is going to be a rest day and maybe in awhile will be in the mood to work on some music. I find this very relaxing but the mood has to be right. Every member here has the ability to write whether songs or poetry. Some write in their daily journals on their day. I won’t do this as I don’t want to dwell on my pain. Instead I focus on a few words and build around it. I love playing a lot of types of music except a few types. I try and not watch TV as now days is filled with such depression or violence. The news by far is the worst! We all hopefully have found our coping mechanism that get us through this journey. In some ways my injury was a God send. It really taught me what was truly important in life. It’s not material things , it’s the smaller things which was mentioned earlier by another member. It definitely brought me closer to God. I typically wouldn’t share any past work life details but I was injured trying to take care of a patient in a pick up truck that had a semi go off a overpass and land directly on top of his truck. You couldn’t even see his truck. It took a hour and a half to get him out and actually I had a trauma surgeon flown in as we might have had to remove his legs. When the Helecopter took off with him, I honestly thought he would be a fatality. That’s when my physical issues began. 1 and 1/2 years later I received a subpoena as a witness on this call. It was the first time I had seen him since his accident. I walked into this small room and saw him and his wife and his 2 children and as we all hugged each other all of us just cried. Then the court began and he was awarded 3.2 million for his injuries. I know that a wife still has her husband,2 children still have their father. So if I knew what the outcome of my injury would have been before this would I do it again? The answer would be yes in a heart beat. A single life is priceless!…..David

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Swallowing issues

Hello. Ever since the middle of March, I have been struggling with swallowing issues. I ended up going to the ER and they told me it was jsut mg anxiety. Well as time progressed on it just continuously keeps getting worse that I can barely swallow saliva or breathe. I did a swallow study and it came back as normal. Now I have an endoscopy at the end of the month. Can anyone relate or know of any possible related diagnosis’s? I also get very nauseous sometimes and have struggled with IBS my whole life and have absolutely no energy.

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Sildenafil citrate Medications.

Sildenafil citrate, the active ingredient in medications like Fildena Super Active and Fildena CT 100, is primarily used to treat erectile dysfunction (ED). Here are some advantages of sildenafil citrate:

Effective for ED: Sildenafil citrate is highly effective in treating erectile dysfunction in men. It works by increasing blood flow to the penis during sexual stimulation, helping men achieve and maintain an erection.

Rapid onset of action: Sildenafil citrate typically starts working within 30 to 60 minutes after ingestion. This quick onset of action allows for spontaneity in sexual activity.

Long duration of action: The effects of sildenafil citrate can last for up to 4 to 6 hours, enabling men to maintain erections throughout the duration of sexual activity.

Convenient dosing: Super active viagra and kamagra chewable 100 mg are available in various formulations, including chewable tablets and gel capsules, which can be more convenient for some individuals compared to traditional tablets.

Well-tolerated: Sildenafil citrate is generally well-tolerated by most men. Common side effects, such as headache, flushing, indigestion, and nasal congestion, are usually mild and temporary.

Improves confidence and quality of life: By effectively treating erectile dysfunction, sildenafil citrate can improve a man's confidence, self-esteem, and overall quality of life, as well as enhance the quality of his intimate relationships.

Versatile: Sildenafil citrate can also be used to treat other conditions such as pulmonary arterial hypertension (PAH) by relaxing the blood vessels in the lungs to allow blood to flow more easily.

However, it's essential to use sildenafil citrate under the guidance of a healthcare professional and to follow the prescribed dosage instructions to minimize the risk of side effects and ensure its effectiveness. Additionally, it may not be suitable for everyone, especially those with certain medical conditions or who are taking specific medications, so it's crucial to discuss potential risks and benefits with a doctor before starting treatment.

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Predisone Side Effects

Earlier in Febuary I got the flu. As I was recovering I started to slowly lose my vision. I was taken to the hospital where we found out I have optic neuritis. Which than later turned into bilateral optic neuritis spreading to both eyes. I was in so much pain and they put me on IV steroids for about 7 days. I then got to go home and take them orally. I started with 80 mg for two weeks and am tapering down to 0. Currently on 30mg. The side effects are making me very depressed. I've gained so much weight in my mid section, neck, and face. I have to have a low sugar and low carb diet to prevent ny blood sugar from spiking. My hair is falling out in clumps. My back hurts, I'm shaky, I'm CONSTANTLY sweating, insomnia, acne on my shoulders, water retention.... you name it.
And still.... we don't know what caused my body to develop optic neuritis. They are doing so many tests for autoimmune. L.. but I just eant answers because I want to see clearly again and not have so much pain.
This is my MOON FACE. I am so scared that it may never go back to normal. I feel so self conscious because when I see people i know they obviously notice how much weight I've gained. #OpticNeuritis #MoonFace #Steroids #MentalHealth #AutoimmuneDisorder #MultipleSclerosis #ChronicIllness

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