Does anyone have recipes for me. I have a new Ileostomy w colectomy recipes pls🥘🍔🍳🌮🍝im so hungry # ##Ostomy
#MultipleHealthChallenges
#InflammatoryBowelDiseaseIBD #CrohnsDisease #Recipes
#nutrition
2 reactions I feel broken. I spend all day dealing with my ileostomy. My friends and most of family are done giving almost no support, a few texts and then nothing.
#CrohnsDisease
1 reaction Had mine since 19 (10 years now) doesn't appear to be very common in my age bracket. Older and younger people (whilst both having unique insights and experiences to offer); typically have pretty different lifestyles.
So anyone in their late 20s or early 30s have an Ostomy? #Ostomy #Colitis #CrohnsDisease #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS
Hey everyone! Looking for advice as I prepare for ileostomy placement/surgery for the first time after being diagnosed with crohns 8 years ago. I’ve failed 3 biologics and surgery has become my only hope for some semblance of normalcy. Or should I say stability? I’m looking for advice or stories from everyone who’s had or has an ostomy. I’m worried about everything, particularly intimacy issues after, comfort, pain, self conscious thoughts and feelings
#CrohnsDisease #Ileostomy #Ostomy #InflammatoryBowelDiseaseIBD #Colitis #Humira
I am getting over a cold this week and have found that being sick with my ostomy has meant that my #Ostomy output has gone up, and my baseline lethargy has increased significantly.
It seems like as I get older with IBD that it takes more for me to recover from these common viruses that we all experience from time to time. So, I spent the past week not doing much and just focusing on resting to get over the cold, but I wonder is there more I could be doing to help my body when I am sick? What tips and tricks do you all have when you have a cold?
Happy World Ostomy Day! If you had told me at 23 when I consented to a proctocolectomy that it was only the beginning of living a full life I may have laughed at you. I had surgery before we had communities like this-- when I had my colon, anus, and rectum removed we were right at the cusp of when these communities started. So, I had no idea that having an ostomy would allow me to travel, eat food I had only read about, and be present for life in a way I never was with active Crohn's Disease.
Since having surgery almost fifteen years ago-- I have passed law enforcement physical fitness testing, been present for holidays, taken road trips for hours without needing to stop for the bathroom, swum in the ocean for hours, gone on vacations, hiked mountains, gone backpacking, and in general, live a full life that is only possible because I have an ileostomy. Always grateful for my bag, and incredibly grateful for these online spaces where we find we are no longer alone!
Balancing all of life's responsibilities with a chronic illness is so challenging! When I have more symptoms and IBD complications, I sometimes feel like I can't keep up with my daily life. The floor goes unvacuumed, dishes pile up in the sink, and I feel perpetually behind. I recently have been practicing self-compassion and letting go of self-judgment and self-criticism.
Allowing myself to let the dishes pile up a little bit when I am not feeling my best frees me up to lean into self-care. I also have outsourced or asked for help with things like hiring a laundry service to get my laundry done or asking a friend to help me with a grocery pick up.
What tips or tricks do you use when your fatigue or symptoms are impacting your ability to complete your daily responsibilities?
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