What is something you wish people knew about living with Crohn's?
What is something you wish people knew about living with Crohn's?
Your response may be used in an article or video on The Mighty.
The Mighty is a safe, supportive community for people living with health challenges and the people who care for them.
What is something you wish people knew about living with Crohn's?
Your response may be used in an article or video on The Mighty.
The Mighty is a safe, supportive community for people living with disabilities and the people who care for them.
Stomach hurt less today though it was still here, but I’m grateful it is a lot more mild today.
I am also very lucky I think that my Crohn’s has been responding to the infusion medication well,
It’s been hurting recently most likely because my infusions are coming up and it normally hurts close to that time.
So I’m in a good mood at the moment despite the other physical pain like my left knee.
Though it’s too be expected I think because it has been going on for years despite no diagnosis or explanation.
It’s hard to find a cause as well besides a fall or just me being in sports a lot growing up.
But anyway,
I was able to eat dinner today without too much issues!
That’s progress I think despite me likely needing to eat more, I guess one doesn’t immediately jump back into normal eating habits when facing digestive issues.
Besides that,
My trauma got triggered again but I was able to handle it better than most though some people could tell something was wrong with me.
But I just told them it was nothing,
I feel bad for not being completely honest but it’s just really hard to talk about with other people,
And I don’t know what to say when someone asks.
#MentalHealth #Trauma #ChronicPain #CrohnsDisease #InflammatoryBowelDiseaseIBD #GeneralizedAnxietyDisorder #MajorDepressiveDisorder
Today was a bit rough.
I managed to have a complete breakfast so I’m proud of myself for that since I have a very hard time eating likely to to my digestive system issues and also maybe mental health issues as well.
I couldn’t have another meal because I got too nauseous though I did try,
I really am making an effort to eat but I just have so many problems with it physically.
I don’t think I should force myself to eat either though because the nausea is so overwhelming.
Unfortunately my stomach really disagreed with what I ate and had to rest on my old friend, the heating pad.
It took a long while but the pain did lower as I used the heating pad and laid on myself.
It felt a lot like Crohn’s pain so it makes me a bit worried if my stomach is inflamed like I’m going to have a flare.
I do have a colonoscopy coming up though hopefully it proves nothing is wrong and it was just an occasional reaction.
It did hurt pretty bad though.
But the fact I had a full breakfast is a win!
#CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness
Honestly not much to say besides fatigue, pain, and now dizziness.
Well I have actually had dizziness for a while now but it’s becoming more prominent especially when I get up from a sitting position to standing position.
I try not to get up too fast but I get dizzy anyway sometimes.
My pain was still there but it wasn’t excruciating so today was a good day.
The most severe symptom I seem to be experiencing is fatigue despite my best efforts of pacing.
Which I’m still trying to learn but I don’t think I can do this by myself but I don’t know who I should get help from with pacing.
Aside from the fatigue; my mood has been rather low energy like feelings of calmness but a bit of sadness.
Just low energy level emotions in contrast with high level emotions regardless of being negative or positive.
#MentalHealth #ChronicIllness #InflammatoryBowelDiseaseIBD #ChronicPain #MajorDepressiveDisorder #GeneralizedAnxietyDisorder
Tired today again but a win for today is that I took a shower and now I am nice and clean!
It might sound odd to those outside of the community but showering can take a big chunk of energy from us.
Not that we are lazy; but that, at least for me and others,
we often are limited in our energy levels and daily tasks like just getting from our room to the kitchen to eat something will require more energy than most realize.
Though I’m sure most of us on here already know that,
The reason I am writing about it now is because I’m learning about pacing.
I do have a condition that limits my energy significantly, IBD, though I don’t really bring it up.
It surprised me when I found out that IBD can cause fatigue even though I had my diagnosis for a good amount of time.
The symptom was likely unmentioned to me due to how most people only know IBD for it’s bathroom symptoms or it was mentioned and I was just too fatigued from my chronic illness at the time from all the medical burnout I was facing.
It was strange to me that I wasn’t even aware of some symptoms of my condition though I’ve had it diagnosed a few years ago.
Back to the topic,
I am trying to learn my limits still and how to plan and conserve my energy so I don’t pretend I don’t have a chronic illness and chronic pain and can’t get out of bed for a day or even a few due to pushing myself way too far.
#ChronicIllness #ChronicPain #InflammatoryBowelDiseaseIBD #MentalHealth #MajorDepressiveDisorder #GeneralizedAnxietyDisorder
And will keep SHOWING UP UNTIL I CAN'T
Hi, my name is isabella. I'm here because I struggle with IBS and other digestive disorders, I'm hoping to find support here.
#MightyTogether #InflammatoryBowelDiseaseIBD #Depression #EatingDisorder #Crohn 'sDisease#ADHD