MultipleHealthChallenges

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    When hydrotherapy takes you into a 6 hour E.R. visit! Yep, no more therapy in heated water.

    So, my hydrotherapy that I wanted so long turned out to be a bit of a physical nightmare. I think I had 6 sessions so far. Five in the heated tank and one I pushed them for when the heat wasn’t working (cold) water. Yes, the cold was the best for my body as I thought it would be. Out of six sessions. Fifty percent of them I went in on a rollator/cane and came out the same way. Fifty percent of them left me unable to walk at all and required a wheelchair to leave. Two times while in the tank my body went into major immediate symptoms that required the tank to be drained and getting me out right now. Last week, my session ended abruptly requiring the therapist to call for help and a wheelchair to get me to the emergency room immediately. Six hours later I was on my way home.

    The bad news: Each hydrotherapy session in heated water quite literally felt like it tortured my body. Not just for the session but for the rest of the day and two to three days afterwards. Then, it was time to go again and do it all over. I’ve been telling my neurologist for the entire time that my body is suffering immensely with heat/humidity!! I KNOW. I know because I live in a home without a/c or central air, and the summer’s that I’ve lived for my whole life are now intolerable in every way. Why is my voice not heard?

    The good news: I don’t have a brain tumor (they did a ct scan), not that I thought I did. I didn’t have a stroke.

    The e.r. Dept wants the doc to continue looking at ms and autoimmune illnesses. She also said that the spine stimulator in my body that I’m currently not using NEEDS to be removed. I’ve nobody to do that and who’s going to pay for it?

    Now, the therapy department informed me that they will not allow me to continue hydrotherapy at all. They believe that something is attacking my nerves. Umm 🤔 yes, I believe that as well! I feel like my doc does not listen to me at all.

    It’s all ground or machine therapy from here on out. This will be so challenging as well seeing how my body can only walk 15-20 minutes max before my feet fold under, the numbness, pain and burning take over 2/3 of my body and I become unable to walk no matter if I’m using a rollator or not. I keep having vision episodes, facial numbing, head tingling and on and in it goes, along with limbs full of numbness and weakness the pain is severe and it is daily.

    Today, I’ve therapy in the afternoon, then it’s my sleep deprived eeg in the morning. Wow, what fun I’m going to have in the next 24 hours (my body), NOT! How I’m going to stay awake is the question of the day? Oh hell. 😬 Wish me luck you beautiful people!💕
    #MightyTogether #Undiagnosed #CheckInWithMe #MultipleHealthChallenges

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    I tried AGAIN to explain my situation to my brother! #MultipleHealthChallenges #Anxiety

    I have several well-known diagnosis' and one rare, myotonia congenita. I believe that my brother has myotonia congenita also but refuses to get genetic tests. We share some of the symptoms.

    Some of the more common diagnosis' we do not share. When I try to explain how debilitating fibromyalgia, essential tremors and osteoarthritis are for me. He, as usual, says he has pain too but has no choice but suck it up and push through it. I can't seem to convince him that our pain levels or types can vary wildly. I'm not sure what to say to him at this point.

    He and I are in a position now where our parents are requiring more at home care. Each have different stages of dementia. This is a delicate matter for the four of us. So I need to do my part in their care. Especially our mother who struggles if I'm not with her several times a week. During the current discussion between my brother and I he told me that he needs me to step up more. He thinks I don't know that?! I feel guilty enough for not doing what I think is enough.

    Our parents live in his basement apartment and I live 10 minutes away. He now has a lake house as well. He wants to pick up and go whenever he wants without notifying me until the night before. Which means I have to pick up the slack so to speak. I wish it was easy for me to just get ready and leave my house. We all know that it's not that easy or simple. My parents have a spare bedroom but he and his wife don't want me to live with our parents. Just come over 3-4 times a week for a few hours he says. I struggle showering or even cooking for myself daily. I'm at a position where I need extra care myself. But I'm at a loss at what more I can say to him. It's a no win situation for all of us. Thank you so much for listening to me vent. Have a great day! 🙏 #Fibromyalgia #Depression #Paresthesia #Neuropathy #formication #MyotoniaCongenita #EssentialTremors #RareDisease #Osteoarthritis

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    Today, my friends and community, I’m doing a rare thing and asking for you to lift me up with your support for me today. #ChronicIllness #Pain

    My doctor (PCP) laughed in my face at my treatment-resistant major depressive disorder disabilities last night at my appointment - it was a joke to him! He ridiculed me, demeaned me, and it’s not the first time he or other doctors were not a proper medical professional when I went to them for professional care.

    This one last night did this all while throwing out new physical illnesses names at me that I probably have but needs to be confirmed by bloodwork taken last night.

    So, I’m much sicker Physically now and once again I cannot go back to this doctor and I haven’t yet, in all these many years, been able to find one who is a compassionate human, let alone a professional who knows what they are doing.

    It should go without saying that we deserve to be treated so much better and many of us just are not, and it shatters me for all of us.

    This shouldn’t be in our hands alone to Warrior through because of disgraceful doctors that show us that they are numb and apathetic to what they took a professional oath to do and that they chose to go through many vigorous years of schooling to help us, not make us worse and actually hurt us.

    We shouldn’t have to keep picking up our shattered pieces of ourselves and putting ourselves back together time and again because there are way too many people, including medical professionals, who do not have a moral compass. #MightyTogether #ChronicPain #Insomnia #ChronicFatigue #MultipleHealthChallenges #PTSD #Trauma #warrior #MentalHealth #mentalhealthmatters #MentalHealthAwareness #MadeVisible #Support #Depression #ChronicDepression #MajorDepressiveDisorder #TreatmentresistantDepression #Anxiety #MyCondition #MajorDepression #MedicalProfessionals #MedicalPtsd

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    Asking For a Co-Leader

    Hello Everyone!
    Welcome to all of our new members!😃

    I have dreams for this group.
    I would love to see everyone sharing ideas and encouraging each other.

    I apologize for not following through on my ideas for a "Basics Series" of posts to help beginners start this fabulous creative organization process.

    I need help to run the Group.

    Suggestions:
    --A weekly journaling prompt
    --A weekly post about organization ideas.
    --A weekly post on different aspects of the Bullet Journal System and how it can be adapted to Mighties needs
    --Sharing art

    My body is shutting down due to both interior and exterior stressors. I am very ill.

    I have been hospitalized multiple times since May 2021, and I have talked with my psychatric nurse tonight by phone. My psychiatrist is increasing my anxiety medication.

    I need to step away from the Mighty for awhile.

    I will come back, but I don't know when. Probably when my Team gives me the okay.

    Know I am with you in spirit.

    Blessings to you.🤗♥️
    #BulletJournalBuddies
    #Anxiety
    #MentalHealth
    #Depression
    #ChronicIllness
    #ChronicPain
    #MultipleHealthChallenges

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    First off all, I love App, thank u for having me, thank u all for the prayers, please keep them coming, went to the doctor today, my body is covered in Arthritis, either OA or RA, I also have Fluid in my abdomen, possible Shunt issue, starting me on a sleeping pill or pain pill tomorrow, as they didn't have them in today.

    Thank u

    #AloneTogether
    #liftmeup
    #MultipleHealthChallenges
    #Chatspace
    #EssentialTremor
    #Insomnia
    #lonely
    #we @Are#MightyTogether
    #CheerMeOn
    #CheckInWithMe
    #FamilyAndFriends
    #noshame
    #MightyTogether
    #ThePainGame
    #themightylife

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    I love all these men, that want to chat, just to find where u r from, if u r married, etc..

    They probably don't even have anything wrong with them IMO

    I've blocked soany men in the last 2-3 days, wow.

    I talked to one person regularly on here and this is supposed to be a support app???

    Where's the support???

    Now I know why I stay away and only check in periodically, it is me, and I knew it.

    #EssentialTemor
    #struggling
    #nausea
    #PeopleWhoDon 'tBelieveYou
    #sleepproblems
    #themightylife
    #HighlysensitivePerson
    #ThePainGame
    #MightyTogether
    #NavigatingTheMighty
    #noshame
    #CheerMeOn
    #ChronicFatigue
    #CheckInWithMe
    #AloneTogether
    #Upallnight
    #liftmeup
    #MultipleHealthChallenges
    #Chatspace
    #FamilyAndFriends
    #Insomnia
    #lonely
    #Lonliness
    WeAre#MightyTogether
    #FinancialIssues
    #Nosupport
    #Pain
    #ChronicPain
    #ChronicIllness
    #Christian

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    I hate Chronic Pain and Sickness, it never goes away, I had to call in to work because I just can't go, the pain is pulsating, I just want to be normal, if it isn't one thing with us, it's another, my body is GOING to make me rest, I noticed the other day how much standing hurt, I try and overlook my pain and sickness and be ok, and fine, but, I'm not and NEVER am.

    ***Just looking for support and
    care***

    I have
    Congenital Hydrocephalus,
    Retinaopathy of Prematurity
    Hypertonia
    Chronic Knee, Ankle, Shoulder Pain
    2 L5 S1 Discectomies
    Diverticulitis
    Essential Tremors
    Groin Pain

    #spoonie
    #suppport
    #care
    #LetsMakeNewFriends
    #themightylife
    #HighlysensitivePerson
    #ThePainGame
    #MightyTogether
    #noshame
    #CheerMeOn
    #MightyMinute
    #ChronicFatigueSyndrome
    #CheckInWithMe
    #TheNeurodiverseCrowd
    #DistractMe
    #AloneTogether
    #liftmeup
    #MultipleHealthChallenges
    #Chatspace
    #FamilyAndFriends
    #EssentialTremor
    #Insomnia
    #lonely
    #weare #MightyTogether
    #Lonliness
    #friendships

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    New to group, but very active on The Mighty. Created Multiple Health Challenges group - I myself have many emotional and physical health challenges!

    I am a 56 year old living in Baltimore, MD where I deal with multiple physical and mental health challenges. I am HIV+ and a person Living with AIDS (36 years) and have dealt with Chronic pain (back and neck+), Shingles, Pneumonia, Bronchitis, and Neuropathy which almost killed me...and the depression that was amplified from dealing with the HIV diagnosis: I have deep experience dealing with pain, worry, fear, Survivor’s Guilt; weeks lost in hospitals, therapy, surgeries, being bedridden and I have lingering symptoms, so I can relate to others with almost any physical health problems that have greatly affected our lives! I am also Bipolar (diagnosed 1982) I have been mostly stable for a few decades with no manic episodes or suicidal depression. I have been hospitalized and had extreme episodes in the past and still deal with depression... so I can relate to most people with mental health problems intimately. And I have been sober for 9.5 years. All these experiences have given me deep empathy and understanding

    Recently I had a big scare as I got Covid and was admitted to the hospital with 12 symptoms and was stuck in a hospital bed totally dependent on others for 8 days, then I went to a rehab facility where I basically started to learn to walk again. After intense PT there, home PT and outpatient PT I got my strength and balance back and now can go on 45 minute walks and I just rejoined a local gym to continue my recovery! Unfortunately now I am dealing with the residual side effect from Covid Long Haul with regular and intense migraines. These were very bad for a number of months and often had me stuck in the dark with no sound from waking up until bedtime, but with all the meds and other treatments they have become less frequent and less intense so if I get one I often can get it to clear in 5 hours or so... but that still takes away a whole day out of my life...BUT.... I'm still alive and once again a warrior and survivor!

    #BipolarDisorder #MentalHealth #Depression #Anxiety #HIVAIDS #Addiction #SOBER #COVID19 #Migraine #PTSD #BipolarDepression #PeripheralNeuropathy #BackPain #Shingles #Pneumonia #Bronchitis #MentalHealthHero #happy #relief #Grief #LossOfAParent #AddictionRecovery #Bipolar1Disorder #ChronicIllness #ChronicPain #Disability #MultipleHealthChallenges #MightyMinute #longtermsurvivor #MightyQuestions #Hope #thankful #grateful #Acceptance #Selflove #Selfcare #IfYouFeelHopeless #Hope #strength #relief

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    U know u have so called friends when they invite u to a get together on Saturday, they message u Thursday and say, I need to know if u r coming Saturday, by 5pm today.

    Mind u, u all have seen my Health Issues, for the people that haven't here ya go.

    I have

    Congenital Hydrocephalus
    Retinaopathy of Prematurity
    Hypertonia
    2 L5 S1 Discectomy Back Surgeries
    Chronic Knee, Ankle Pain
    Essential Tremors
    Carpal Tunnel Syndrome
    Possible Neuropathy
    Possible RA
    Groin Pain

    I said, depends on how I feel, mind u, I just fell on concrete a week ago.

    I get a message from the husband saying "where were yesterday?"

    "In bed"

    "Oh"

    😡😡😡😡

    Chronic Pain, No One Gets It.

    #chronicpain
    #ChronicIllness
    #noonegetsit
    #socalledfriends
    #LetsMakeNewFriends
    #themightylife
    #HighlysensitivePerson
    #MightyTogether
    #noshame
    #CheerMeOn
    #ChronicFatigueSyndrome
    #CheckInWithMe
    #AloneTogether
    #liftmeup
    #MultipleHealthChallenges
    #Chatspace
    #EssentialTremor
    #Insomnia
    #lonely
    #weare #MightyTogether
    #FamilyAndFriends