Inflammatory Bowel Disease (IBD)

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#CrohnsDisease #ChronicIllness

#InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS

Hello Mighties,

it’s been a while since you last heard from me and I apologize for the absence;

you know how health can be while chronically ill, and I hope you all don’t mind but I’m only posting once a week now which I’ll explain more in another post but I wanted to write about this first as I have a lot to say.

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To those who don’t know me, I am Kocho, a teenager living with a chronic illness diagnosed when I was only fourteen years old.

I created this account to connect with a community who can understand me and maybe I can help make others feel less lonely and isolated due to their condition or conditions.

I’ve been here for quite some time now and I wish I found the app sooner! It was very lonely and overwhelming when I was first diagnosed;

I couldn’t go to school, I couldn’t go to events I would’ve found exciting, I couldn’t keep up with friends, feeling so nauseated with just a spoon of broth I could hardly eat, I couldn’t eat hardly anything without being in severe pain, and at some point, I could barely walk and needed assistance from the people around me.

My life consisted of medical appointments, multiple doctor visits, surgery, bloodwork, MRI, hospital visits, X-rays, and more I can’t remember as it’s all a blur when I look back at it.

I wish I could say I’m recovered but as many of us know, the illness is chronic and never leaves and I still struggle with these things as I’m approaching my ninetieth birthday; becoming more independent while chronically ill.

And that includes showering more often, which I hate, now I’ll tell you why;

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People with chronic illnesses often struggle to shower because of the physical and mental energy required to do so.

Bending, standing for prolonged periods, and even just bathing leaves me exhausted, in pain, and out of breath instead of feeling refreshed.

Often in the community, we refer to showering as an exercise because it is for us.

It’s like climbing a mountain without being given any necessary equipment; I find myself having to sit down several times from using muscles and areas of my body that already are painful like my left knee and areas of the body that are already weak.

Which means sitting on the floor of the shower every few minutes is normalcy for me.

Most of us struggle just to get out of bed because we’re constantly at low battery life; this means we don’t have the energy needed to complete what others consider daily tasks.

Once I finish my shower I already feel completely drained of energy and need to rest.

In addition; fatigue, brain fog, and other symptoms make it difficult to find the energy and motivation needed to complete a shower.

And when we do complete that shower, or energy levels are either completely gone or almost;

I took a shower yesterday and had to rest for most of the rest of the day.

Showering steals the energy from me to enjoy my day which is why I hate it.

#InflammatoryBowelDiseaseIBD #CrohnsDisease #ChronicIllness #ChronicPain

Meet Kristo—he suffered from pains in his body, fibromyalgia, three heart attacks, and one stroke, and has been using a sleep apnea device since 2012.

After 25 years of diligently following the medications and surgeries prescribed to him, his long-term doctors informed him in mid-May 2019 that they could no longer do anything for him. By this point, his body had deteriorated significantly.

He could no longer walk well. His vision was only 30% after two failed eye operations. Using two crutches, he could move a maximum of 100 meters before losing balance and falling over due to the pain. He had been suffering from chronic fatigue for at least 30 years, dragging himself through each day.

His wife, his caregiver for many years, juggled her job in childcare with an unpaid "job" as a nurse, driver, cook, cleaning lady, gardener, and chef, leaving her little time in her busy, hectic life.

Kristo was told to get comfortable in a scooter for disabled people and a wheelchair because that was going to be his life going forward. Their world fell apart - until a friend introduced him to our program.

See the new man! Kristo’s journey from chronic fatigue and debilitating pain to renewed vitality is just one example of how our program is helping many people get their lives back holistically, without medications and surgeries.

We are looking to talk to 60 men and women, especially those over 50, who have health problems and are serious about finding a proper solution.

Your insights will help us build a program tailored to your needs. Participants will be rewarded with a 10% discount when the program launches. It provides transformative results, by the way.

Interested? YES or NO?

Comment below if you want to participate!

Thanks!

#ChronicFatigue #ChronicIllness #ChronicDailyHeadache #ChronicLungDisease #ChronicPain #chronic #ChronicLungDisease #ChronicInflammatoryResponseSyndrome #ChronicPancreatitis #ChronicTraumaticEncephalopathy #ChronicObstructivePulmonaryDisease #ChronicOrthostaticIntolerance #ChronicVestibularMigraine #MentalHealth #Addiction #chronic #Anxiety #Arthritis #BackPain #CeliacDisease #CommonVariableImmuneDeficiency #ComplexRegionalPainSyndrome #Eczema #EosinophilicEsophagitis #HashimotosThyroiditis #ChronicLymphocyticLeukemia #HashimotosThyroiditis #InflammatoryBowelDiseaseIBD #InterstitialCystitis #IrritableBowelSyndromeIBS