Inflammatory Bowel Disease (IBD)

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What is something you wish people knew about living with Crohn's?

What is something you wish people knew about living with Crohn's?

Your response may be used in an article or video on The Mighty.

#CrohnsDisease #ChronicIllness

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May 23rd 2024 Review + Thoughts

No post tomorrow,
but not for a bad reason.

I will be officially graduating from high school tomorrow! I don’t know wether to feel excited or anxious; I feel a bit of both!

There were times in my life I never thought I’d get this far; when at my lowest I didn’t see a future for me like I was stuck at the bottom of a cliff I felt I couldn’t climb.

But those who supported me gave me their hand and helped me up that cliff that seemed so long and steep.

Soon enough the metaphorical climb lead me to a beautiful view I could look over and see how far I’ve come; despite my physical and mental health challenges I still am here.

I made it through things I never thought I could! 🦋

#MentalHealth #InflammatoryBowelDiseaseIBD #CrohnsDisease #ChronicIllness #ChronicPain #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #ADHD #ADHDInGirls #AutismSpectrumDisorder #PTSD

19 reactions 5 comments
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May 20th, 2024 Review + Thoughts

Late, but late is better than never I suppose.

Today was fairly interesting; I managed to get out in the world and leave the solitude of my room.

I finally had the energy to get up and walk around to go shopping which is something that is very hard for me and a lot of us.

Though it caused me pain and I needed to take breaks; it really helped the restlessness I was experiencing from my ADHD in some way.

I don’t know if that makes sense since as I’m typing this it’s very late at night because my day was so busy!

Good news being I will be able to paint soon and I think I’m going to paint some pretty clouds or maybe even a butterfly! 🦋

#MentalHealth #ChronicPain #ChronicIllness #InflammatoryBowelDiseaseIBD #CrohnsDisease #ADHD #ADHDInGirls

18 reactions 3 comments
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May 19th, 2024 Review + Thoughts

Sorry for no post again,
This week I am fairly busy but I’m also feeling a bit unwell.

No fever from what I’m aware of but the constant nausea and lack of appetite has just been doing a lot to me.

Not to mention the pain.

I have a big event coming up and it’s supposed to be a celebration but I’m just struggling lately.

I’ve had days I ate nothing at all, it’s a good day if I eat one meal.

This is not voluntary starvation, but it’s just that I feel so sick to stomach I can’t eat.

If I manage to have a meal or just half of it I will get so nauseous I can’t have anything else.

It’s odd, I’ve never struggled with this so much in a long time though it has been going on for a few months now.

I’ve also unintentionally lost so much weight.

It could be my Crohn’s but I’m not sure.

Hopefully things get better.

#InflammatoryBowelDiseaseIBD #CrohnsDisease #ChronicIllness #ChronicPain #MajorDepressiveDisorder #GeneralizedAnxietyDisorder

7 reactions 1 comment
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May 17th, 2024 Review + Thoughts

Managed to stay awake today!

I got import things done instead of procrastinating and I independently advocated for myself regarding my health and challenges which is huge for me due to my social anxiety!

So that is definitely my win for today.

Though I was very unfocused and couldn’t concentrate on anything due to rapid thoughts and a short attention span due to my ADHD.

It’s so hard to just focus and anxiety just amplifies everything including my symptoms.

I wish I could find a way to focus better and not have my mind a million different places at once.

My left knee pain was annoying because it hurts just to stand and it still hurts when I am sitting.

My Crohn’s is in remission but I’m getting signals I need to stay away from some food and drinks for a while,

Likely my infusions are coming up and that’s the cause.

Overall today was better in some ways and worse than others but I think today was a good day.

#ChronicPain #InflammatoryBowelDiseaseIBD #CrohnsDisease #MentalHealth #Anxiety #GeneralizedAnxietyDisorder #ADHDInGirls #ADHD

8 reactions 1 comment
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May 16th, 2024 Review + Thoughts

Fatigued, as always.
I can’t believe I took three naps in only one day.

I didn’t want to take those naps but I just had no energy like my body was on 1% mode and desperately needed to charge.

And despite that, I was still exhausted when I woke up and didn’t feel refreshed at all.

I have to limit activities just so I can function which is saddening because there is so much I want to do but don’t have the body to do much.

It only leaves room for very important tasks and everything else has to take a backseat.

I’m exhausted all the time and I don’t know why this is, it might be my chronic illness that is causing this.

I’ll likely have to talk to my doctor(s) about this overwhelming fatigue and hopefully there’ll be something I can do for it and not have to limit the enjoyment of my life.

On the other hand,
My win is that I had a nice meal despite the feeling of being sick and I drank some water. 🦋

#InflammatoryBowelDiseaseIBD #CrohnsDisease #MentalHealth #MajorDepressiveDisorder #ChronicIllness #ChronicPain

10 reactions 3 comments
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May 15th(?), 2024 Review + Thoughts

It seems like I got the wrong date for my last post, which shows how tired I was and how tired I still am.

Today was very busy and very exhausting and painful for my body as I had to walk around a lot.

My left leg and stomach were throbbing and I was so out of breath I had to take a few breaks just to regain enough air and strength to keep walking.

Keeping this short as I have very little energy to type this.

I’ve just been very busy lately with scheduling appointments and having tasks to do.

But despite that,
I still got my tasks done though they were difficult!

That is my win for today.

#ChronicIllness #ChronicPain #InflammatoryBowelDiseaseIBD #CrohnsDisease #GeneralizedAnxietyDisorder #MentalHealth

7 reactions 1 comment