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Hi, my name is cameron5. My son has had PANS/PANDAS (diagnosed and in treatment since 2020) and we are looking to understand great accommodations to help in college with an acute-chronic illness like these and all the comorbidities that come with it like, OCD, anxiety, ADHD, IBS, executive functioning deficit, writing and math degradation, and sensory disorder. We understood he would likely become ill sharing a room with others his first semester and sadly was sick for over 4 weeks. This is when we learned that the accommodations that he thought he set into place that summer with the office of assistive resources and accessibility did not happen. He came to college and this office with his IEP and 504 and shared his diagnosis as did the doctors as well as the disabilities associated. What we now know as of last week, is that none of the accommodations were sent to the professors and many are missing that protect a student who has a chronic illness like class notes, excuse for absences, flexibility time to retake and complete assignments and exams, use of laptop in the classroom and with exams and tests, most importantly support with instructions both written and verbal with confirming understanding. Will be sitting with this department tomorrow and it took legal documents as well as Peter to send notes to this department requesting support to get the support. I understand that they would like to see him be independent and eventually he will, but at this first semester start time, he still needs support and assistance with transitions to get settled properly so he can start to be successful. Do you have any road-map to accommodations that were or have been successful with colleges and a student with PANS/PANDAS?
#MightyTogether #PANS /PANDAS
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