Chronic Vestibular Migraine

Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.
chronicmigraineawareness.com/2023/03/07/mitas-story

#chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

Switching from one medication to another, or adding a new medication to your treatment plan, may be necessary throughout your treatment journey for migraine.

If you are experiencing ongoing symptoms, intolerable or unpleasant side effects, or even new-to-you symptoms, it may be time to discuss changing your treatment plan with your doctor or care team.

If you have modified your treatment plan, when did you know it was time to try a new medication? Share your experiences and advice for others in the comments below.

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicDailyHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

We want YOU to feel less alone.
Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
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#Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

We are two friends both with chronic and mental illness, who decided we wanted to bring to the forefront, and open up real conversations about, how we are coping with our diagnosises. We use humor, personal experiences and scientific studies with what can potentially help; has helped; and what we are willing to try to stay sane in the midst of what we’ve been saddled with by life.
We’re also doing this to try to end stigma, raise awareness as well as discourage toxic positivity and ableism to take more root in society.

We would love your support and also your input on what coping skills you all use- join the conversation! Follow us on instagram @ creative.copes and on your favorite listening platform and comment away! The more we talk, the more mainstream it will become.
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#keeptalking #jointheconversation #jointhefight #RealTalk #EndTheStigma #Raiseawareness #MentalHealth #physicalhealth #Ableism #Toxicpositivity #copingstrategies #CopingTips #beyourownadvocate #ChronicIllness #ChronicPain #ChronicMigraines #ChronicVestibularMigraine #Fibromyalgia #GeneralizedAnxietyDisorder #SocialAnxiety #Agoraphobia #Dysautonomia #CrohnsDisease #Endometriosis #RaynaudsPhenomenon #MyalgicEncephalomyelitis #ChronicFatigue #OccipitalNeuralgia #wecandothis #LetsDoThis

This is exactly what I, and countless others, do everyday - we put up a ‘public persona’ to hide what we’re truly going through. We pretend that we aren’t: in #AGONY or #depressed or #exhausted or #anxious . We pretend because we are #scared of how others would treat us if they really know what we were going through. The thing is though, by pretending we are something we’re not, we are giving ourselves more #Stress but also denying someone the opportunity to help us deal with the things that are really going on in our lives.
#itsokaynottobeokay #itsoktoneedhelp #ChronicIllness #chronicillnessawareness #ChronicPain #chronicpainawareness #mentalhealthmatters #MentalHealth #MensMentalHealth #CollegeMentalHealth #MentalHealthAwareness #Disability #IntellectualDisability #DevelopmentalDisability #InvisibleDisability #disabilityawareness #invisibleillnessawareness #FunctionalNeurologicalDisorder #FND #FNDAwareness #JointHypermobilitySyndrome #ChronicMigraineSyndrome #ChronicVestibularMigraine #HemiplegicMigraine #Migraine #BipolarDepression #ChronicDepression #Depression #ChronicFatigue #Anxiety #SensoryProcessingDisorder #BrainFog #PanicAttacks #PanicDisorder #notalone #BeYourself

We are two friends wanting to swap ideas on creative coping skills with like minded people! We host a podcast called Creative Copes about this very subject with new topics every week. Maybe some of you can give us ideas what to talk about in upcoming episodes?
#ChronicIllness #dynamicdisability #CrohnsDisease #PTSD #Anxiety #Agoraphobia #PanicDisorder #MentalHealth #MyalgicEncephalomyelitis #Fibromyalgia #OccipitalNeuralgia #chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #Endometriosis #mentalhealthadvocates #chronicillnessadvocates #Spoonie #spooniesupport #spoonielife #copingskills #copingstrategies #creativecopes #creativecopespodcast #creativecoping #Podcast

Sometimes you just want your neurologist or headache specialist to ask how you’re REALLY doing, or you want them to check in on something you mentioned during your last appointment.

Are there any questions or topics you wish your doctor would proactively discuss with you? A conversation you wish they’d start because you’re too nervous or afraid to raise it?

If you feel comfortable sharing, add your questions in the comments section below or read through others.

#Migraine #Fibromyalgia #ChronicDailyHeadache #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

I have photophobia and over 10 years dealing with it, I have found incandescent bulbs are the only light I can tolerate for long periods. This year, the US president, Joe Biden has pushed forward on a ban of all incandescent light bulbs in an effort to support reductions in carbon emissions. I am terrified of this because it means I will never be comfortable in my own home anymore. I cannot tolerate the greener options available (fluorescent and LED) and being around these lights cause me significant pain and mental distress to the point where I become non-functional.

Does anyone know where I can start to get the needs of people with photophobia and other visual sensitivities heard on this issue? I was thinking about contacting an optometry group, a news station, The American Foundation for the Blind, The ADA, writing a letter to local state reps, even the president.

There isn't really a group specifically for photophobia and light sensitivity and our needs often go overlooked because eye problems that require brighter lighting are more common.

Also I don't have all the illnesses I hashtagged, I just wanted to bring other people with conditions that can cause light sensitivity into the conversation.

#Photophobia #EhlersDanlosSyndrome #Autism #Migraine #ChronicMigraineSyndrome #HemiplegicMigraine #ChronicVestibularMigraine #Dysautonomia #AutonomicDysfunction #Meningitis #BrainInjury