#rarecondition
I'm not sure, but there might be some triggers in here...
I had a craniotomy in Feb 2021 to remove a malignant glioma from my right frontal lobe. I was lucky that it was fully encapsulated & was fully removed. My oncologist ordered a PET scan & a slew of MRIs.. found absolutely nothing! So my doctor ran some genetic tests & discovered that I'm missing 2 proteins, which is Extremely rare.. it doesn't even have a name!
I'm feeling Very frustrated, isolated & overwhelmed, not to mention weepy at the drop of a hat.#rarecondition #overwhelmed #scared #depressed