Inside The Mighty

Mercy New by Melanie R.

As You wake me in the night,
to speak to me as I write,

brightness covers darkness,
Lord, we thank You for your light.

Each morning
mercy new,
the dawning break of day.

The bread was broken for us,
to restore Your Mighty Way!

Your returning day approaches,
guidance needed most-

Your light has seen us through it,
Our lampstand; Heavenly Host.

A lighted path before us;
Not lost,
You led the way.

Opened eyes;
burning bright…
we praise Your Holy Name.

Father in Heaven,
The light that guides and shows us the way. Thank you for kindling Your Light of purity and allowing Your divine burning light to be seen. Seen to light the way of our path, to shine our testimony in the midst of great heavy darkness the way The Light of Christ anointed our faith.
One spark lights an entire room. Your mercy is fresh and new each morning as The Light of The World. The Great and Mighty Lampstand of constant presence shining before this world! Your light shines above the darkest shadows and empowers us to have the strength to overcome, as you have overcome every work of darkness! Praise God! Your Holy Light pours wisdom and chases darkness out. Heaven let your light shine down on us! We thank you for bringing mercy, life, and light in each dawn of day.
In Jesus’ glorious name,
Amen.

Psalm 106:1
Praise The Lord! O give thanks for He is good! For His mercy endures forever.

1 Peter 2:10
Once you were not a people, but you are now the people of God,… which had had not obtained mercy, but now have obtained mercy.

The Way, The Truth, and Life!
Shine your light! Give Light!

#RareDisease #sjogrens #MitochondrialDisease #PrimaryImmunodeficiency #ChronicIllness #HypothyroidismUnderactiveThyroidDisease #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy #Dysautonomia #InsideTheMighty #ChronicPain #RheumatoidArthritis

A Heart Set Free by Melanie R.

A great winded rhythm underway; prickled readiness underfoot. A mission called into blended shadows- undulate in shades of smoke as hope glimmers.

Drumming a cleared path of yearning webs for justice. Where a brightened light pierced an open door. Candlelit wonders motion the clouded poufs to view a saved heart…set free.

Chosen and preserved.
A living hope guarded in faith.
Examined, mourned, pressed, scarred, shattered,…repaired;
never faltered, never failed.

Search me, Oh Lord, and know my heart.
Lead me through the everlasting way.
I’ve been tested, and tried…know I am true-know my heart. You are my indwelled heart pounding through our shared domain. Monitor my steadfast rhythm and the intricate design of each ticking; of each pulsed beat transformed by this undeniable salvation.

Echoed chambers of my heart.

Centered rhythm deepest part.

Search me, Lord, and see I’m true-

slated clean-each beat for you.

Five waves count each beat’s refrain, monitored life both joy and pain.
Set each P, Q, R, S, T…
My heart declares my love for thee.

And if one day my chambers still,
my heart set free-
fulfilled Your Will.

Psalm 139:23
Search me Oh God, and know my heart.

Matthew 6:21
For where your treasure is, there your heart will be.

Proverbs 3:5
Trust in The Lord with all your heart, and lean not unto thine own understanding.

The Lord searches the heart.
Give God your whole heart. Stay strong Mighty Warriors!

#ChronicIllness #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #Cardiomyopathy #RareDisease #ChronicPain #InsideTheMighty #PrimaryImmunodeficiency #ChronicInflammatoryDemyelinatingPolyneuropathy #RheumatoidArthritis #HypothyroidismUnderactiveThyroidDisease

Blind Faith by Melanie R.

Like a moth to a flaming light, let us draw close to the,“Everlasting Light”, (Isaiah 60:19-20)

Faith is the blind trusting in God, and His promises to endure in all of our difficult circumstances.

As followers of the light, we can find awe and wonder in the North American Io silkworm. The io moth lifecycle inspires, and has parallels to our spiritual rebirth, because they are also formed as eggs, hatched in growth, and are cocooned/preserved to emerge in rebirth by true renewal of faith!

Trusting God’s lighted guidance and spiritual senses through the darkness; to see beyond what’s physically visible kindling our own illuminated insight.

We are asked to walk by faith and not by sight (2 Corinthians 5:7), and the blind io moth relies on the moonlight to guide them on their nocturnal quest.
Although their blindness is a limitation, their attracting yellow vibrancy, and keen sense of smell can be viewed as a guiding wisdom in their luggage/arsonal to carry, and less of a baggage/burden of flight.

A weightless freedom led to a destination of endless hope and safety….a transcending peace, love, and comforting security.

As in the beginning, in the dirt of darkness,…even as pain lurks in the shadows, a flickering distant lantern light calls for transformation!

Psalm 119:105
Your word is a lamp to my feet, and a light to my path.

A spiritual metamorphosis and rebirth in Christ.

The male io silk worm spreads it wings to reveal it’s “ocelli” or eyes, which are kept hidden and surprisingly then it’s fragile fanned wings open to reveal its beauty! As it has experienced permanent restored change and will never be the same.
As we also open our hidden spirit eyes Christ is revealed to us through this uncovering which ultimately sets us free to take flight; soaring above on the wings of full trust.

Proverbs 16:20
Whoever gives thought to the word will discover good, and blessed is he who trusts in The Lord.

1 Peter 1:8-9
Though you have not seen Him, you love Him. Though you do not see Him now, you believe in Him and rejoice with joy that is inexpressible and filled with glory, obtaining the outcome of your faith, the salvation of your souls.

God be with you all on this journey of discovery and unveiling! Open your spirit eyes and be open to receive a transformative experience through the light of Christ! I pray you all take flight and fulfill your true purpose in pain/disability.
Through faith, we are partaking in the redemptive power of a profound rebirth in purpose to fulfill God‘s plan in destiny.
No longer defined by rare disease, pain, and frustration; but as an heir and testament to God’s promise of faithfulness to those that suffer.
Sackcloth to garments of righteousness under our armour for the Lord’s splendor. Clothed in grace and mercy, and the healing anointed favor of the spoken Word. This faith protects and prepares us to take flight!

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #ChronicPain #RareDisease #IrritableBowelSyndromeIBS #Dysautonomia #SjogrensSyndrome #InsideTheMighty #RheumatoidArthritis #MightyPoets #MightyPoets

Reactions, Reactions.
Pulsed like contractions.
Not just the pain,
I’ve been through it;
in my body now all of these years.

Just then it hit me.
Wild fire and crippling.
Felt the burn as I waited,
and prayed in the dark suffering.
As My savior led the way,
because reactions were made.

Can’t hold it back now; not the same.
Don’t feel right being this way.
Passed through old familiar strains.
Flooded fields, fluttered gates.
Did my body betray?,
While reactions were made?

Should’ve known it was coming,
Pointed straight to my trusting.
Would’ve loved this to heal me,
and soul-fire fill me;
but reactions-
were no over-reaction.

As it raced through my veins;
He saved me from hurt,
and the poisoning flame.
Rescued out of that day-
because reactions were made.

There He shared in the low,
Shook it off-
He’s in control.
All my asking He Knows-
My reaction through pain.

Started from a reaction,
New life put me in action-
I am healed through His Name!

Please also visit my YT channel:
Melanie’s Melody
to see these and many more stories come to life. Animated and audiobook style.
Thank you all and God bless your health journey!

#MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisease #IrritableBowelSyndromeIBS #ChronicPain #ChronicIllness #InsideTheMighty #RheumatoidArthritis #MightyPoets #RheumatoidArthritis #HypothyroidismUnderactiveThyroidDisease

Pain Girl by Melanie R.

The chronically ill that experience continuous pain in multiple areas everyday, myself included, dread the doctor office doodle I have dubbed “Pain Girl!” She’s infamously found in every pain clinic/doctor office and is said to have the ability to accurately depict the agony the chronic illness sufferer experiences with pencil smudges and a 1-10 score! Of course pain can only go to 10… said no rare chronic illness sufferer ever!
We are usually asked to circle the painful areas on a blurry drawing; labeling S for stabbing, B for burning, etc.
Such little information could be drawn for what I was experiencing with rare chronic illness. I usually had a Picasso painting to present most times! (Some say scribbles of frustration,…I say Picasso!) I don’t think I could even see Pain Girl under my swirling circles and slashes of pain. Making your doctor and yourself laugh while struggling in pain is always a plus.

So in the honor of Christ, the healing of the Body that Christ brings, and infamous pain girl, make a Picasso of your pain and healing.
Draw, paint, doodle, or get crafty making a picture of your pain girl/boy. Color the areas where you experience pain, swelling, stiffness, etc., then draw a cross, put a sticker, a heart, (whatever you want) as your symbol that:

-God is aware
-Hears your cries for relief
-you will be fully restored and healed.
-It won’t be long, etc.
Think of your own too.
Make it fun.
Please share/Post

Today could be the last day of suffering. Today could be the day of His return. Living in the body of Christ it proves that even though we are sick in body, we can heal, and be healed already. Suffer well! Healing will come!

Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth.

3 John 1:2

I will restore health unto thee, and I will heal thee of thy wounds, saith the Lord.

Jeremiah 30:17

#MitochondrialDisease #ChronicIllness #BackPain #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #Jesus #suffering #InsideTheMighty #IrritableBowelSyndromeIBS #RareDisease #Hyperthyroidism #RheumatoidArthritis

I plead as I receive.
The blood was shed for me.
I placed it on the cross,
now blessings for the loss.

My spirit, soul, and body-
all healed…
Infused His name.
He carried it all on willfully
my suffering-
for my gain.

An act of faith found worthy.
My savior,…blood was shed.
I take into my body,
the wine filled medicine.

She reached out with one touch.
A faith found strong and true.
For answers in the darkest night,
endurance shining through.

An answered prayer for healing,
soft on the wings of doves.
A witness to her suffering-
sent lifelines from above!

Malachi 4:2
But to you who fear my name, The Sun of Righteousness will rise with healing in its wings…And you will go free leaping with joy…

God is faithful! Rise & stay strong Mighty health warriors! Healing will come!
You’re already free!
IVIG immunotherapy was approved and I received my first dose today!
Praise God for this healing and answered prayer! Thank you Jesus!

#MitochondrialDisease #RareDisease #ChronicIllness #ChronicPain #InsideTheMighty #RheumatoidArthritis #SjogrensSyndrome #HypothyroidismUnderactiveThyroidDisease #IrritableBowelSyndromeIBS #POTS #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisease #ChronicIllness

Echoed chambers of my heart;
Centered rhythm deepest part.
Search me Lord, and see I’m true-
Slated clean,
each beat for you.

Five ways count each beats refrain, monitored life both joy and pain.
Set each P,Q,R,S,T…
my heart declares my love for thee.

And if one day my chambers still,
my heart set free-
fulfilled Your Will!

Psalm 26:2
Test me Lord, and try me,
examine my heart and mind.

1 Chronicles 28:9
Acknowledge The Lord of your father, and serve him with wholehearted devotion, and a willing mind. For the Lord searches every heart, and understands every desire, and every thought.

#MitochondrialDisease #MightyMoment #ChronicIllness #ChronicPain #InsideTheMighty #ComplexRegionalPainSyndrome #AxonalNeuronalNeuropathies #PosturalOrthostaticTachycardiaSyndrome #RareDisease

Stripes & Stars of Rare Disease
By Melanie R.

Our faith as our anchor.
Our hope’s guiding light!

Amidst all the struggle,
we share in our plight.

Bringing awareness;
to comfort and guide.

To face rare disease
locked arms-
side-by-side.

A journey set forth,
uneven terrain.

Traveling on suffering,
forged purpose in pain.

A chorus of voices
uniting in song-
ring out together,
but battles go on…

Our trials and triumphs,
resilience and strength,
brought us all here
on rare disease day!

So join us in chorus,
wear stripes to support-
our healing begins,
it starts in our heart.

For stripes shine like stars,
by stripes we are healed,
Restoral by scars
Our voices they hear.

Remember Rare Disease Day is February 29th, 2024!
We share in the suffering and the glory!
Stay strong and God bless you all in a mighty, mighty way!

#ChronicIllness #ChronicPain #IrritableBowelSyndromeIBS #ComplexRegionalPainSyndrome #AxonalNeuronalNeuropathies #InsideTheMighty #MightyPoets #MightyTogether #christiansonmighty

I can get caught in that awful loop of beating myself up, only seeing my flaws, only recognizing things I haven’t done instead of giving myself credit for things I have done, getting stuck in self judgment, only seeming to hear my inner critic’s voice, I can lose all my self confidence, let my self esteem dip and things can look pretty bleak.

Over time more and more I have been able to catch this in the moment, pause, breathe, re-set, and then be gentle with myself and allow myself to shift my energy. I can then take first steps towards better self care…and reverse that repetitive loop, replace it with self respect and start to believe in myself! One situation at a time, I’m getting better … and every time I succeed it can get a little easier the next time. I can see that I have grown along my path and although it can be very hard for me to accept, there is unique beauty to the journey I have been on. I am not broken - I am strong - I have been accepting my flaws and see that as I have picked myself up over and over I have filled myself with gold!

~~~~~~~~~~~~~~~~~~~~~~~~~~

I find doing a gratitude list can help. A while back it was recommended I process a gratitude list every morning. I like to think of my blessings: roof over my head and food on the table; a car that runs and being able to afford insurance & gas for it; MY HEALTH…here I go through all my 5 senses thankful they all work, touch and feel my legs that didn’t at one point and give thanks that parts of me are healing but by bit ! I give thanks for my whole support network: great doctors & health providers, my friends, and my family!!! I find after doing this I start off the day feeling much better about myself!

What is on your gratitude list?

#MentalHealth #Depression #Anxiety #SocialAnxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #BipolarDepression #COVID19 #Parkinsonism #Concussion #BrainInjury #Migraine #Headache #BackPain #neckpain #PhysicalTherapy #HIVAIDS #PTSD #Stigma #PeripheralNeuropathy #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe