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Bone Scan Day #ChronicPain #Backinjury #BackPain #RheumatoidArthritis #MastCellActivationDisorder

Felt a little defeated today, had to get another PET scan with Radioactive dye. Since my 6th surgery in April, I’ve had swelling in my back and increased bone & breakthrough pain. We are checking for stress fractures from my last surgery.
I didn’t know that 6.5 years after my injury & accident, I would still be searching just an ounce of pain relief😔I’m on a waiting list for a new type of stem cell procedure in my disc.
It just feels hard…
I want to be happy, outgoing, dating, working, getting married, having a social life, experience life’s joys, become a mom, I’m already a fur mom♥️I just don’t have the energy, the pain barely allows me to get through simple tasks each day. How do you make energy allowance for social activities when your symptoms are at an all time high?

For now, I’m going to keep doing whatever I can to find that magic thing that helps reduce my pain. Because I still feel a glimmer of hope that it’s out there 🪄✨

#BackPain #Backinjury #ChronicPain #RheumatoidArthritis #MastCellActivationDisorder #AnkylosingSpondylitis #Intractablepain #Anxiety #SpinalFusion #sacroilitis

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Sacroiliitis #sacroilitis #Lupus #Fibro

Does anyone else have lupus induced or otherwise suffer from Sacroiliitis? Mine is so bad I can barely walk. They do injections every 4 months which helps some but it doesn't last. Prednisone helps but they don't want me on it long term, methotrexate doesnt touch it. Has anyone else been given successful treatments besides what I mentioned? I have lupus, Fibro, Sacroiliitis, buldging discs, spinal stenosis, Gastroparisis and more. Any suggestions welcomed.


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Big appt day today🙏🏼🤞🏼 #ChronicPain #BackPain

I’ve been waiting for over 3 months to see this new (hopefully) amazing orthopedic surgeon and finally this morning is my appointment! I know all of you know how draining these big doctor appointments can be... it’s physically exhausting, emotionally, mentally. You put so much optimism and hope into these appointments thinking this will be the person who will finally help you! I’m in so so much pain everyday and have had so many setbacks and failed surgeries. I’m trying to go into today as calm as I can be! Not too this not too that, I’m praying this dr has a fresh perspective. If he doesn’t know how to help me, on to the next! Thanks for your support EVERYONE! Sending lots of positivity to my favorite people❤️ 🙏🏼🙌🏼🤞🏼
#BackPain #ChronicPain #SpinalStenosis #sacroilitis #sciatica #Anxiety


Diagnosis for Disability #sacroilitis #Disability #chronicpainpatient #cpp

I haven't met anyone here who has sacroilitis or si joint dysfunction. This disease has stole my life from me. I am having to fight tooth and nail to get disability. Has this been the case for anyone else that had the same diagnoses?