spinal fusion

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So much stuff!!!

I have been having a really hard time and it’s been a reallly long year for my family.
About me I have Fibro, RA, IC/BPS, sciatica AS, DDD, SpinalFusion spinalstenosis etc..

I have my oldest brother who had a stroke this year. We have always spoken and never had and any issues ( unlike my other siblings that’s another post).

When I was younger my brother more than once sexually assaulted me.
I don’t know if it actually considered that
I was sexually assaulted by my father when I was a child and raped at 15 by an older man.

My brother who is 20 years older than me tried to kiss me on more than one occasion this was when I was in elementary school. He I found out a few years ago was also along with my brothers and my sister were sexually assaulted by my father as well.

So the situation is idkw but after he had his stroke I just couldn’t speak to him.
I did only speak to him because of my mother. I did tell my mother when I was younger and I can only say she made excuses for him and begged me not to not talk to him.

I love my mother very much and we have a very good relationship except for this issue. So I haven’t spoken to him since his stroke and I feel extremely guilty for it.
He has been trying to get in contact with me but I have thwarted contact.

My husband knows and of course he says I should not feel guilty and doesn’t understand why I had been talking to him all these years.
I don’t know if I should say something to my mom who is 85. I don’t think it would do anything but upset her or cause and arguement. Or bother saying anything to my brother. Which idkw I feel bad saying anything which doesn’t make sense.
I know I should have gone to therapy years ago but does anyone have any suggestions how I should proceed in the interim ?

#SexualAbuseSurvivors #SexualAssault #SexualAbuse #SexualAssaultSurvivors #ChildhoodSexualAbuse #SexualTrauma #SexualAssaultAwarenessMonth #RheumatoidArthritis #Fibromyalgia #Fibro #InterstitialCystitis #sciatica #DDD #AnkylosingSpondylitis #painfulbladdersyndrome #LymeDisease #ChronicIlless #ChronicLymeDisease #LymeWarrior #Spoonie #PituitaryTumors #PituitaryTumor #SpinalFusion #gastric sleeve surgery #Anxiety #CPTSD #PTSD #PTSD

8 people are talking about this
Community Voices

I Need Some Positive Words ... Feeling a little down ...

What is something positive that you could share with a chick that needs to feel a little more upbeat? I want to get out of this funk so much. Anything POSITIVE or encouraging or motivating is welcome. Or if you need to vent, that's okay, too!

#Anxiety #Depression #BipolarDisorder #Bipolar1Disorder #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Narcolepsy #prolactinoma #sibo #smallintestine bacteriaovergrowthsibo #RaynaudsPhenomenon #LeukocytoclasticVasculitis
#SpinalStenosis #Lumbarfusion #SpinalFusion

30 people are talking about this
Community Voices
Community Voices

Anyone with #PosturalOrthostaticTachycardiaSyndrome ran a fever 🤒 when water in a shower has been run over your head?

Do any of you #Potsie s run a fever when you take a shower? Spike in heartrate? Drop in blood pressure? You think that you may pass out? But, if you take a bath it isn't as bad, but you find your hygiene suffering? I find that even taking a bath, I have to cover my head with water. What do you do to get through this? I'm on medication, but I can't go on a higher dose cuz of side effects. You know how people feel so "refreshed" and "revitalized" after a shower; that's not me. I feel such a itchy and sticky feeling - like I had just gotten back from the gym (and I don't use hot water - so it's not dry skin) - does anyone else have this? or my heartrate goes even higher afterwards and during. It's not when I get my body wet, just my head. Or I will run a temperature about 100°F for no other reason. And no hot water. Does this happen to you, too? I absolutely hate the way that a shower makes me feel in regards to physical symptoms. I hate that I can't take a shower before a doctor's appointment, because then I'd run a fever when I got there and they'd make me get a covid test (which would normally make sense - so I just don't take a chance).

So, who else with #PosturalOrthostaticTachycardiaSyndrome or any other #ChronicIllness has a terrible reaction to water being ran over top your head? Horrible, huh?!

#Anxiety #Depression #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion #Potsie #BipolarDisorder #Bipolar1Disorder

6 people are talking about this
Community Voices

Is anyone else scared to sleep with the lights out?

<p>Is anyone else scared to sleep with the lights out?</p>
49 people are talking about this
Community Voices

What's your FAVORITE comfort beverage? Mine is Chicory Coffee ☕️!!!!!

<p>What's your FAVORITE comfort beverage? Mine is Chicory Coffee ☕️!!!!!</p>
34 people are talking about this
Community Voices

Thoracic Spine Surgery

A little over a week ago, I had emergency surgery on my thoracic spine. I had a fusion and lamenectomy on T5-T9 and one disc removed. Prior to surgery, I lost the ability to walk and I had urinary/bowel issues.

Surgery on the thoracic spine is more rare than other areas and more complicated and risky. There wasn’t much choice in my case. I had posterior surgery.

It’s probably the toughest surgery I’ve ever had. My blood pressure dropped during surgery and my recovery has been good, but slow. I’m walking again with the aid of a walker and I still deal with neurogenic bowel and bladder issues, but there is hope that those will go away as nerves heal.

I’m hoping others who have had or are facing this surgery will find this post. I’m glad I had my surgery, but I never would have had it if I hadn’t gotten to the point of hearing paralysis. #SpinalCordInjury #SpinalFusion #SpinalSurgery #SpinalStenosis #spinal

1 person is talking about this
Community Voices

Someone Share Something HAPPY with me cuz I am feeling a little Down

<p>Someone Share Something HAPPY with me cuz I am feeling a little Down</p>
51 people are talking about this
Community Voices

1 Month of PT to Avoid Surgery

My neurosurgeon is hoping to avoid having to operate on my bulging disc in my thoracic spine. He’s giving me until March to try physical therapy, but if I don’t improve or get worse, he recommends we schedule surgery then. Operating on the thoracic spine is much more complicated than other parts of the spine and higher risk.

I’m scared, but at least there’s something I can do. #SpinalFusion #myleopathy #Arthritis #ChronicSpinePain

1 person is talking about this
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