Spinal Stenosis

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East Meets West: How Alternative Therapies Complement & Help my Sjogren's Journey

As a Reiki Master practitioner and a student of yoga for 25 years, I have personally benefited from complementary modalities over the years -- long before my Sjogren's diagnosis (a serious, complex systemic autoimmune disease).

Before I launch into how I have personally experienced positive benefits from complementary therapies, remember that you have full autonomy over your body. What works for me may not appeal to you, and/or work for your body's specific needs and your symptoms.

Listen and pay attention to the signs and messages your body sends you. Do not push your body to the point of extreme pain, or allow any practitioner to tell you what you should do with your body. You know your body the best!

As a Sjogren's patient, I deal with a myriad of complex systemic issues and also have severe spinal stenosis so I deal with physical limitations. In the past, I hiked long distances but I can still enjoy outdoor walks in nature albeit my walking mileage is reduced. I am also a former dance fitness instructor so dancing and movement have always brought me great joy in my life.

While I also take prescription medication for Sjogren's and see multiple Western healthcare specialists, I also listen to what my body needs outside the parameters of Western-based medicine. I see a Traditional Chinese Medicine acupuncturist and I have found pain relief and ease of my symptoms through regular acupuncture sessions.

If acupuncture sounds too invasive or you dislike the thought of needles (although acupuncture needles are small and painless), there are other modalities such as gentle massage, Reiki (which can either be done hands-on or hands off), Bowen therapy, craniosacral therapy, EFT/tapping, myofascial release, aromatherapy, sound healing, and yoga nidra.

Reiki is a non-invasive healing modality. Studies show that reiki can help reduce stress and anxiety, and ease pain and help relieve symptoms related to chronic illness. Like acupuncture and massage, it is recommended to have Reiki sessions done on a regular basis.

While I personally tout the benefits of yin yoga to stretch my connective tissue and lubricate joints, I understand that yoga is not an option for some patients based on their limited mobility.

While other yoga styles focus on the muscles (Yan style of practice), yin yoga is a passive practice that holds yoga poses/stretches between 3 to 5 minutes. Chair yoga is another option if you are unable to sit or lie down on the floor.

Last year I added qigong to my daily self-care routine. Qigong is a gentle movement practice rooted in Traditional Chinese Medicine. It coordinates breathwork and meditation as you move through a series of slow-paced body postures and flowing movements. Qigong is very relaxing and as someone who deals with bouts of anxiety, it helps ground me and release tension and stress.

If interested in exploring alternative therapy modalities, along with Western medical care, I encourage you to be curious and ask yourself what sounds or feels good to your body.

Discuss with your doctors before starting a new movement practice such as yoga or quigong. Vet practitioners and research them online. Make sure they are certified and licensed practitioners. Read their client testimonials and reviews. Ideally, they should have experience working with clients who have a chronic illness.

There is no "one-size-fits-all" when it comes to exploring non-Western complementary therapies. If one doesn't work out for you, try out a different modality or practitioners. Look into community-based acupuncture centers which usually offer lower rates or research your insurance plan to find out if acupuncture is covered (some plans sometimes cover massage therapy).

Self-care is not selfish and dealing with a chronic illness can drain us not only physically but emotionally and mentally. I have personally benefited from looking outside Western medicine to help ease my physical pain and bring me comfort and peace throughout my chronic illness journey. I encourage you to find what works for you and remember you are not alone in your journey.

#sjogrens #autoimmune #Reiki #Acupuncture #massagetherapy #traditionalchinesemedicine

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Misdiagnosis or possibility?

It felt as if my life had literally been turned upside down when I was diagnosed with spinal stenosis two years ago. Not such a big deal you may think but I was told to stop running which was truly my sanity.

My BPD and MDD need as much help as they can get and running was it for me. My BPD had become a lot worse over the years and running had restored some stability and enjoyment in my life.

A radiologist and neurosurgeon confirmed the diagnosis as did a spinal surgeon a year later. I was told that it would get worse, that surgery may be an option in the future, told to do lots of stretching, take a pile of pills every day and get on with my life. As advised, I stopped running and felt as if my world had collapsed. BPD on overdrive.

Fast forward to a month ago. The neurosurgeon requested a follow up MRI and told me last week that there is now no sign of spinal stenosis! What??? As I understand it, it isn't curable so what is going on?

I did the fish mouth thing when he casually mentioned this and eventually asked him what had happened to the spinal stenosis diagnosis. He dismissively mumbled something about 'looking at that' and changed the subject. I could not concentrate on anything he said after that. Duly dismissed. By the end of the consultation he had still not offered a possible explanation and considering his dismissive attitude, I was reluctant to ask again.

For the past two years the possibility of this progressing and impacting my mobility have made me extremely anxious. I have a son who has many mental health challenges and requires a certain degree of care. I have worried myself sick about the possibility of not being able to do this in the future. Now it is not even or was even a thing??

Has anyone had a similar experience with a spinal stenosis diagnosis or know whether it can heal? #stenosis #stenosisspine #confused #Misdiagnosis

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New Hashtags to Add to My Collection and a Question

I had MRI’s this week and found out I have yet more issues to add to my ever growing collection. Some I already knew I had, so this was just confirmation. Others are new. Are you ready? Here we go! 😂 These are all related to my cervical and lumbar spine. #Scoliosis , #Arthritis , #SpinalCanalNarrowing , #BoneInflamation , #SpinalStenosis , #bulgingdiscs , #PinchedNerve , one disc almost completely gone. Lots of fun stuff lol.

I’m being referred to a Neurosurgeon, most likely for #SpinalSurgery . I’ve had that before for an emergency spinal fusion, so I expect to be out of commission for awhile. Not sure how I’m going to make that happen. Being out of work for weeks or months, and no one to help me while I’m down. It’s a bit concerning, but I’ll cross that bridge when I get to it! (Trying to stay positive!)

Question for my Mighties! Have any of you ever heard of bone inflammation/infection? They said it’s not cancer, but what the heck is it? Medical term is #BoneMarrowEdema . Anyone know how that’s treated or what I can expect? Thanks in advance for any Mighty wisdom you may be able to offer!

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ALL MY LIFE MEDICAL TEST SUBJECT

Burnt-out from the ignorance that comes from the mouths of so called trained medical professionals whom attended society's schools to acquire a stamp of approval that they specialize in whatever 🙄 and obtained A DEGREE.

#Allergies #SpinalMuscularAtrophy #Anxiety #GastroesophagealRefluxDisease #SpinalStenosis #ChronicFatigueSyndrome #BrainInjury #MentalHealth #CardiovascularDisease #RheumatoidArthritis #Osteoporosis #Peripheral #InflammatoryBowelDiseaseIBD #InflammatoryArthritis #CrohnsDisease

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I'm new here!

Hi, my name is SerenitySea. I'm here because I suffer from Chronic pain from severe cervical) which I just had surgery for) and lumbar spine stenosis, depression fibromyalgia, arthritis, osteoarthritis, bipolar disorder and PTSD. I feel alone as I have since my mother died at the age of 65. Among other serious illnesses that caused her early death 14 years ago she also suffered from fibromyalgia and
Spinal stenosis, depression, and arthritis. She was the only person who knew what I go thru. I live with my dad and I love and appreciate him but as my mother once told me "your dad doesn't think it's as bad as it is. He is the same way with me. He's not mean but I can tell he doesn't realize it still to this day. Living with me is probably not so easy. But I try. My dad is 79 but healthy. The guilt I feel when I can't cook or do dishes and other chores like I used to. Especially after an accident I was in almost exactly a year ok ..eats at me. So what I'm looking for is people who know how I feel and what I go thru because they do too. For people like me feel alone because those close to them don't really get it. Someone who we can support each other. After all these years I honestly don't think he nor my adult kids have really researched about fibro and chronic pain. When someone says ",man this weather really has made my shoulder or hip flare up". After they as me what's wrong..what's wrong? Really? I feel empathy for them because I'm sure their pain is real that day. But don't try to compare your pain that you have in one area of your body for a day or two to the pain I feel due to fibro along with my other problems which adds much more pain all over my body. Don't try to downplay what I feel because you have no idea what I live with on a daily bases. Just because maybe 2 or 3 days a week I can function better than other days don't think that my pain isn't still there because it is. I'm so sorry this is such a long introduction maybe it should be a letter to my dad instead but I don't have the guts to do it. #MightyTogether #BipolarDisorder #Fibromyalgia #PTSD #Anxiety #Depression

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I'm new here!

Hi, my name is Kitty2023. I've been diagnosed with both Ehlers Danlos Syndrome and Chronic Fatigue at the start of last week ( 8/1) after a recent and very new family history was discovered.Wanting to know more about managing both conditions in relation to spinal issues .Need some help please and want to talk to to other patients if possible

#MightyTogether #SpinalStenosis #EhlersDanlosSyndrome

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Hello 2024

It is hard to believe that another year is here. I have suffered with CFS/ME since 1984. I coped with Chronic Pain with no medication until 2016. My doctor referred me to Pain Management at that time. I also have a severe case of spinal stenosis. Anywho... I am starting this again! I have been stopping for the roses for a couple of years since I retired. I was an elementary school teacher in a wonderful school district. Now I spend my free time working with planners and journals. I am a voracious reader. In 2023 I read 275 books. So I wish all of you a great day! It is FRIDAY!!#52SmallThings #ChronicIllness

#CFS #PainManagement #SpinalStenosis #educator #biblejournaling

#Planning

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New here princesscyrilla

Fibro ehlor danlos spinal stenosis torn miniscus is hypothyroid ptsd anxiety. All untreated for 7 yrs while I endured the trials of 2 substandard nursing homes. FREE NOW

4 reactions