spinal instability

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Do you experience this?

I have MCAS, EDS, POTS, spinal instabilities, and migraines. It’s not uncommon for me to have trouble walking when I sit up too long or push myself too hard. Usually this feels like fatigue making me clumsy and lightheaded or like my legs being heavy.
Recently, I’ve been noticing new issues with walking. It’s not all the time: once it occurred on Saturday with a migraine (and got worse as I entered more brightly lighted rooms) and once today after eating. My gait has become choppy and I feel off-balance and like my knees are buckling while I walk. If I’ve experienced this before the two incidents recently, I don’t remember it. It’s very disconcerting, although it seems to ease up after several hours at the most.
Have any of you had a similar experience?
(Picture for attention 🙃)
#PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #EhlersDanlosSyndrome #Craniocervicalinstability #SpinalInstability #ChronicMigraines #MastCellActivationDisorder

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hEDS and Spinal Cord Stimulators #HypermobileTypeEDS #ChronicSpinePain

How many have had a trial for the SCS How many have had the unit placed How many have had the unit removed What were your experiences with this procedure ? #ChronicPain #SpinalInstability #Arachnoiditis

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