toohot

Herbert trying to beat the heat! #toohot

As someone who loses consciousness a lot, some things that seem simple are actually quite difficult for me to do. Tidying my room is a pretty big one, especially in this horrible humid heat. I often have to actually pay her to do this, though. But if she does a good job of it, I don’t mind all that much.

I only have two friends in real life (I have many online though). One of them kind of uses me. And the other is a lady that I met through my mum. They worked together. Her name is Debbie. She’s in her 50s but I’ve always gotten on better with people that are older than me. They tend to not have so much drama! Anyway, Debbie is taking me out for a meal at a pub tomorrow. Her treat, she said!

Debbie knows that I rarely leave the house for anything other than hospital appointments, doctors visits or to collect my medication. She’s a wonderful lady. And I’d be lost without her. I plan on buying her some flowers and a bottle of wine for her kindness.

So anyway... I picked out a nice new outfit. With nice new shoes. My (hair) roots were showing pretty badly but it’s been 33°C/90°F all day. And I suffer an awful lot in the heat. I can barely do anything. Even getting up to go to the bathroom is a risk!

My sister (who is 20) and I don’t really get on all that well. She has made several horrible life choices and she’s very childish. But this afternoon she helped me dye and wash my hair ready for tomorrow. And I’m so so grateful... If only we got on like this more often.

#chronicillnesswarrior #POTS #EDS #NAFLD #BPD #InterstitialCystitis #Diabetes #Heat #toohot #Hair #HairDye #helpful