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Joint Pain

Hey, everyone. I hope you’re all doing a lot better than I am.

For the last four days it’s been about 30°C and I’ve had enough.. Tomorrow it’s meant to hit 32°C.

I’m doing everything I can to stay cool and hydrated - I’m drinking between 2 to 3 litres of water/squash. I have a fan on me 24/7. Somehow, I’m managing alright overall - I haven’t fainted or blacked out. And at night time I’ve pretty much been falling asleep very very quickly when I get into bed.

HOWEVER… My joints are killing me. They’re a little swollen, very achy and sometimes even feel like they’re creaking, if that makes sense? It’s mainly my wrists, fingers, knuckles, elbows, knees and ankles. If I squeeze my fingers together or squeeze my wrists it makes the pain better. Which is weird but that’s what happens. But I can’t exactly sit here and squeeze every joint. I don’t have enough hands, haha!

Does anyone have any advice for it? It’s far too hot to wear my compression stockings - I’ve been keeping my feet elevated a little bit instead. Is there anything else I can do?

Thank you all in advance

#chronicillnesswarrior #ChronicPain #POTS #EDS #NAFLD #BPD #LiverDisease #Diabetes #InterstitialCystitis #Migraines #Jointpain #SoreJoints #PainfulJoints #Heatwave #toohot

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My sister helped me wash my hair today...

As someone who loses consciousness a lot, some things that seem simple are actually quite difficult for me to do. Tidying my room is a pretty big one, especially in this horrible humid heat. I often have to actually pay her to do this, though. But if she does a good job of it, I don’t mind all that much.

I only have two friends in real life (I have many online though). One of them kind of uses me. And the other is a lady that I met through my mum. They worked together. Her name is Debbie. She’s in her 50s but I’ve always gotten on better with people that are older than me. They tend to not have so much drama! Anyway, Debbie is taking me out for a meal at a pub tomorrow. Her treat, she said!

Debbie knows that I rarely leave the house for anything other than hospital appointments, doctors visits or to collect my medication. She’s a wonderful lady. And I’d be lost without her. I plan on buying her some flowers and a bottle of wine for her kindness.

So anyway... I picked out a nice new outfit. With nice new shoes. My (hair) roots were showing pretty badly but it’s been 33°C/90°F all day. And I suffer an awful lot in the heat. I can barely do anything. Even getting up to go to the bathroom is a risk!

My sister (who is 20) and I don’t really get on all that well. She has made several horrible life choices and she’s very childish. But this afternoon she helped me dye and wash my hair ready for tomorrow. And I’m so so grateful... If only we got on like this more often.

#chronicillnesswarrior #POTS #EDS #NAFLD #BPD #InterstitialCystitis #Diabetes #Heat #toohot #Hair #HairDye #helpful