Lately I’ve been experiencing hot, sometimes flushed skin. No high blood pressure or fever. Cool environment, no medications or supplements. But my skin will have bouts of feeling very hot to the touch. Especially the palms of both hands. My doctor can’t figure it out. Is this a fibromyalgia thing?
Hey friends, it’s been awhile but I need your help. It is now summer where I live and I am severely struggling. I go outside in the heat for 5 minutes and I feel awful the rest of the day. I feel really dizzy and nauseous and my ears start ringing. My feet also have a fun habit of turning purple. I’ve been drinking a ton of water and I wear compression socks occasionally but it barely makes a dent in helping my symptoms. Sometimes I think the compression socks make the heat worse. Any tips on handling the summer? Any and all advice is welcome!
#PosturalOrthostaticTachycardiaSyndrome #Heat #ChronicIllness #Spoonie #SpoonieProblems #help #Advice #heatintolerance #bloodpooling #circulation #Summer #compressionsocks
#chronic #heatintolerance #Summer
Tuchka is sunbathing🙂
It was 28°C today outside and it is always several degrees hotter in our balcony as the sun warms it up.
Next week it's going to be 33°C here in Moscow,which means even hotter in this stone jungle....
For me it's hot when it's more than 20°C🙉 so I'm thinking to go somewhere north🏔❄😁
What about you?Are you OK with hot weather? And how do you cope with heat?
#MightyPets #DistractMe #Depression #Fatigue #Anxiety #MultipleSclerosis #ChronicIllness #Heat
As the title says - I’m so glad the heatwave has ended here. We had about a week of temperatures between 29°C and 35°C. Faaaaaaaaar too hot for me! Anything above 25°C and I sufffer.
When I was very little (about 5 or 6) I was at school and we had a swimming lesson. The pool had absolutely no shade and it was over 30°! The staff didn’t even provide sun cream, either. Needless to say, as a practically white haired kid, I got burned pretty badly and very had heat stroke. They had to call my mum who was (rather naturally) furious. She took me to my GP and he said that I had heatstroke and was quite badly dehydrated and that I needed to be submerged in cool water, kept in a dark room and I needed to drink as much water as my belly would allow.
I haven’t really gotten any better at handling the heat. I mean; now I -know- that I should put sun cream on, stay in the shade and drink plenty. But it exhausts my body so much. And it makes my Postural Orthostatic Tachycardia Syndrome (POTS) MUCH worse. Sometimes I can end up losing consciousness EVERY time I stand up! Which is exhausting in itself but even more so in the hot weather.
Nowadays I tend to hide away in my room with the fan directed right at me. I turn into a blob that rarely moves. Which is fine by me, really. But getting to the bathroom is a challenge! 😝
For those of you in the UK, I hope you’re all feeling better too! 😊
As someone who loses consciousness a lot, some things that seem simple are actually quite difficult for me to do. Tidying my room is a pretty big one, especially in this horrible humid heat. I often have to actually pay her to do this, though. But if she does a good job of it, I don’t mind all that much.
I only have two friends in real life (I have many online though). One of them kind of uses me. And the other is a lady that I met through my mum. They worked together. Her name is Debbie. She’s in her 50s but I’ve always gotten on better with people that are older than me. They tend to not have so much drama! Anyway, Debbie is taking me out for a meal at a pub tomorrow. Her treat, she said!
Debbie knows that I rarely leave the house for anything other than hospital appointments, doctors visits or to collect my medication. She’s a wonderful lady. And I’d be lost without her. I plan on buying her some flowers and a bottle of wine for her kindness.
So anyway... I picked out a nice new outfit. With nice new shoes. My (hair) roots were showing pretty badly but it’s been 33°C/90°F all day. And I suffer an awful lot in the heat. I can barely do anything. Even getting up to go to the bathroom is a risk!
My sister (who is 20) and I don’t really get on all that well. She has made several horrible life choices and she’s very childish. But this afternoon she helped me dye and wash my hair ready for tomorrow. And I’m so so grateful... If only we got on like this more often.
So I’ve been really stressed for over a week because I’m a supply teacher and with all the schools shut (sort of) in the UK, I didn’t know what I was going to do for money... fortunately I qualify for the 80% pay scheme but I only found out Friday night... so I stopped being so stressed and tense. Great for my mental health but apparently awful for my physical health! I’m in so much pain! So awake at 5am in no sleep, taken tramadol which was USELESS, watching criminal minds and practically bathing in heat cream. FUN. My partner is being so lovely though, making me hot water bottles and rubbing my back in heat cream and not moaning when my tossing/turning/tv wakes him up. Even though he’s knackered from work (NHS specialist biomedical scientist). Love him so much, even after 7 years ❤️ #EhlersDanlosSyndrome #NHS #Pain #Sleep #heatcream #Heat #Crying #Partner #Love #Stress #Lockdown
I don't know what to do. I feel stuck. I live in Florida. I have a wonderful husband, who is also my financial provider.
He is in a business that keeps him here, but I feel like my spirit is dying.
I hate heat, humidity, overpopulation, and concrete. I feel like I need to get out of this state.
I can't convince him that I am serious about finding a second home. He takes offense, and comes back with "why are you here if you hate it so much?"
I have tried many different approaches, always getting the same response.
Help! #stuck #Heat #help #miserable