Interstitial Cystitis

So, for once I decided I’m going to make a positive post! Here goes nothing…

In recent weeks I’ve had the money to buy all new furniture in my room, since all my old stuff was over 20 years old and was dying a very slow death. So I bought a chest of drawers, a bedside table and a desk.

It’s taken a while and a lot of mum’s help to put them all together and move the stuff around in my room. Take the old stuff out, put the new stuff in and then go through all of my clothes and whatnot.

I ordered a new LED lamp that I can either make brighter or more dim, and it has different types of light as well, which I thought was pretty nifty.

Anyway, now I have my desk, I’ve spent this evening going through my notes for my writing project(s) and what I hope will one day be my debut novel, with my laptop playing Grey’s Anatomy for background noise, and I’ve had a lovely cup of tea.

I feel so utterly and completely relaxed. I feel so at ease! It’s almost like magic. My room is spotless, and somehow so is my mind. My stress level has dramatically dropped! This is absolutely brilliant! I have my own little safe haven now.

I hope you’re all having a great week so far!

#chronicillnesswarrior #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #BorderlinePersonalityDisorder #NAFLD #LiverDisease #InterstitialCystitis #Diabetes #Migraine #author #AspiringAuthor #Relaxed #peaceful #Depression #Anxiety #Stress

Hey, everyone! I hope you’re all okay. I just have a question for you all.

Does anyone get a mild fever after having a tattoo done? I had a fairly big one on the top of my arm on 13th May and everything was fine - it’s healing perfectly. But I did have chills for a day or so.

Last Tuesday (30th May) I had another one, but much smaller, on the back of my wrist. Visually, it’s healing very well, too. It’s not itchy - it looks fine.

But today I’m really freezing cold. I’m in PJs, my fluffy dressing gown and my fluffy blanket. I’m only JUST beginning to warm up.

I’m just wondering if anyone else has this problem? I’m certain there’s no infection. But I’ve been told my immune response tends to be a bit overkill. My white blood cell count goes absolutely nuts. Do you think that might be what’s happening?

Thanks in advance!

#chronicillnesswarrior #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #BPD #NAFLD #InterstitialCystitis #Diabetes #Advice

Well today I play the computer with little ones ,played some games,made cakes, watched a movie then I managed to move all my living room about which I've been wanting to do for ages.im suffering now for it pain wise as I still have this infection (11weeks now) and it did take alot our of me but I feel so much better getting all that done ,and spending time having fun with the little ones especially as I really struggle most days to do anything.
So the pain now was definitely worth it seeing their little faces instead of them popping and out to see me while im stuck in bed !

So here's hoping this week is a better week ♥️😊
Hope everyone had a lovely weekend and is OK 😊

#MentalHealth #Anxiety #Depression #Selfcare #PTSD #Positivity #Bekind #loveyourself #ChronicPain #AloneTogether #Endometriosis #Insomnia #SkinCancer #GeneralParenting #Parenting #Upallnight #Catheter #InterstitialCystitis

So, I have BPD. I was diagnosed back in 2016 but I’d been self harming on and off since around 2011, when I was 16/17. I don’t really want to go into the specific reasons why because I don’t think I can handle the flashbacks and cPTSD episodes right now. There was a LOT of abuse going on from my parents and from my boyfriend.

Anyway. November 4th 2021 came around and my sister gave birth to the most beautiful little boy I’ve ever seen. I never knew it was possible to love someone as much as I love him. Because of the cuts on my legs from years ago, I have dozens upon dozens on scars on my thighs. And from the moment I first held and fell in love with him, I held his tiny hand and I promised I’d never harm myself again. Because I never wanted him to see the scars and ask questions. I didn’t want to ever put that on him.

So, for the last 18months, when things become too much and I feel that need to SH, I’ve booked myself in for piercings (I’ve done that three times since he was born). But recently I’ve felt so helpless. I’ve had a severe lack of control and it was pushing to the edge. I really thought I was going to give in, but I managed to hold on. And two days ago, on Saturday, I had this tattoo done. I feel so much better. It’s so crazy how much these things help. I feel in control and I feel proud. I won’t let him down.

#chronicillnesswarrior #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #NAFLD #Diabetes #InterstitialCystitis #Migraines #BorderlinePersonalityDisorder #BPD #Depression #triggerwarning

Kind of an inflammatory headline in my opinion 😅

As it could be read as: 'stop taking #antidepressants immediately as they don't help chronic pain AT ALL'.

When rather the review is suggesting:

A) Antidepressants have been prescribed for chronic pain for years and STILL there seems to be no clear or concrete understanding into how they help the pain of chronic pain sufferers.

B) Confusion into whether antidepressants do help the pain aspect of chronic pain.

C) As many suffers have [very unstandably] mental health issues they could be helping that. Making pain management easier 🤔

C) Which antidepressants is concretely better for chronic pain.

Article found here:
www.bbc.co.uk/news/health-65532464

Another wonderful day for chronic pain sufferers🙃

I joke.

It is better to have this awareness and recognition that ultimately MORE RESEARCH, DONE MUCH LONGER is urgently needed.

However, I do feel like articles like this arm those who are very anti-antidepressants. The NHS is definitely trying to move away from prescribing medication in general for chronic pain sufferers.

(In my opinion) though I believe this is more a money saving move than a research influenced change of course. As soon as I see CBT as an alternative I feel vindicated 😆

For those who aren't aware the NHS (largely to save money) prescribes CBT for literally EVERYTHING nowadays 🥲😔

#ChronicPain #Fibromyalgia #ChronicFatigue #Depression #Anxiety #MentalHealth #IrritableBowelSyndromeIBS #CBT #Agoraphobia #AgoraphobiaWithoutHistoryOfPanicDisorder #FunctionalNeurologicalDisorder #BackPain #Jointpain #AuditoryProcessingDisorder #BladderIncontinence #InterstitialCystitis #Insomnia #Asthma #Prediabetic #HearingLoss #hippain #dissociation #NHS #Nice

Well after a few days of the most debilitating anxiety I have had for a while due to that appointment today & the severe pain I've been in every day even just moving or walking with this catheter issues , I am just glad today is over !!I've done what and all I can do it's now waiting for results and it's out of my hands so I'm going to tey focus on the other problems and trying to get the help I need for them and try not be stressing to much over waiting for the results !! I feel like rubbish, I feel as though I look like death ,I feel as though I'm so drained with all this pain but tomorrow is a new day and I'm going to do my best to try have a good sleep ,wake up tomorrow and put my mind and focus on to other things .....

#Melanoma #MentalHealth #CheckInWithMe #Anxiety #Depression #Selfcare #PTSD #Positivity #Bekind #loveyourself #ChronicPain #SkinCancer #Endometriosis #COVID19 #longcovid #Catheter #InterstitialCystitis #UTI #AloneTogether #Parenting #GeneralParenting #Insomnia #Upallnight