So much pain
I’m in a horrible interstitial cystitis (some call it painful bladder syndrome) flare up right now. Day 3 of this horrible horrible pain. My bladder is burning. It hurts to pee. It hurts to not pee. I can feel my bladder and pelvic floor spasming. It’s giving me a stomach ache and a headache. I’m afraid to eat or drink anything besides baking soda water. I’ve been taking azo as often as allowed. All I did was take 3 single sips of a drink my friend for a few days ago and I guess that was enough to do this. I haven’t had a flare up in years. I was supposed to enjoy the 4 days I had off with my boyfriend doing all the fun activities we planned and yet all I did was sleep the days away out of pain! No one understands how mad this makes me, how unfair this is! I finally get to go out with my girlfriends and this is what happens to me. This is why I never want to do anything fun. It’s never worth it in the end. Monday Tuesday and Wednesday spent in severe pain, spent sleeping. I have one day off before I go back to work for two nights. How am I going to survive work when I can’t even handle staying awake at home? I’ve maxed out on call outs this year so I’m screwed. I’m so sick of being sick. When does this end? 😭 #InterstitialCystitis #ChronicPain #Depression #alone #LymeDisease
Running Through the Flames (poem)
Reminding myself how strong I am 💚
Reminding myself how strong my body is
I’m starting to think I might have Gastroparesis.
Ever since I was a baby, I’ve struggled with stomach issues. I’ve never been able to vomit normally - I literally projectile vomit EVERY time. I’ve been told it looks like I’m a cartoon when I do it. I end up with EXTREME stomach and throat pain. And over the years, I’ve noticed that I can sometimes not have eaten for 6+ hours but I’m still bringing up an excessive amount of what appears to be undigested food.
This past weekend, I managed to catch Norovirus - the “winter” vomiting bug. Between the hours of 3:30am and 8:30am on Sunday morning, I was curled up on the bathroom floor sobbing, unable to stop myself from bringing stuff up. But I hadn’t eaten since 6:30pm that evening. So, it had been around NINE hours WITHOUT consuming anything other than water.
TRIGGER WARNING - this part might be a bit gross…
When I started vomiting, I could SEE what I’d eaten for dinner. Very clearly undigested cucumber, cherry tomatoes, and stuff like that. I managed to fill a 2 LITRE bowl up twice in the space of about 30-60mimutes, then I continued to bring up insane amounts of bile (BRIGHT greenish yellow) for HOURS afterwards. This can’t be normal, surely? I thought the stomach was supposed to be empty after 4-6hours? But to have a FULL stomach after NINE hours? Jesus. I haven’t felt so ill in all my life.
From all the retching and vomiting, I’ve torn the muscles in my sides and my abdomen - it’s really hard to laugh and cough without crying. My fever was originally 39.8°C but is now down to 37.9°. I’m still achy, though. I imagine it’ll be a few more days before I’m back to my version of ‘normal’.
I’ve had SO many investigations for acid reflux, stomach aches and GERD in the past. All we ever found was the GERD, a hiatal hernia and VERY inflamed stomach linings. Surely gastroparesis would’ve been found before now…? How do I go about having this looked into?
Thank you all in advance, guys. And I’m sorry for the graphic description of my puke. 😬
Guess who managed to break her foot by WALKING!
Advice for a Mothers Day Fail
Well we all at one time in our lives have probably questioned if we have been too sensitive. Today Mother’s Day my Daughter had to work. I have only the one. I knew she had to work and had no issue with that.
Problem was today was a day like any other day. Nothing special no cards no flowers nothing but what really upset me was she didn’t call until 7pm. By then I became petty Betty. I was up all day and for those with Chronic Illness etc we know there are days we don’t know when we might have been up all night or 2-3 nights like it happens to me so daytime sleeping happens.
So I didn’t take the call I felt you could take 2 mins from your day or even text me Happy Mothers Day. This has happened before like my Bday etc. where the day comes and nothing. Makes me feel the same like nothing. My husband will say well you were sleeping all day no I was up all day. He actually spent the day helping his father. He also make comments like I’m not his mother. I really need to know if I’m over reacting. There are a lot of factors like chronic pain, chronic stress, ptsd etc.
I am hurt and sad. When your disabled and you struggle with not being able to do so much it just adds to the pain of it all. ##fibromyalgia #fibrowarrior
#chroniclymediseaseawareness #lymesucks #lymewarrior #lyme
#invisibleillness #spoonielife #chronicpainsucks #epsteinbarr
#ra #rheumatoidarthritis #ic/BPS #interstitialcystitis #ptsd #sciatica #pituitarytumor #nervedamage #ankylosingspondylitis #lymedisease #lymewarrior #chronicpain #chronicpainsufferer #ddd #migraines