Jointpain

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    hello!

    I just joined here because I've been unable to work and my therapist wants me to consider getting on disability and learn more. Nice to meet you all. #EhlersDanlosSyndrome #Migraine #Fibromyalgia #Jointpain #ADHD

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    Anyone else experience this?

    I was wondering if anyone else has flare-up…cycles? If so, do you know why?
    For me, I have GI symptoms, muscle and joint symptoms, and neurological symptoms associated with my condition. When I begin a flare up, the GI symptoms flare at once, then once that flare ends, it triggers a joint flare, then when that one ends, it triggers the neuro flare up. Like, each category has to flare before the whole thing is over. Is there a reason? #autoimmune #chronic #Seizure #GastrointestinalDiscomfort #Jointpain #Inflammation

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    Which meds?!?!

    #RheumatoidArthritis
    I’ve recently been diagnosed with RA. I’m currently on Gabapentin and Plaquenil. My rheumatologist suggested Methotrexate or Leflunomide to be added. I’ve been reading up on both but I just can’t decide. I’m not exactly thrilled about either one! What has worked for you?! #AutoimmuneDisease #RA #Jointpain

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    My new normal? #Undiagnosed #Fibromyalgia #SeronegativeRA #RheumatoidArthritis #parentwithpain #Jointpain

    I've been icing my hand to cope with the joint pain. I had blood work from rheumatologist that can back "all normal" for RA. Next step is MRI on my hand. He thinks it's possible I have fibromyalgia. What am I supposed to do without a diagnosis?

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    Why those who identify as women so often dismissed by the medical profession?

    Horribly sad that this is such a universal experience. And I'm sure one that all those identifying as women can associate with.

    I'm currently living with the consequences of a UTI being entirely dismissed. Now I am in agony every day and sleep in short bursts.

    And the NHS wonders why so many are bitter and sue 🙃

    Something that also strikes me is that women identifying medical professionals do it as well. The internalised patriarchy is so strong within the global medical profession.

    www.bbc.co.uk/news/uk-wales-62927751.amp

    #UTI #ChronicDepression #ChronicPain #Endometriosis #Depression #Anxiety #Fibromyalgia #MedicalProfession #NHS #FunctionalNeurologicalDisorder #BrainFog #ChronicFatigue #SinusInfection #PelvicFloorDysfunction #Pelvicpain #Jointpain #IrritableBowelSyndromeIBS #Insomnia

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    The grief of chronic illness

    Today I cleaned out my bedroom closet, something I had been putting off for about 19 months. I kept putting it off because I was holding out hope that maybe my health would change and I might be able to do some of the things I once did.

    Acceptance of my limitations is hard for me and I find myself grieving my old self more often. It’s not like I have ever been particularly “well” but I was somewhat functional, much more than I am now. So, back to my closet. I cried. Not for the actual clothes, shoes, or objects themselves but for the memories (I have an eidetic memory) I associate with each item. I cried because with each thing I took out to put into a storage bin I would think of something or someone I loved, I missed. Things I would wear to work, to see family & friends, to go to fun events, even down to a t-shirt I wore to clean the house (who would have thought I’d ever miss that?! Lol). These are all things that seem to be in the past now, things that I miss dreadfully. Now my closet is filled with clothes that can be easily accessible for doctors, nurses, diagnostics, treatments etc. The way I dressed used to be a part of how I expressed myself; it would give me excitement to try new outfits. Now, I feel sad, hopeless, and feel reminders of how uncertain my future is. I’m not ready to fully accept my illness or my limitations but I am trying to be realistic and be patient with myself along my journey. I’ve kept a couple special items in my closet just to stay hopeful but putting my things into storage is a first step for me to be ok with my limitations. When I am ready, I will donate my clothing to a Women’s shelter and the women’s jail in my area that helps inmates transition back to the community. That will be something that I can still give, something that I can still do for others which has been what my entire life has been based upon.

    This post was just a way for me to release my sadness and emotions I face around the losses that come with chronic illness and disability. Maybe others can relate. #ChronicIllness #Disability #Autism #CPTSD #ChronicPain #AutoimmuneDisease #Jointpain #DegenerativeDiscDisease #Fatigue #Gastroparesis #Endometriosis #IdiopathicIntracranialHypertension #Depression

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    Are Magnesium supplements a game changer for Fibromyalgia and joint pain? Maybe 🧐

    Hey Everyone,

    I've been off my Magnesium supplements for a couple of weeks (being cheap and waiting to sent a voucher I'm owed 😅😜) and what a difference!

    I had the WORSE flare I've had for such a long time. I've ordered new ones and thank goodness they'll arrive tomorrow, but I didn't realise what a difference it made.

    Has anyone else found that Magnesium supplements make a difference for you?

    #Fibromyalgia #ChronicPain #ChronicFatigue #Jointpain #Depression #Anxiety #IrritableBowelSyndromeIBS #AuditoryProcessingDisorder