tubefeeds

Hi everyone. I used to be on here but I can’t remember my login or the email I used so I am starting a new one. I am mom to two young adults with cystic fibrosis and other health issues. I have RA and other conditions as well. I had to change my career due to the risk of COVID and my son’s transplant not to mention the kids CF in general. I am an esthetician and makeup artist so I touch people’s faces for a living. So during the pandemic I started thinking what I can do now since I am 50+ and worked cosmetics since I was 17. I have always dreamed of working as a travel planner/advisor/agent. I travelled a lot as a kid due to my dad’s work and I picked up the travel bug while I was still in diapers. I found out that due to the pandemic people are relying more on travel advisors more than ever. Then I wanted to narrow down my specialty/niche. I figured it out, I hope. I have had to figure a lot of things out traveling with my kids, especially our son. Meds galore, some refrigerated, vest compression machines(2),, nebulizers, nebs, feed pump, supplemental feed, tubing, feed bags, plenty of snacks traveling, wheelchairs and fluid at all times. I had to research hospitals in London when we went on my son’s make-a-wish so we would know where to go just in case. A plan A plan B Plan c just in case. Then for my sons transplant which we had to relocate for and my daughter’s make-a-wish. These experiences taught me so much, not to mention seeing what my fellow moms would do in order to travel. So have decided to help chronically ill and special needs travelers and their caregivers. Everyone deserves the opportunity to explore this beautiful World and I would feel honored to help facilitate this. I started my business several months ago and found out there is a great need for this. I have been learning so much and have been working with some clients already, some with challenges and also some great family, leisure & luxury trips. I am so glad I made this change. I guess a few good things have come from the pandemic. I have decided to not charge my clients for medical travel advice. I hope to help as many people as I can.
#Travel #travelagent #specialneedstravel #medicaltravel #sunflowerlanyard #InvisibleIllness #ChronicIllness #CysticFibrosis #Transplant #pancreatitis #ChronicPancreatitis #tubefeeds



Recently I was discharged from the hospital (Children’s) and they called my enteral nutrition company, having formula and supplies sent to my home. Well, back tracking a bit, in the hospital I was on Pediasure Enteral 1.0 formula. Had a super hard time tolerating it, even at a medicine cup an hour rate. However since seeing my Gastroenterologist & Dietitan yesterday.. we found I’m not only not tolerating the formula but I’m also rapidy losing weight on it. So I’m now being switched! 🙏 My dietitan wants me on Kate Farm’s (adult) Peptide 1.5. This way I’m getting more of my energy needs in less volume. Also on the plus, it’s organic and plant-based😀

So, I’ve heard really great things about the Kate Farm’s company..wanted to know if the hype is real?

#Gastroparesis #IntestinalMalabsorption #LazyBowelSyndrome #GastroesophagealRefluxDisease #Jtube #FeedingTube #tubefeeds #katefarms #enteralnutrition