Chronic Pancreatitis

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Chronic Pancreatitis
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I'm new here!

Hi, my name is NGlucina111. I'm here because I have chronic necrotizing pancreatitis,inertia hernia in my groin ( which honestly is almost more painful than CP) one kidney and a decent variety of other issues!!

#MightyTogether #ChronicPancreatitis

3 reactions 1 comment
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I'm new here!

Hi, my name is WelshClare252. I'm here because I’d like to meet people who live with chronic illness but still try and remain positive

#MightyTogether #ChronicPancreatitis

8 reactions 1 comment
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Happy New Year

Ive been living with depression since a young age. Pancreatitis for a decade, and recently was diagnosed with PTSD and a new auto immune disease - vascultis. Eff me right? 😅🤦🏼‍♀️

Just looking to meet like-lifed people who understand chronic illnesses (physical and mental) 🙂 - y’a know, just cause we ‘don’t look sick’ doesn’t mean we aren’t fighting serious battles right?🙋🏼‍♀️

All the best in 2024! Hope to meet some of you soon 😘💁🏼‍♀️

#ChronicIllness #PTSD #Depression #ChronicPain #ChronicPancreatitis #Vasculitis #MentalHealth

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34 reactions 10 comments
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Think about housing before thinking about suicide

Wow! I just found out a person can be denied housing, if they've ever been on a psychiatric hold for a suicide attempt. What if the main reason for the attempt was because of lack of housing?!!

I wonder if they deny applicants who have any other life-threatening illness, like cancer or hereditary chronic pancreatitis.

#homelessness #DomesticViolence #Suicide #Stigma

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5 reactions 2 comments
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Hospital Again

In the hospital again. This time I have pancreatitis! I need surgery they said because a bile duct is blocked off, but the surgery can't happen without an endoscopy. The endoscopy is scheduled for freaking September! They're trying so hard to rush it. If they don't I'm just gonna keep ending up here in the hospital. They admitted me this time. I was glad to have my hospital go bag made and ready this time.
The things wrapped around my legs are for blood flow so I don't get a clot. #AutonomicDysfunction #ChronicPancreatitis #Hospital

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Travel Agent for Complex Medical Care and Special Needs

Hi everyone. I used to be on here but I can’t remember my login or the email I used so I am starting a new one. I am mom to two young adults with cystic fibrosis and other health issues. I have RA and other conditions as well. I had to change my career due to the risk of COVID and my son’s transplant not to mention the kids CF in general. I am an esthetician and makeup artist so I touch people’s faces for a living. So during the pandemic I started thinking what I can do now since I am 50+ and worked cosmetics since I was 17. I have always dreamed of working as a travel planner/advisor/agent. I travelled a lot as a kid due to my dad’s work and I picked up the travel bug while I was still in diapers. I found out that due to the pandemic people are relying more on travel advisors more than ever. Then I wanted to narrow down my specialty/niche. I figured it out, I hope. I have had to figure a lot of things out traveling with my kids, especially our son. Meds galore, some refrigerated, vest compression machines(2),, nebulizers, nebs, feed pump, supplemental feed, tubing, feed bags, plenty of snacks traveling, wheelchairs and fluid at all times. I had to research hospitals in London when we went on my son’s make-a-wish so we would know where to go just in case. A plan A plan B Plan c just in case. Then for my sons transplant which we had to relocate for and my daughter’s make-a-wish. These experiences taught me so much, not to mention seeing what my fellow moms would do in order to travel. So have decided to help chronically ill and special needs travelers and their caregivers. Everyone deserves the opportunity to explore this beautiful World and I would feel honored to help facilitate this. I started my business several months ago and found out there is a great need for this. I have been learning so much and have been working with some clients already, some with challenges and also some great family, leisure & luxury trips. I am so glad I made this change. I guess a few good things have come from the pandemic. I have decided to not charge my clients for medical travel advice. I hope to help as many people as I can.
#Travel #travelagent #specialneedstravel #medicaltravel #sunflowerlanyard #InvisibleIllness #ChronicIllness #CysticFibrosis #Transplant #pancreatitis #ChronicPancreatitis #tubefeeds


4 reactions 1 comment
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I'm a disabled Caretaker #ChronicPain #ChronicPancreatitis #LungCancer #DownSyndrome

I've been recovering from a car accident I have abdominal wall denervation and a crushed vertebrae and three herniated discs. I talked morphine every day. I have anxiety and depression. I live and care for my Downs syndrome daughter as well as my 82 year old mother who has pancreatitis the beginning of dementia and has just been diagnosed with lung cancer. She is coughing up blood. My mother smoked all her life and I have tried everything to slow and stop her from smoking and she won't. It breaks my heart every day to see this so I stay in my basement most days I need help I can't cope anymore. How can I stop her from smoking ??

6 reactions 8 comments