Abdominal Cutaneous Nerve Entrapment Syndrome

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Abdominal Cutaneous Nerve Entrapment Syndrome
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i feel alone with ACNES can anyone relate

I’ve got mine from carry large in pregnancy (& I had emer c-section). I was fine during but after birth I’ve been struggling to stand & walk I gradually get ‘better’ with physio & acupuncture is great for the pain but then I need to make one small mistake (jump, lift or walk too fast & im back where I started) I’m 4yrs in now & have had no medical help. Since the birth of my child I have managed to get abit better through daily low level pilate exercises/physio but I have never got well enough to dance, jog/run or jump & I cant lift my child or anything too heavy or I end up 2months in pain back to being unable to stand again! Can anyone relate I feel alone with this?

#AbdominalCutaneousNerveEntrapmentSyndrome

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Tried all day

Just can’t do it. I have ANOTHER kidney infection... exhausted, nauseated, chills & sweats... At least I did the dishes - but that’s about it! Time for bed!

#ChronicIllness
#ChronicInfections #Fatigue #AbdominalCutaneousNerveEntrapmentSyndrome

3 comments
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Anxiety is preventing me from many activities

Hi. I’m Leo, 23 years old. I want to share a little bit of my story and see if there is someone same as me and if there is any solution to this. One of my issues is that my face gets red so often, even for the little thing. At the first look it doesnt seem like a problem because mostly everyone gets red, but my situation is different. I get red in many situations, with friends, family too sometimes, which makes me wonder like, why …

Around 14 i started to get acnes. I didnt do anything at this time to cure them, hoping they will get away soon. Month after month, acnes got all over my face. Cause of that i decided to stay with the close friends and to stay away of big society until i get a clear face. In high school, used to get comments from girls about acnes, like “why do you have so much acnes”, “use a medicine to cure them” etc, which most of the time made me uncomfortable. I have blue eyes and before getting acnes, many girls used to come to me, just want to say it wasnt hard approaching a girl. After i got acnes i think i got closed in myself a little bit. I had good relation with mostly everyone in high school, and besides them, in my neighbor I had all my closed friends, we were around 9 kids and others around used to group and stay together. As a guy wouldnt worry too much about acnes, but getting them all over the face was embarrassing. However, i started using medications at age of 18 because they were so terrible and it was really embarrassing staying in a group of friends with clear face and you there with full acne face. I used so many medications to cure them but nothing worked !! Until 22 years old my acnes were terrible when i decided to stop using anything and now that im 23, they somehow got away but still get 1 or 2 here and there.

I have realized its hard for me to approach people nowadays, whenever i talk to a new group of friends, my face turns red and not only that. My heart rates are increased, i feel something wrong in the middle of chest whenever i approach new people. Something bothering and making it hard to approach new people. Also hand shaking, voice. If its day i try to avoid people seeing my face getting red, like i just turn back like seeing something new, or hiding to someone until i think my face is back to normal. Knowing that i will become red makes it even harder, it happens to family sometimes too. I think red face is feeding #Anxiety inside making it even worse. I definitively feel embarrassed to approach any girl nowadays, unless its dark, because other people and she will see me getting red and will make me feel bad. Or going to an interview, i go to speak to the manager or whoever, i just turn red and its a – for me wining that position.

Sometimes it puts me in a deep #Depression phase, making me not want to talk about anything, closing in myself and thinking and thinking. I am very patient, never lazy, but anxiety is killing me slowly slowly. I always try to refuse it but deep inside i know im in war with that but i dont know how to beat it. Just want to add that whenever i turn red i get these symptoms: hand shaking, heart rate increase, pain in the back of head, voice shaking, the feeling in the middle of chest (its something like, whatever im supposed to do, that feeling just makes me not to do it, even when i push myself, it just doesn’t happens right)… I don’t know if red face is giving me anxiety, i dont know if acnes made my face to get red so often but i also refuse to speak about this problem with anyone. I try my best to stay calm and fighting it myself.

There are times i get my moral up and feel good, but getting red is preventing me from doing what i want to do. Is not allowing me to be me. I never posted in forums, but i just feel like i should try and seek for solution about that.

If someone have same symptoms, please post whats your strategy to deal with it, or if someone had same symptoms and got rid of it let me know. I dont know if medication or anything can help get through that. Anything can help. Thanks

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Exhaustion

My parents came out to visit and go to Disney World. It’s hard for me to get up, and go and it’s hard for them to understand that. My #AbominalCutaneousEntrapmentSyndrome makes it hard for me to do those things. Now I am flying back to Texas with them to see family, and I am dreading it. I know I’m going to be going nonstop without any type of break. I just want to stay in bed and rest. #Exhaused

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Exhaustion

My parents came out to visit and go to Disney World. It’s hard for me to get up, and go and it’s hard for them to understand that. My #AbominalCutaneousEntrapmentSyndrome makes it hard for me to do those things. Now I am flying back to Texas with them to see family, and I am dreading it. I know I’m going to be going nonstop without any type of break. I just want to stay in bed and rest. #Exhaused

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Getting some help at last..

Finally got a proper adjusted wheelchair after months of trying to get it covered, I filled in the request at the beginning of octobre 2018. And I got an approval for an electric system on this wheelchair!! !

I'm so thankful I've been locked up In my own home for months, I can't believe that just a year and a half ago I was still going to school (half days)

All this positivity came in a really bad pain week, I had such pain I thought I had another #ovarian #cyst , litteraly crawling over the floor deciding if I needed to call 911..

Thankfully It's a lot better now and my wheelchair is amazing!

Can't wait till they place the electrical system on my wheelchair and I can leave the house on my own!

I think that's a fair request as an 22 yr old..

#HEDS #POTS #oh #ACNES #Gastroparesis and #Epilepsy are all bitches!
#RareAndMighty

Post

Getting some help at last..

Finally got a proper adjusted wheelchair after months of trying to get it covered, I filled in the request at the beginning of octobre 2018. And I got an approval for an electric system on this wheelchair!! !

I'm so thankful I've been locked up In my own home for months, I can't believe that just a year and a half ago I was still going to school (half days)

All this positivity came in a really bad pain week, I had such pain I thought I had another #ovarian #cyst , litteraly crawling over the floor deciding if I needed to call 911..

Thankfully It's a lot better now and my wheelchair is amazing!

Can't wait till they place the electrical system on my wheelchair and I can leave the house on my own!

I think that's a fair request as an 22 yr old..

#HEDS #POTS #oh #ACNES #Gastroparesis and #Epilepsy are all bitches!
#RareAndMighty

Post

Accepting help

This week I've decided to accept the help that my physical therapist is offering me in the form of: Silver splints, an electric wheelchair and a hospital bed with remote and special matress so I can hopefully sleep a little better.. I have a list of conditions including #EhlersDanlosSyndrome or #HEDS #Gastroparesis for which I have a #FeedingTube #Epilepsy #POTS and #oh who are both forms of #Dysautonomia and #ACNES which causes chronic nerve p aain because of a damaged nerve in my abdomen, I've been sick for about 8,5 years now and before that I was really active.

So it was quite a struggle for me to accept these tools, but I'm so happy I did!

As I lay here in my new bed for the first night I can feel tge pain is less than normal, and I'm just so thankful for that!

I'm on the waiting list for the other tools but I'm guessing it will go much more smoothly kno weing this bed is already such an inmprovement!

I know there are more people out there struggling to accept a wheelchair or other things and I just wanted to let everyone know, It's okay to accept help, It's perfectly fine if you can't do it all by yourself!
Please accept the help that is offered and if it isn't offered.. Ask!

I'm sure for most of you it will m aske your life a lot easier!

Stay strong!

#ChronicIllness

7 comments
Post

Accepting help

This week I've decided to accept the help that my physical therapist is offering me in the form of: Silver splints, an electric wheelchair and a hospital bed with remote and special matress so I can hopefully sleep a little better.. I have a list of conditions including #EhlersDanlosSyndrome or #HEDS #Gastroparesis for which I have a #FeedingTube #Epilepsy #POTS and #oh who are both forms of #Dysautonomia and #ACNES which causes chronic nerve p aain because of a damaged nerve in my abdomen, I've been sick for about 8,5 years now and before that I was really active.

So it was quite a struggle for me to accept these tools, but I'm so happy I did!

As I lay here in my new bed for the first night I can feel tge pain is less than normal, and I'm just so thankful for that!

I'm on the waiting list for the other tools but I'm guessing it will go much more smoothly kno weing this bed is already such an inmprovement!

I know there are more people out there struggling to accept a wheelchair or other things and I just wanted to let everyone know, It's okay to accept help, It's perfectly fine if you can't do it all by yourself!
Please accept the help that is offered and if it isn't offered.. Ask!

I'm sure for most of you it will m aske your life a lot easier!

Stay strong!

#ChronicIllness

7 comments