#Grief #Cancers Hi, my name is BewitchingSalmon47. I'm here because my 13 year old granddaughter is fighting aml leukemia. Watching her suffer is the absolute hardest thing Ive ever had to do in life and I just need to know what I can do for her. How can I make her laugh or smile even. How can I make her feel loved. How do I talk to her about her illness?
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3 comments
#Grief #Cancers Hi, my name is BewitchingSalmon47. I'm here because my 13 year old granddaughter is fighting aml leukemia. Watching her suffer is the absolute hardest thing Ive ever had to do in life and I just need to know what I can do for her. How can I make her laugh or smile even. How can I make her feel loved. How do I talk to her about her illness?
6 reactions •
3 comments
Life looks a lot different right now. My almost 2 year old daughter who has Down Syndrome was recently diagnosed with acute myeloid leukemia. Over the last couple of weeks, she had issues with various things that we equated to normal toddler things. GI issues after changing formulas, teething, fevers we thought were due to the teething, and fatigue which we thought were due to her barely sleeping. Last Thursday, her eyes were swollen shut after I got her home from the baby sitter so I took her to urgent care. They didn’t want to mess with it so it was recommended that we go to the ER. So we took her. They did some blood tests and that’s when we found out the news.
She is currently receiving chemo treatment. Today is day four of chemo, and her last day of treatment this cycle. She will remain in the hospital for monitoring and observation for close to a month to ensure she is responding well to treatment. At some point, she will get to go home for a couple weeks, then be back in the hospital for her next round of treatment. She will need 6 rounds of chemo treatment. At least that is the plan right now.
So far she seems to be responding well to treatment. Right now just managing pain and trying to keep her as comfortable as possible and manage all of the fluid retention.
They expect treatment and overall management of the cancer to be up to two years. There’s a lot to be figured out during this time that we are just trying to take one day at a time. That’s all we can do at the moment.
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9 comments
Life looks a lot different right now. My almost 2 year old daughter who has Down Syndrome was recently diagnosed with acute myeloid leukemia. Over the last couple of weeks, she had issues with various things that we equated to normal toddler things. GI issues after changing formulas, teething, fevers we thought were due to the teething, and fatigue which we thought were due to her barely sleeping. Last Thursday, her eyes were swollen shut after I got her home from the baby sitter so I took her to urgent care. They didn’t want to mess with it so it was recommended that we go to the ER. So we took her. They did some blood tests and that’s when we found out the news.
She is currently receiving chemo treatment. Today is day four of chemo, and her last day of treatment this cycle. She will remain in the hospital for monitoring and observation for close to a month to ensure she is responding well to treatment. At some point, she will get to go home for a couple weeks, then be back in the hospital for her next round of treatment. She will need 6 rounds of chemo treatment. At least that is the plan right now.
So far she seems to be responding well to treatment. Right now just managing pain and trying to keep her as comfortable as possible and manage all of the fluid retention.
They expect treatment and overall management of the cancer to be up to two years. There’s a lot to be figured out during this time that we are just trying to take one day at a time. That’s all we can do at the moment.
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9 comments
Whether you’re newly diagnosed, in treatment, or caring for someone with myelodysplastic syndromes, this is your space to connect, share, and feel understood.
💬 What’s one thing you wish more people knew about living with MDS?
4 reactions Whether you’re newly diagnosed, in treatment, or caring for someone with myelodysplastic syndromes, this is your space to connect, share, and feel understood.
💬 What’s one thing you wish more people knew about living with MDS?
4 reactions Hi, my name is Mickey T. I'm here because I have a very rare blood cancer, Polycythemia Vera. I am looking for support and new knowledge regarding this disease. I have been battling this cancer for 6 years now! I am a high-energy guy; but lately have had extreme fatigue, deep bone pain, leg cramps at night, & a high number of times to urinate at night!
Have any of you been diagnosed with Myeloproliferative Neoplasm Cancer? There are 4 types, three of those are manageable and one is terminal. The PV that I have is the terminal one!
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Hi, my name is SavageDad. I'm here because I have recently been diagnosed with a rare blood cancer on June 28th this year. I am concerned for my wife and kids both going through this process and after I’m gone. I have a great deal of anxiety and some of the symptoms of the cancer plus side effects of the chemo, immunotherapy take a toll on me where I feel I have very little to give.
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