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A gift, A thief.

People usually say… “So much can change in a year” OK. What about in months.

My grandmother’s cancer journey has changed my relationship with time. Might as well change my relationship status to “It’s complicated.”

Let’s start with what Cancer is to me. Cancer is “getting everything in order - so… that…x,y,z.” Actually, it’s more like you’re reading the alphabet from finish to start. Right? So you can go backwards and maybe sound out letters you missed because you were going too fast, you don’t. That’s the thing… how do you go from September 21st. Walking three miles in forty-five minutes to the next day… “Cancer doesn’t happen to me. It’s not in our DNA. It happens to others, other families. “ to Holy Shit. Holy - something. We need some spiritual interference for this. To “She is so strong. So are you.”

They measure a life and give you a Hail Mary. You start saying Hail Marys.

I’ve had rules… rules if my grandmother ever lost her ability to - and the only thing I can remember from the fuzziness that my brain has become is.. Chapstick. She wants chapstick. It’s important. Chapstick becomes the only thing I can do.

I’ve learned the true meaning of capacity. How you show up, fully will look different every day. I really like the quote that says “On the days you have forty-percent and you gave forty-percent - you gave one-hundred percent.” Someone’s percent will look different than mine, that’s OK. Cancer is showing up as you can. As your body lets you. As your heart wants to.

Cancer is you can do chemo - Sorry, you can’t. Cancer goes from doctor appoints to hospital stays. Cancer is going home, and staying there. Cancer is. It’s watching your loved ones do everything for someone who - was healthy, looked good, looked young. (Wait. . You’re 68?!) It’s watching someone wake up in the middle of the night to give her medication, adjust the pillow, adjust the bed. Walk her to the bathroom, stop her from walking because she thinks she’s walking to an appointment. It’s… going along with what she says. Watching my grandmother fold a blanket over, over and over. In two month’s time. Time is a gift but also a thief. Two months time. I’ve seen how hand holding is the only thing you can hold on to. I’ve seen how couches become beds. You start inflating beds and wish you could inflate birthday balloons one more time. I’ve seen how, you’re suppose to just welcome everyone. Welcome, everyone… she’s asleep.

OK now. What cancer really looks like: Holding grudges becomes holding her hand. Watching my aunt change colonoscopy bags. Weren’t those bags… Nordstrom bags in two months time? Draining bags. They told her to drain her bank accounts in two months time. It’s watching my mom, watching her convince her mom that she’s her daughter. My mom has always been the most resilient person I know. I watch her open up her house to people who, she’s known her whole life, yet they don’t know “where she’s been this whole time.” Here,. I watch her giving her mom medication, wasn’t I just watching her do a puzzle? A thousand pieces puzzle. Now, I’ll be helping her, she will be helping me, pick up the pieces of our lives for the rest of our lives, we’ll piece together, yet it won’t look right. What do you do when a math problem answer doesn’t seem right, you start over: We won’t be able to start over, we will have to start from where we are. They say start from where you are with what you have. We have each other and that’s where we are but remember when I had my center, and Alicia did too? Me, I’m her center. Does this mean I’ll be looking for my footing for the rest of my life? Probably. I’ll definitely be looking for her (my grandmother) , in water, surrounded by seals, smelling like dirty salt water, with the sun hitting my face.The only thing I’ll have is the smell of seal infested salt waters, when wasn’t I just smelling *daisy sour cream, devils food donuts and hamburgers for breakfast? It’s the only place. I already know that. This must be the place. It is. I said I’d be here. Hypothetically, Now, in the future, literally. She (my grandmother) won’t be.

Now more than ever before, I know why they say “Grief is just Love with nowhere to go.” Wait, she’s still here! Grief doesn’t start until the end, or does it? Grief exists because Love existed. Opposites? No, the same thing. Side by side, just like everyone is at my grandmother’s side. Now, not then. If she’s strong now? What was she then? Let me remind you of what you said.

Cancer is. We have no choice, “Putting a fire under it.” Never thought that would become - “Let me put this pillow under you, are you more comfortable like this? Are you uncomfortable, no she’s in pain. It’s, strangers to, using nicknames we’ve known our entire lives. It’s “Oh no, I am going to cry. Can’t cry. Too late, your cousin thought of you and bought you vegan cheese.”

A gift, A theif.
Gratitude for this entire experience is a prayer.

Cancer is, saying everything but not saying anything. Literally.

Like Alicia said. This is the easy part, so what’s the hard part? Don’t tell me.

But I’ll tell you what my heaven looks like, she said: it’s pictures of you.

#Cancers #PancreaticCancer

(edited)
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A gift, A thief.

People usually say… “So much can change in a year” OK. What about in months.

My grandmother’s cancer journey has changed my relationship with time. Might as well change my relationship status to “It’s complicated.”

Let’s start with what Cancer is to me. Cancer is “getting everything in order - so… that…x,y,z.” Actually, it’s more like you’re reading the alphabet from finish to start. Right? So you can go backwards and maybe sound out letters you missed because you were going too fast, you don’t. That’s the thing… how do you go from September 21st. Walking three miles in forty-five minutes to the next day… “Cancer doesn’t happen to me. It’s not in our DNA. It happens to others, other families. “ to Holy Shit. Holy - something. We need some spiritual interference for this. To “She is so strong. So are you.”

They measure a life and give you a Hail Mary. You start saying Hail Marys.

I’ve had rules… rules if my grandmother ever lost her ability to - and the only thing I can remember from the fuzziness that my brain has become is.. Chapstick. She wants chapstick. It’s important. Chapstick becomes the only thing I can do.

I’ve learned the true meaning of capacity. How you show up, fully will look different every day. I really like the quote that says “On the days you have forty-percent and you gave forty-percent - you gave one-hundred percent.” Someone’s percent will look different than mine, that’s OK. Cancer is showing up as you can. As your body lets you. As your heart wants to.

Cancer is you can do chemo - Sorry, you can’t. Cancer goes from doctor appoints to hospital stays. Cancer is going home, and staying there. Cancer is. It’s watching your loved ones do everything for someone who - was healthy, looked good, looked young. (Wait. . You’re 68?!) It’s watching someone wake up in the middle of the night to give her medication, adjust the pillow, adjust the bed. Walk her to the bathroom, stop her from walking because she thinks she’s walking to an appointment. It’s… going along with what she says. Watching my grandmother fold a blanket over, over and over. In two month’s time. Time is a gift but also a thief. Two months time. I’ve seen how hand holding is the only thing you can hold on to. I’ve seen how couches become beds. You start inflating beds and wish you could inflate birthday balloons one more time. I’ve seen how, you’re suppose to just welcome everyone. Welcome, everyone… she’s asleep.

OK now. What cancer really looks like: Holding grudges becomes holding her hand. Watching my aunt change colonoscopy bags. Weren’t those bags… Nordstrom bags in two months time? Draining bags. They told her to drain her bank accounts in two months time. It’s watching my mom, watching her convince her mom that she’s her daughter. My mom has always been the most resilient person I know. I watch her open up her house to people who, she’s known her whole life, yet they don’t know “where she’s been this whole time.” Here,. I watch her giving her mom medication, wasn’t I just watching her do a puzzle? A thousand pieces puzzle. Now, I’ll be helping her, she will be helping me, pick up the pieces of our lives for the rest of our lives, we’ll piece together, yet it won’t look right. What do you do when a math problem answer doesn’t seem right, you start over: We won’t be able to start over, we will have to start from where we are. They say start from where you are with what you have. We have each other and that’s where we are but remember when I had my center, and Alicia did too? Me, I’m her center. Does this mean I’ll be looking for my footing for the rest of my life? Probably. I’ll definitely be looking for her (my grandmother) , in water, surrounded by seals, smelling like dirty salt water, with the sun hitting my face.The only thing I’ll have is the smell of seal infested salt waters, when wasn’t I just smelling *daisy sour cream, devils food donuts and hamburgers for breakfast? It’s the only place. I already know that. This must be the place. It is. I said I’d be here. Hypothetically, Now, in the future, literally. She (my grandmother) won’t be.

Now more than ever before, I know why they say “Grief is just Love with nowhere to go.” Wait, she’s still here! Grief doesn’t start until the end, or does it? Grief exists because Love existed. Opposites? No, the same thing. Side by side, just like everyone is at my grandmother’s side. Now, not then. If she’s strong now? What was she then? Let me remind you of what you said.

Cancer is. We have no choice, “Putting a fire under it.” Never thought that would become - “Let me put this pillow under you, are you more comfortable like this? Are you uncomfortable, no she’s in pain. It’s, strangers to, using nicknames we’ve known our entire lives. It’s “Oh no, I am going to cry. Can’t cry. Too late, your cousin thought of you and bought you vegan cheese.”

A gift, A theif.
Gratitude for this entire experience is a prayer.

Cancer is, saying everything but not saying anything. Literally.

Like Alicia said. This is the easy part, so what’s the hard part? Don’t tell me.

But I’ll tell you what my heaven looks like, she said: it’s pictures of you.

#Cancers #PancreaticCancer

(edited)
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How can you "unfold your thoughts" this weekend? Maybe write them down, or say them out loud? It really does help!
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Weekends are the times when many of us attempt to catch up on chores. For me, it's laundry.

How can you "unfold your thoughts" this weekend? Maybe write them down, or say them out loud? It really does help!
#Addiction #AnorexiaNervosa #Agoraphobia #Anxiety #AutismSpectrum #ADHD #BorderlinePersonalityDisorder #BipolarDepression #MentalHealth #PTSD #Schizophrenia #Lupus #CeliacDisease #Lupus #SjogrensSyndrome #Cancers #SuicidalThoughts

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Tips for Surviving the Holidays

The holidays are hard for many of us and I wanted to remind you that I see you. Your struggle is valid. And you're allowed to feel whatever you feel.
#Addiction #AnorexiaNervosa #Agoraphobia #Anxiety #Autism #ADHD #BorderlinePersonalityDisorder #MentalHealth #PTSD #Schizophrenia #ChronicFatigueSyndrome #Lupus #Schizophrenia #CeliacDisease #Grief #Lupus #Cancers #SuicidalThoughts

Most common user reactionsMost common user reactions 13 reactions 6 comments