BrainTumors

Hi, my name is Shawnna. I'm here because in March of 2024 I had a brain bleed and was diagnosed with a brain tumor. A few months later I had brain surgery and it has been rough. My tumor is on my medulla and now is spreading to my pons, sadly the news gets worse and worse. Sadly there is nothing more the doctors can do, and I fear for my future and I just need help. I feel like I’m watching my life fade away and it’s a hard thing to watch as a 22 year old… I have never been in love, I desperately want children, I wanna finish my nursing degree, and I wanna keep working in the talent industry, but now I feel like I’m losing everything day by day.

#MightyTogether #BrainCancer #MentalHealth #Suicide

I'm struggling a lot with my neuro health right now. I was diagnosed in January with a 5mm pituitary microadenoma. For those struggling to imagine this, take a kidney bean, and place the top of a pencil eraser on it. That's the size of my tiny, noncancerous tumor. What nobody seems to understand is that, no matter how un-cancerous it is, the dang thing is still there. I have a mass in my brain. It doesn't help me to hear "Oh it could be worse, at least its not [insert cancer type name here.]" I want people in my life besides my boyfriend to acknowledge that I do in fact have a tumor, and that its okay to be scared of it. I just wish I could tell them without them interrupting me. Oh well.
Thanks for reading.

I'm struggling a lot with my neuro health right now. I was diagnosed in January with a 5mm pituitary microadenoma. For those struggling to imagine this, take a kidney bean, and place the top of a pencil eraser on it. That's the size of my tiny, noncancerous tumor. What nobody seems to understand is that, no matter how un-cancerous it is, the dang thing is still there. I have a mass in my brain. It doesn't help me to hear "Oh it could be worse, at least its not [insert cancer type name here.]" I want people in my life besides my boyfriend to acknowledge that I do in fact have a tumor, and that its okay to be scared of it. I just wish I could tell them without them interrupting me. Oh well.
Thanks for reading.

Hi, my name is FlowerGirl19. I'm here because
I’m a single parent with 20-something children with disabilities. Looking for others who are on this journey of helping their adult children lead meaningful and productive lives. Are you here, too?
#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #PTSD #BrainTumor #CognitiveDisorders

Hi, my name is FlowerGirl19. I'm here because
I’m a single parent with 20-something children with disabilities. Looking for others who are on this journey of helping their adult children lead meaningful and productive lives. Are you here, too?
#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #PTSD #BrainTumor #CognitiveDisorders

I just found out yesterday that I have a brain tumor.. I am scared. Waiting now for MRI and more CT scans. Has anybody had any experience with this? I am trying to NOT panic..but it's hard.

Well, I finally gave in and had a brain MRI. Took a lot because I’m claustrophobic and I knew the stress of having it done would throw me into another flare. Numbness, issues speaking, dizziness, weakness, etc. made my dr think MS or something neurological. Results came back today and the drs response matched my husbands.
‘It’s JUST Lupus’
What an impact that statement had on me. Actually made me breakdown and cry. I’m thankful it wasn’t MS, a brain tumor, Parkinson’s, or anything like that but at the same time I’m feeling like those around me have become so used to the Lupus diagnosis that they’ve forgotten how much it impacts life.
Maybe I’ve forgotten too.
It’s not JUST Lupus.

Has anyone on here with MS struggled with sporadic throat tightness and spasms? After getting my covid vaccine, I woke up in the middle of the night feeling as though I couldn’t breathe/swallow correctly. In a panic I rushed to the ER, however was treated like I was crazy and just doped up. It’s true that I suffer from anxiety, however NEVER like this. Months later, I still randomly get these attacks, and am scheduled to see my dr soon. I try to use relaxation methods to help, as well as take Klonopin. This has never happened until that instance. I get random muscle spasms in my legs. Is it possible this is a new MS symptom?

I have relapsing remmiting MS, but started my journey with Tumafactive MS which presented as a brain tumor and left me with lasting disability 3 years later.

Thoughts on the throat tightness???

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March 1-31: Alport Awareness Month March 1-31: Brain Injury Awareness Month
March 1-31: Brain Tumor Awareness Month (UK only)
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