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My lower half needs to be replaced

My lumbar is mangled with regrowth of spinal epidural lipomatosis and 2 new spots of stenosis. My right hip is bone on bone. Both hips have femoral acetabular impingement, bursitis, osteoarthritis, and bone spurs. I'm in so much pain. And that's just the bone stuff.
I need a break away from home for a few hours. To sip coffee and eat a bragel sandwich. It's so comforting and delicious. I want a grilled cheese sandwich really badly. Like down into my soul.

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This onslaught of pain is exhausting

OMG my left hip is throbbing again. And my eyes...might as well be grapes at a wine stomping festival. I didn't sleep last night. I've been eating very poorly lately. I've been drinking IQ Joe instead of making myself a pot of coffee. Which is fine, it's strong coffee and it's toasted hazelnut flavor. It's delicious.
I have a big stash of coffee but I just got some special tea from August uncommon. And I want to have a tea party with my darling stupidhead wifey Pauley. I was thinking chicken salad sandwiches and biscotti and cinnamon tea for Pauley and pumpkin caramel rooibos tea for me. It's ridonkulously delicious. I think she might enjoy it.
I hate being home alone. I end up curled up in my bed with my blankie and lux my cow baby.
I am sweating quite a lot and I'm overheating. My psychiatrist thinks the sweating is being caused by my Zoloft so he reduced my dose. I guess my frequency of sweating has decreased. He said he wants to get me off Zoloft completely and increase my imipramine. I used to take 75mg of Zoloft and now I'm down to 50mg.
I'm gonna go lay down and meditate for a while...and other lies I tell myself.
#FemoralAcetabularImpingement #BackPain #Bursitis #Osteoarthritis #RheumatoidArthritis

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Last night I burnt the roof of my mouth on pizza. Isn't it always the things we love the most are the things that hurt us the most?

I haven't had tummy problems this bad in a while. I feel like my tummy is full of gremlins. I keep having sharp stabby pain in the left side of my tummy.
Constipation sucks so much. It hurts like hell. My GI doctor wants me to start eating dark leafy greens and other fiber rich veggies and fruit. I haven't gotten it yet.
So about 5 days ago I got an email saying it was from my bank. They said a suspicious charge was made. I didn't recognize it so I contacted my bank and they disabled the card and were sending me a new card within 7 days. I thought ok great... until the online services I pay for started kicking back for not being able to process. So I'm gonna have lots of late fees. Fun times.
#whenitrains #FemoralAcetabularImpingement
#Bursitis #Osteoarthritis #RheumatoidArthritis
In other news...
My current #coffeeadventure is interesting. I made salted caramel flavored coffee, added white chocolate toffee flavor cappuccino powder, almond milk and a splash of cinnamon roll flavored coffee creamer. I know it's a lot, but you gotta trust me, it's better than 7-Eleven cappuccino. All of the flavors balance out. It's silky smooth and delicious.
My current pain level is 7.5. But my lumbar doesn't hurt at all so I suppose it's not so bad. But the intermittent rolling gut pain sucks.

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Because of course

I've got yet another yeast infection. Thank goodness I actually have some of the stronger form of fluconazole.
So now, to recap...
I've got:
*Stenosis
*Fat deposits on my spine have grown back since it was removed 3 and a half years ago
*Bilateral femoral acetabular impingement (hips)
*Osteoarthritis in both hips
*Bilateral bursitis great
*Bilateral intermittent exotropia (eyes)
*Chronic GI distress and constipation
*Chronic migraine
*Seborrheic dermatitis on my entire scalp, face, ears, and beard.
* Schizoaffective
*Complex PTSD
*Borderline personality
I'm being treated for all of my health problems in various ways. My mental health is fantastic. I eat a flower each day and then I fart out clouds. Then the house sprites ate my toenails.

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2 weeks

The pain came back yesterday. I was hoping it was just a fluke. But of course I'm not allowed to be pain free for more than 2 weeks.
My broken tooth really hurts but I haven't seen a dentist in 14 years. I require sedation. So I basically just said fuck dentists.
It's almost 6am. I've been typing this out for about 3 hours. I have no attention span. I really want maple Spam musubi. *Pause for nap* . My tummy hurts. I got sick 15 minutes ago. Today is luckily a weekend no appointments day. I am gonna take my meds and a gummy and have her put some CBD cream on my back....
*paused for 20 minutes to eat some generic Ritz crackers dipped in mango-apricot-peach for some breakfast snacks*
She's out cold asleep and I don't want to wake her up. I just need a gummy. Ugh this sucks.
#FemoralAcetabularImpingement
#Bursitis #Osteoarthritis #RheumatoidArthritis #BackPain

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Omg

Well I ate a lot of gummies yesterday and didn't get high. I'm very disappointed. But I'll probably be high when I wake up.
My lumbar hurts so much. It feels like I got hit by a 2x4.
I wore a new ish shirt today. I got it 2 years ago but it arrived when it was starting to get warm so I put it in my closet and... promptly forgot about it. So fast forward to today. It's colder outside and I needed a long sleeve shirt. So imagine my ooooooh moment. I've gained a lot of weight since I got this shirt but it's soft and stretchy and comfy. I thought I looked kinda cute.
I just got really still so I could assess my physical health and chronic pain... my hips are sending pain down to my kne,
Tes. Which really sucks. But the pain in my lumbar is 3x worse.
#FemoralAcetabularImpingement #Bursitis #Osteoarthritis #RheumatoidArthritis

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Fed up with petty bullshit

Yes I understand we have fruit flies. No I don't know where they're coming from. But fruit flies aren't the end of the world. It's not reason for stopping normal cleaning and taking care of me. This is what you want to get paid for so fucking do it and quit bitching. I'm trying to help but my pain is still so high and I can't stand for more than 10 minutes. I shouldn't be doing your chores. I'm paying for rent, electric, wifi, and half of the food. She has food stamps but when I asked her to please order groceries 5 days ago she was like I don't have enough money. I knew she had about 85 bucks but I didn't speak up.
When she moved in with me I told her she needs to pay 250 per month and she's gotta do dishes and clean. She hasn't had any money and I've paid for everything. And when we go to Canterbury village I'm the one paying. I have limited funds.
I'm so tired of being an adult human. I think today is a good day for puppy time. If you leave me biscuits and head scritches I'd be very happy.
#ChronicPain #BackPain #Bursitis #FemoralAcetabularImpingement

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Today

I've got a follow-up appointment with my endocrinologist today at 2pm. I've been having high BG for a few weeks. maybe 2 weeks now.
I gotta shower and find clean clothes and get ready cuz transportation is coming shortly after 1pm so I've got 5 hours to get ready.
I'm not happy about this appointment cuz my pain makes me want to take some tincture. I just kinda wiggled my back like a snake and it popped a bunch but the pain stayed the same. I hurt all over.
Next week I have an appointment with my cardiologist who I really don't like. I haven't checked my BP since I last saw her at least 3 months ago. The battery is dead.
When I had my appointment with my BHH nurse for my injection she was concerned about my BP being high. It's normal for me. I've had high BP for most of my adult life. But it's high enough to need serious meds.
Tomorrow is my appointment with my pain specialist. Shes my favorite doctor. Shes so nice and accepting and very considerate of different identities. She hugged me when I couldn't do the cortisone injections the first time I went. She was desperate to help me and she decided we could at least do a torodal shot in my butt. It didn't help but I was grateful she tried to help me.
I'm gonna shower in a half hour and figure out what I'm gonna wear. I'm getting picked up just after 1 pm. Pauley is coming with me.
#BackPain #FemoralAcetabularImpingement #Bursitis #Osteoarthritis #RheumatoidArthritis #boneonbone #SchizoaffectiveDisorder #BorderlinePersonalityDisorder #ComplexPosttraumaticStressDisorder

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Just commiserating

I want to do Christmas cards but I don't celebrate Christmas. I celebrate yule. It's a really meaningful celebration. I'm gonna look for classic Yule dishes and try to cook some really nice things.
Food and drink of Yule: Cookies and caraway cakes soaked in cider, fruits, nuts, pork dishes, turkey, eggnog, ginger tea, spiced cider, wassail.
I didn't need an excuse to buy more eggnog but here we are. And I'll make a really yummy turkey tenderloin with cranberry sauce and spiced virgin apple cider for the cool people.
I've never cooked a whole turkey. I don't think I have a container big enough for the turkey to go into the oven. But I can get one at the store by me. I think. I'm really excited. I can show Pauley what the holiday is all about.
I got a delivery from Amazon today. I needed a new can of spray on deodorant but I couldn't decide. And it was more than hmmm gosh I can't decide. Either my strong masculine side will get the Mando all over deodorant or my effeminate side will get a vanilla coconut spray deodorant so I can smell pretty.
Oh! Wow, in an unprecedented event it appears Nox is coming from the right field to *reads card* carry the pitcher off the field and put him in a garbage can. Why not both?
Both fragrances arrived yesterday. I've used the coconut scent and it's lovely. The Mando that I got has the scents of bourbon and leather. I haven't tried it yet. But I suspect it's gonna be awesome.
I'm gonna call one of my care team members, my peer support marshmallow friend. We go out to eat each month. She said a restaurant by me is really good. I think I'd like to try it.
Shes like a mom to me except accepting me with all my quirks. We both walk with walkers. We both lost children in different ways but loss is loss.
I'm starting to get a migraine. My hips feel much better. But my tummy is a wreck. And my vision is trashed which is causing my migraines. The only way to fix it is surgery. My doctor doesn't want to do surgery. I've got an appointment with her next week. I see my Endo on Tuesday and my pain specialist on Wednesday. I'm very nervous about the appointment with my pain specialist cuz I got discharged from PT about halfway through. My PT therapist said she is afraid to damage my right hip and my lumbar.
I'm just hoping to be able to do the MRI soon. That was my only reason for being in PT. Fingers crossed.
#CheckInWithMe #FemoralAcetabularImpingement
#Bursitis #Osteoarthritis #RheumatoidArthritis

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Feeling much better today

This morning was really rough with waking up to a ginormous patch of ringworm. I waited for Pauley to wake up so she could put some medicine on the wound. It was bleeding a little bit this morning.
I took one gummy at 9am and another around 1pm. I have no pain. I haven't taken any of my pain meds today! I don't have a migraine either!
I ordered another jar of the gummies using a different email address cuz otherwise it was gonna be suuuuuuuuuper expensive. I also ordered a dropper bottle of CBD/CBG tincture. And I'm pretty sure I ordered another thing of samples of gummies. I'm quite serious about finding different ways to stop my pain.
The second gummy today was taken with hydroxyzine just so I could meditate deeply. Except I fell asleep and had some awesome dreams.
Something I expected was feeling high which I hate. I don't feel high. I feel like I could hug the whole world.
Of course now I've got a serious case of the munchies. I'll have some pizza for dinner tonight. But I'm really craving shawarma and falafel and poutine.
Emotionally I feel great. I'm alert, focused, and happy. This Feels amazing.
#Alternativemedicine #FemoralAcetabularImpingement #Bursitis #Osteoarthritis #BackPain #sciatica #Migraine

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