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How many spoons in my average day?

I have CFS, FMS, osteoarthritis and idiopathic hypersonic all diagnosed long ago. New to spooning. How do I calculate how many spoons in my average day? Sometimes feels like all my energy is gone and I have only showered and dressed.

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I'm new here!

Hi, my name is Disabledcatlover. I'm here because I came across an item on my feed of photos of fibromyalgia that no one knows about. FMS is my major problem with a history of mental health issues and other spinal problems. I’m 64 and have been retired from work for twenty years am now in a wheelchair and my cats all five of them are the only things that keep me alive. I’m serious!! There is not a single day that goes by without being 10-11/10 on the pain schedule. I’m sorry for all of you others but I’m also glad that I’m not alone!! No one, not even my siblings or my late parents understood what it’s like being in a flare up. I think that the worse ones are often the carers. “Now you settle yourself down and get comfortable while I make you a nice cuppa” I do appreciate it but it makes me absolutely mad!! Enough for the moment. My fingers are hurting from osteoarthritis

#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #Fibromyalgia

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I've got an appointment tomorrow

I'll be seeing my dermatologist tomorrow. It's just a follow up to see how I've responded to the new meds that I started taking a month ago.

My scalp is mostly clear, just a few stubborn spots. My face is completely clear. And inside my ears are much better now. It's like a miracle really, I've had this problem for over half of my life.

I'm gonna talk to her about psoriatic arthritis. I'm gonna ask for a paper from her with the diagnosis so I can take it to my rheumatologist later this month. I also am hoping to get a paper from my PCP with the diagnosis of osteoarthritis and RA. I'm just hoping for answers. I've waited over 20 years for answers.

I'm feeling better tonight. I had a simple dinner and took my evening meds. Now I'm just waiting for 10pm so I can take my insulin.



I'm new here!

Hi, my name is Sanderella58. I'm here because I have been living with this illness since I was 14 years old I’m turning 65 this month and I feel so alone living with this. Back in the day doctors tried to commit me because of my symptoms. I also have osteoarthritis everywhere and a compressed spine I have lost 3 inches in height. I just need people in my life who are living with what I live with. My spouse says there is no way I can hurt that much every day. That’s my support system. He just doesn’t want to hear it.

#MightyTogether #Fibromyalgia #Depression #Migraine #PTSD

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Specialists... Or "I'm talking to other humans today"

I called a new GI doctor today and scheduled an appointment. Then I called my opthalmologist and scheduled with them too. Then I called a rheumatologist but I can't schedule an appointment without a referral so I had to call my PCP and get that done. I'm still waiting. Then I called my psych doctor to set up an appointment for tomorrow morning. I already have an appointment with my dermatologist and my neurologist. In the next 2 months I'm gonna be busy with taking care of my health. I'm being very responsible. Weeeeee

#CheckInWithMe #PsoriaticArthritis #Migraine #Osteoarthritis #Depression #Psoriasis #eyehealth #CrohnsDisease

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I'm new here!

Hi, my name is HPA39. I've been diagnosed with chronic allergic asthma with genetic heart condition so on oxygen, also have Dercums disease & degenerative spine with having 1discectomy. My husband has neuropathy multi organ sarcoidosis with Osteoarthritis degenerative spine & ulcerative Charcot foot has to wear a specialist boot, we were a semi healthy couple & parents until rare condition took hold of us both with debilitating pain
Hope to find some useful tips that stop us from feeling guilty on bad days#MightyTogether

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3rd night in a row that my feet are burning & I can't sleep. Meds aren't working & I'm so tired. Could use positive thoughts to lift my spirits.

#Erythromelalgia #MECFS #Osteoarthritis #ChronicFatigue #ChronicIllness #ChronicPain #ChronicFatigueSyndrome

9 reactions 4 comments