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I'm new here!

Hi, my name is Stillhangingon77. I'm here because i suffer from chronic pain its going on 4 years now. DDD in my neck and back,piriformis syndrome, osteoarthritis in spine ect.,bilateral hip bursitis, ischial impingment, left hip labrum tear, severe neck and shoulder and arm pain,facet arthritis, arthritis in feet and hand and wrists.and now more symptoms that I have to go back to the orthopedic to see what's wrong with my elbow and shoulder. Also lumbar radiculopathy and cervical radiculopathy.

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Chronic Pain by Melanie R. #ChronicIllness #ChronicPain #RheumatoidArthritis #MitochondrialDisease #BackPain #MightyPoets #MightyMoment #TrigeminalNeuralgia

Chronic Pain

Through battles of despondency,
Rare chronic illness muckings.
Hear echoes of their laughing,
rub hands of their stalkings.

Stinging pain;
disasters.
A spiritual world war.
Meant to divide and conquer,
those standing by the sword.

My burden of my symptoms,-
it’s tortuous attacks.
They’re one behind the other;
My light seen,
Followed.
Tracked.

A ship in fog kept idled.
My engine just won’t start.
Reaching for my Bible-
as my body falls apart.

Can spirit separate from body?
to escape the suffering?
Crude hell of inflammation,
raging fire from within.

A rumbling embodiment;
endless lava burning–
proclastic hyperglow
emitted from my yearning.

Feel branded.
Tormented.
Hot pokers of this thorn,
attacking my body…
I lay here and I mourn.

Felt unclothed out in winter,
I shivered on my own.
I needed Him beside me,
to clothe me, bring me home!

A martyr full of valor,
burned alive for faith,
a yesteryear believer,
the blood runs through my veins.

Coursing and crying for justice in pain, Lamenting in writhing…
My tongue calls his name!

He heard me,
procured me,
Bottled my tears.
Filled me of healing,
replaced all my fears.

Cut open,
I’m slaying.
Filleting of flesh,
I share in His suffering,
soul-fired and blessed!

In cells of his captors
Paul sang of His songs,
The Word was his strength-
I sing all day long!

Have rhythm,
Give glory!
Mountains have moved!
My symphony of suffering,
sweet melody of truth!

#AutoimmuneImmunodeficiency #CheckInWithMe #InsideTheMighty #Bursitis #ComplexRegionalPainSyndrome #MightyTogether #BackPain #RheumatoidArthritis #MightyPoets #ChronicPain #MitochondrialDisease #Disability #Christians on the mighty

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My poor hips

My hips really hurt. I've got impingement, bursitis, osteoarthritis, and bone spurs on both sides. The mile I walked today did a number on my hips. I took 2 percocet and I am laying down. I already took my olanzapine. I should be feeling better by the time I fall asleep.

I just wish the surgeon would quit the ageism bullshit and fix my hips. If I'm not too young for pain then I shouldn't be too young for treatment.

My PCP is furious. He doesn't want to keep prescribing more opioids but it's the only thing that helps.

#CheckInWithMe

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remembering to be well

My story -

I grew up in the 80s/90s where being “double-jointed” was just a weird quirk/party trick. Well, the women on both sides of my family were affected pretty hard by the hypermobility.

I was 12 when I had my first ever dislocation (and first signs of POTS). It was summer and my house was unairconditioned in Texas. I was helping my mom with dishes when I started to feel slightly dizzy, so I held onto the counter-top.

When I woke up after fainting, half of the dishes were broken on the floor around me, my mom was crying, trying to wake me up, and my elbow hurt. I was taken to my PCP, who had no idea what was wrong with me, but took xrays of my elbow and suggested that I drink more water.

And so, began my relationship with different doctors – specialists, primary care, whoever I needed to see, I would. But, besides being anemic, dizzy/prone to fainting, and hypermobile joints, no doctor had any clue what was going on with me.

Flash forward to age 28(no, really, 28), when I’m working for an established optometrist, he noted that I hyperextended my knees when I was standing tin place; he recommended that I see a rheumatologist/cardiologist because his wife and 2 children had vascular EDS(which if you know ANYTHING about EDS, you do not want vascular EDS).

So, I went to their specialists and was diagnosed with hEDS, POTS, Ankylosing Spondylitis, bursitis and inflammatory arthritis – after years (as in 10 years without any sort of diagnosis) of bloodwork, CT scans, MRIs, etc. My doctors then placed me on a host of medications, including a TNF inhibitor, which essentially made my immune system go bye bye – which my doctor elected to begin 2 weeks prior to the big shutdowns due to covid in March 2020.

When covid began, we had a host of friends that didn’t take things too seriously with restrictions, but understood that we(my partner and I) had to because of my new health findings. We didn’t have to worry about going to the stores because of grocery delivery options and restaurant delivery and our friends at that time would also bring by dinners, etc, since we couldn’t go out. But, empathy fatigue is real. After about 2 months, our “friends” started going back out again(Texas did not take covid seriously, at all) and we were kind of left behind.

I still have no immune system, cannot go to concerts, clubs, etc – which is starting to weigh heavily on my partner, who loves interacting with other humans. But those "friends" are all gone now and the loneliness of

My life looks completely different than I thought it would at this point in my life – I was an avid roller coaster enthusiast, but I know that this part of my life is behind me, along with most exercise, and my sex life (what sex life?!) – but I’m pushing through and trying to make the best of my life as it stands right now.#AnkylosingSpondylitis #Bursitis #ChronicPain #Depression #EhlersDanlos #JointHypermobilitySyndrome

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Grieving for myself #Fibromyalgia

I am just trying to figure out where I'm going to go from here. I am so angry at the fibromyalgia that's all of a sudden in my life I just got the diagnosis a year ago and it was a 10-year battle to get that and it is really really hurt my life because I cannot exercise very much because on top of the fibromyalgia I have some massive arthritis and that makes it impossible for me to do the normal things I used to do and I just want the old me back but I know I can never be okay again because I will always have fibro in my life and it's so sucks. I just want to have one day where I don't hurt. The rheumatologist found major issues with arthritis on top of fibromyalgia. I have arthritis in every bone of my body the joint and my shoulder my right shoulder is being destroyed by tendonitis bursitis and arthritis so I just I'm here in name only physically I'm not here and mentally I'm starting to be but I'm not quite where I need to be at

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Living with Lupus

Hi! I am new here, but I am not new to chronic illness or Lupus. I was diagnosed with Lupus in 2018 after having a DVT in my leg which broke apart and formed 2 PEs in my lung. During the hospitalization, my doctors discovered that I have the Lupus anticoagulant. I was referred to the Duke University Lupus Clinic because of my extremely complicated myriad health issues. I found a rheumatologist whom I absolutely love there! She is very knowledgeable, supportive, and extremely caring.

At Duke, they usually don't put "Lupus" as a medical diagnosis. My actual diagnosis from their clinic is "unspecified connective tissue disorder." I asked why they did this, and she said that insurance companies cover more tests, medications, referrals, and procedures with this diagnosis than with a Lupus diagnosis. Who knew!

Over the last 5 years, I have had a labral tear (twice) in the left hip (once before and once after surgery to repair it), 2 sections of AVN in the same hip which led to a full hip replacement at the age of 40, atherosclerosis, renal artery stenosis, chronic bursitis and tendonitis in the same hip, both osteo and rheumatoid arthritis (hand, both SI joints, left hip), cataract in my left eye, Sjogren's Syndrome, hypothyroidism (most likely Hashimoto's), oral and nasal sores, anemia, depression, chronic pain syndrome, pleurisy which led to the beginnings of Shrinking Lung syndrome, protein and blood in my urine, a malar rash, a horrible rash after sun and heat exposure, chronic daily migraine, a positive ANA, deconstruction of vaginal architecture, overactive Bladder, chronic fatigue syndrome, Fibromyalgia, tons of chemical sensitivities, horrible anaphylactic allergies, and IBS-C. I also just found out that my cholesterol is high even though I have been vegetarian for 16 years.

I have been steadily gaining weight for the last year due to depression. So, in February, I was given the go-ahead to start a vegan diet. I was horribly sick from digestive issues and a tyramine-induced migraine for the next 3 weeks. Then in March, I realized that I was in the throws of a stress-induced Lupus flare. I am lucky that this is the first complete flare I have had. I have had infection after infection (UTI, systemic yeast infection, bacterial infection --all several times), clinical Exhaustion, increased pain and inflammation, and a constant rash. I am too tired to prep my vegan meals, so I am indulging in DoorDash a lot more than I should. In an attempt to regain control over my flare, I decided to start a chronic illness health journal. Hopefully, I can predict (or at least recognize) when a flare is imminent.

I really hope that I can help others navigate this process and offer support to those living with Lupus.

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A tale of 2 hips

Both my hips are really messed up. I've got #Bursitis , #Osteoarthritis , bone spurs in the joints, and #hipimpingement all on both sides. The surgeon won't do anything for me because he says that I'm too young. So the only relief I get is from Percocet and rest.
My PCP decided to go ahead and do cortisone injections on both sides since the surgeon is not helping me. I'm having it done tomorrow. He did injections in November but it only lasted 3 weeks. We figure might as well try again.

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I'm new here

I'm here to find hope and positivity on my worst days. I suffered with un-diagnosed fibromyalgia for years. Got diagnosed 10 or so years ago. Still deal with unbelieving health professionals. I've had back pain for 30 years and chronic hip bursitis for 15 years. I was over 60 when I had a 3 level lumbar fusion and more three years ago. Still suffering from the effects of 3 months of bed-rest at no more than 30 degrees. Got the okay to get out of bed. Then Covid lock-down so no PT. A car crash two years ago that herniated discs in my neck, re-injured my back and more. Had right shoulder surgery then left shoulder surgery. Then pneumonia last Thanksgiving. Still short of breath. I also have eye and digestive issues and chronic migraines.

Most of the time, I concentrate on the good things like the fact that I am independently mobile (even if I can't walk far), I can see with glasses, have good friends and an amazing husband. But I do have days were I just wonder why I survived that car crash. Days like today where the pain is unrelenting even with opioids. Members of the Mighty are so encouraging to each other and if my story helps someone feel better about their pain, we all will benefit.

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