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    I’m new here!

    Hi, my name is Gollygosh. I'm here because I’ve had severe pain in my left hip and QL muscle that has sent me to emergency twice but I’m yet to find a cause or solution.

    #MightyTogether #MyofascialPainSyndrome #Bursitis


    I’m new here!

    Hi, my name is uniqcaprcn. I want to connect with people so they know they are not alone, and pass along tricks and trades I use and research as well as been though myself.

    #MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #ehlers-DanlosSyndrome #ChronicIllness #Bursitis #MentalHealth #ChronicInflammatoryResponseSyndrome


    Anyone got tips for dealing with hip bursitis?

    I’m 27 and my first big flare up of bursitis in my right hip started four days ago. I’ve been dealing with relatively mild pain from it for a while now (relatively mild compared to my other chronic pain— my good days for my general everyday pain are a 5/10 on the pain scale) but on Friday I woke up from a really deep sleep and if I wasn’t so used to pain, I would have screamed it hurt so much to even minutely shift anything connected to my hip, nevermind turn over or stand up. I haven’t felt that level of pain since I woke up from an osteotomy surgery on both feet before they had the chance to start me on a morphine we drip or anything.
    It’s been four days now, and it continues to hurt more than anything other than that surgery experience. I am someone who is used to pain: they can’t use x-rays to diagnose broken or fractured metatarsal bones anymore because the bones are just litered in old breaks, I’ve got pretty major muscle degeneration all in my legs, meaning those muscles are quite weak and painful to use, along with my neurological system going haywire and leading to a lot of neuropathic pain, the tendons in most of my major joints are messed up and painful…
    All this to say, I’m used to pain. I’ve been in pain since I was 8 years old, in disabling levels of pain since I was 15 or so. I’m used to it. I don’t cry from pain any longer, sometimes because I’m frustrated with my body and the pain it’s in, but not from the pain itself, you know? This pain has brought tears to my eyes, just because of how much it hurts.
    I’ve been icing it a lot, been taking ibuprofen, tried doing some of the stretches I looked up online but it just hurts too much. Sometimes it’ll give me some relief while I’m doing it, but ten minutes after I’m done the pain will be back even worse than before. All I can do is lie in my bed. Please, if anyone has any suggestions, let me know. Also, I’m Canadian, so if this is a “go see your GP or whatever other doctor” situation, just say that, I’m lucky that my place of birth gives me the luxury of not worrying if I can afford healthcare


    Feeling overwhelmed and fragile.

    Hello, I am new here, and happened to find the link to this group when I need it most.

    I have been suffering for years with on and off pain in different parts of my body. Going back 16 years, I had Achilles tendonitis in both feet for around 2 years. I had medication, Sulfasalazine for around 2 years and then the condition just seemed to go away. In the years that followed, I had lower back pain, and pain in my upper back and my shoulders which were just treated with physiotherapy. Added to this, I had chronic bursitis in both shoulders, chronic insomnia, headaches, also IBS. I have recently got diagnosed with fibromyalgia, mild ankylosing spondylitis, long term bowel inflammation, and I heard that my Achilles tendonitis is here for the long term, and my heal spur is here to stay. On top of all that I was diagnosed with BPD, anxiety, and depression. My doctor has not taken me seriously for the past 12 months and told me all my physical problems are between my ears and connected to my BPD. The mental health unit fired me because I could not submit to the 12 months of DBT they were offering. My new mental health worker is sure I have ADHD, I’m now going through the steps for a diagnosis, I always worked full time, but for the past 10 months, I have been working just half time. My company now want to reduce my salary for the hours that I am sick and want to assess if I am capable of ever returning to my work full time. If not, they can reduce my contract to half-time, and then I will have to be assessed by the disability service to see if I am sick enough to get disability payments, to help top up my half-time salary. It will be harder living on less income, but I know I cannot work more than 3 to 4 hours a day. The pain is just too much. The worry that the disability payments department will not accept me is making me worry and my overall condition worse. Sorry for going on for so long, but this has all just come to a head. On and off I get suicidal tendencies, when I think something bad is going to happen, or when the pain gets too much or when I feel no one is taking my pain and depression seriously. I was on feverin for the depression, but after 2 years, I felt it was just not helping me at all. I went to my doctor ( a different doctor in the same practice) I asked her for something different for the pain because the naproxen and paracetamol don't help at all. I told her that I was having suicidal feelings. She has taken me seriously and will contact my mental health worker, and look into other pain medication. I am just so petrified that I will not be granted disability for the hours that I don't work.

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    Just to introduce myself. I am a coloured pencil artist. I mainly draw nature. I’m also disabled. With a host of physical and some MH disabilities.

    This is my Crimson Sunbird picture #Nature #Art #colouredpencils

    #GiantCellArteritis #cerebralaterialvenousmalformation #Bipolar #Fibro #Osteoporosis #spondylitis #disbetes #IgAdeficiency #cognitiveimpairment #IBS #Asthma #COPD #ChronicPain #Bursitis #spinalwedgefractures

    If I didn’t have my art I’d be lost! I’m mainly housebound and my art is my lifeline!

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    The Vows you make #forbetterorworse #insicknessandinhealth

    When my husband and I married 9 years ago we took those vows without hesitation and with joy. He had full knowledge of my fibromyalgia and degenerative disc disease but at that time I was still functioning pretty well on a daily basis. Since then I have had both shoulders repaired TWICE! I had two torn tendons repaired in my right hip and all the bursitis cleaned out of it and could not walk for 3 weeks. I had 2 back surgeries, first for a spinal pain stimulator implant and then two titanium spacers at L3/4 and L4/5. Next month I will have another back surgery to replace the old stimulator. The icing on the cake is I have ADVANCED DRY MACULAR DEGENERATION which means I am basically leagaly blind. I’m no longer allowed to drive in my state. My point is while I think my husband fully meant his vows on that day 9 short years ago I think his patience is wearing thin. Now we have been through health scares with him too. He went through a cancer scare last year and treatment but Praise God he is all clear! It just seems like evertime I open my mouth he snaps at me lately. We really have NO INTIMACY anymore and while I THINK he loves me I’ve just really started to question if he LIKES me or likes being around me. I feel like I’ve become an obligation and a burden.
    I have ABSOLUTELY NO ONE TO TALK TO!#solonley

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    Advice needed after rheumatology evaluation please

    Ten months after first asking my primary doctor for a rheumatology referral, I finally had an appointment with one yesterday. It didn’t go as well as I had hoped. I have a lot of different symptoms and pain in every area of my body. I have seen a neurologist, gastroenterologist, and orthopedist. I do have tendon tears that are causing pain, but it doesn’t account for most of my symptoms. My ortho and physical therapist think there might be a systemic tendon issue. My doctors ruled out many things with lots of tests. They only want to cover up symptoms, so I was persistent for an answer and finally got a referral to a rheumatologist. Unfortunately, he was pretty dismissive. He said he read my medical records from my primary care, he asked me questions, and he gave me a physical exam. He asked if I had a prostate exam (I am a transgender man) and didn’t know most of my current diagnoses. I also realized later that he didn’t ask me about my cognitive symptoms or check anything but the areas I already know there are tears and push on a few of my vertebrae. I asked about pain management because I am allergic to corn and derivatives which are in most pharmaceuticals. He didn’t know anything about compounding medications or herbal supplements. He recommended physical therapy and to “figure out what works for you.” At the end of the appointment he said he was ordering 4 blood tests. Repeating the 2 inflammatory markers my doctor has tested a few times and were normal, a different RA test, and one to check for muscle degeneration. He said that if those come back normal than I don’t need to follow up with him. He said to follow up with my ortho because my pain is likely due to injuries and micro traumas. And to see an endocrinologist, even though I already had a lot of hormones checked with my primary and doctor who prescribes my testosterone. And to continue with the heart monitor I’m wearing this week and the cardiologist because I could have postural tachycardia. I was nervous and felt pressured to say that plan was fine.

    I got the blood work results via the lab’s app today and they were all normal. I am so upset. The doctor said someone would call me with the results. I am not a doctor, but I know there are other tests, blood and otherwise, that can be done to further investigate my symptoms. I’ve been researching my symptoms and connective tissue diseases for over a year. I feel like most medical professionals don’t care enough to dig deep into what’s going on and just pass me off to others or give me meds for symptoms.

    I don’t know what to do. Do I tell the person who calls from the doctor’s that I want to follow up anyway and ask the rheumatologist for more testing? Do I go back to the ortho and have him check all of my joints, back, neck, hands and feet? Do I ask my primary for another referral to a different rheumatologist, when she didn’t even want to refer me in the first place? The original referral said “low suspicion of rheumatic cause, patient requested eval.” I don’t know.

    I am just so exhausted, feel defeated, and want to give up.

    #Undiagnosed #ChronicPain #ChronicIllness #CPTSD #Depression #GeneralizedAnxietyDisorder #Anxiety #ObsessiveCompulsiveDisorder #AvoidantPersonalityDisorder #SuicidalIdeation #CarpalTunnelSyndrome #TriggerFinger #Bursitis #Tendinitis #rotatorcufftears #labraltears #sciatica #Migraine #IrritableBowelSyndromeIBS #SleepApnea #Asthma #GastroesophagealRefluxDisease #Allergies #Folliculitis

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    Life’s Like That! #Leukaemia #AterialvenousMalformation #GiantCellArteritis #ChronicPain #Isolation #heartbreak

    My niece died last Monday night. She had been fighting Leukaemia. One minute she seemed to be okay. The next, on end of life care! And boom! She is dead! It happened so quickly in the end!
    I am a coloured pencil artist. When her brother, my nephew died, I drew! I kinda zoned out and was drawing and listening to music. I can’t draw at the moment. I have been diagnosed with bursitis in my right shoulder. I have to rest it or I’ll make it worse!
    I want to support my sister, brother in law, my surviving niece, my deceased nieces husband and children! My sisters grandkids! I can’t even support myself!!
    I have several disabilities and disorders. They’ve been coming thick and fast since I turned forty! I spend most of my time drawing. I have no friends. They all disappeared when I was diagnosed with bipolar! Fairweathered friends! That’s all they turned out to be in the end! I just feel so alone!
    I thought I’d show you some of my artwork. After depressing everyone with my post. I thought I’d put something uplifting on! My niece liked my art. She didn’t say a lot. She was very much like her dad in that respect! 🫶


    I'm new here!

    Hi, my name is awerekitten. I’m new to The Mighty and look forward to sharing my story.







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    Hello Everryboddy ! ( I'm saying hello in my best Grover voice. ...a blue fur covered muppet from Sesame Street kid's program. )

    I was told that I should come and say hello. My name is Tavia, short version of Octavia. I am married. I live in bed ( if you can call that living..) due to the pain of several chronic pain conditions /injuries from a serious car accident I was in 23 years ago. I am now in my 50s. I deal with a lot of loneliness and isolation and some depression about losing my life and most of the people I cared about to an existence in pain.

    #EhlersDanlosSyndrome #Fibromyalgia #AnkylosingSpondylitis #SpinalStenosis #ChronicMigraines #sciatica #Bursitis #Nervedamage #cervicalfusion #cervicaldiscectomy #spinalbonespurs #Hypothyroidism #PeripheralNeuropathy #numbness #Insomnia