Chronic Active Epstein-Barr Virus

I talked with my Psychiatrist today. He commented that when I feel trapped is when I get most anxious and depressed. This rings true to me. My most significant trigger is my fatigue. I think I have CFS/ME, I’ve had the collection of symptoms. I was once diagnosed with reactivated Epstein-Barr virus. Now I am mostly affected by post-exertional malaise. And when I do too much I get angry and feel trapped because I can’t do the things I want. This was especially bad when I first got sick. Any little bit of exertion could put me in bed for days. I’ve been very lucky that it hasn’t been worse. All of this leads back to my childhood trauma and whether my response is something I learned then. It could be. I remember feeling I shouldn’t do anything to upset my mother. My psychiatrist wants me to see a therapist. I’ve never had good luck with them. Maybe now I can talk about my feelings better than I used to be able to.

#PTSD #BipolarDepression #MyalgicEncephalomyelitis #ChronicFatigue #ChronicActiveEpsteinBarrVirus

Hi, my name is Fernando. Sorry long post incoming. I am here because i really am in need of support🙁. Last week i got diagnosed with reactivated EBV . 3 years ago i also had Epstein bar virus. I was really sick and never recovered. I got depressed, had chronic fatigue , was constantly ill with flu like symptoms.

These years were super traumatizing for me and it felt i never would get my life back. After 3 years i felt that with time i was recovered for 70%. I felt hope which i once 100% lost. But last month i felt nonstop like i had the flu. So i did a bloodtest and reactivated EBV was the result.

I feel so tired and drained. And guys honestly i am so traumatised by the last couple of years that it feels my worst nightmare is becoming reality right now. I am so incredible scared with the reactived EBV diagnosis and i feel so lonely and helpless as nobody of my friends understand and the doctor doesnt take it seriously. That i am in a nonstop anxiety fear mode right now. It feels like being healthy is just not for me. I really hope i can find support and positivity on this forum. Looking forward to read and talk!i also dont want to do this journey alone anymore. If anybody has any advice in healthcare practisioners who can help with online coaching pls let me know.cheers, Fernando

#MightyTogether #ChronicActiveEpsteinBarrVirus #ChronicFatigueSyndrome

Hi, my name is karina, new here but looking for community to connect with - been struggling with chronic mono for 10 years and very heavily this year. Didn’t know it was the same EBV I had in high school until causing me many different sicknesses (mono, strep, tonsillitis, viral infections) until this year so I’m finally wrapping my head around having a chronic illness. Have had mono 4 times this year and it’s been very hard mentally & physically. Also living with chronic back pain with no sign of any answer why yet for almost 4 years. Lots of love to all those in a similar boat, or any boat at all!

#MightyTogether #ChronicMono #ChronicPain #mononucleosis #EBV #ChronicEpsteinBarrVirus #ChronicActiveEpsteinBarrVirus

I am new to the Mighty and am on here to connect with others with disabilities or diseases. I am dying from CAEBV #RareDiseases

Hi, my name is MissMarie63. I'm here because

#MightyTogether #ChronicActiveEpsteinBarrVirus #Dysautonomia #ChronicIllness #FamilialPeriodicParalyses #Depression

Hi, my name is zeontomus. I'm here because

Why dont you have MECFS or Chronic fatigue syndrome as a condition. Might as well add LongCovid as well as it is another chronic ocndition
#MightyTogether #ChronicActiveEpsteinBarrVirus

Hi, my name is qreq. I'm here because

#MightyTogether #ChronicActiveEpsteinBarrVirus

Hi, my name is DTaft. I'm here because I am living with Long Covid and Chronic Active EBV and CFS

#MightyTogether #ChronicActiveEpsteinBarrVirus

Hi, my name is CEatherly. I'm here because I'm interested in finding community.

#MightyTogether #Anxiety #Depression #ehlers-DanlosSyndrome #ChronicLymeDisease #chronicactiveepstein-BarrVirus #PTSD #Migraine