Chronic Epstein-Barr Virus

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Chronic Epstein-Barr Virus
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    You can see this group is about anything. I wish it wasn't! I didn't put Childbirth, as I don't think it applies! lol. But one thing is...you can't get well or better if your doctor doesn't understand. You know that! Don't be afraid to search for one who does! I AM NOT A DOCTOR, but I've been in the medical field 20 years before disability. I've never stopped. Advocacy because of my love. While I am weary and have shut down many sites, I love Mighty so here I am.

    If you have questions, I beg you to be as specific as your comfort level allows. (regarding the relationships) There are ways to make your visits rewarding and helpful for getting better. I can attest to this. I've lived through things that are a bit shocking, but having the right doctors and mind set, is what saved my life. I am recovering from something now, so thanks for your patience.

    Something we have known for a long time, but it's not spoken about. Again, I do not "bash", but I urge you to go with your gut. Harvard found (as if it was new) the 3rd leading cause of death. And many believe it is higher, as most are unreported. This is not to scare, but to inform you in all honesty, you must be involved in your care. Trust, transparency etc... is a must. I will do a video to show what is needed for doctor visits at another time. Please, it's your life, and make it worth getting better!

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    New #EpsteinbarrVirus diagnosis. Help!

    So I've just gotten my #EBV results and the Dr didn't call to explain. I've scoured the internet but hoping my fellow spoonies can give me some insight with your experiences. I don't seem to fit the symptoms for #ChronicEpsteinBarrVirus so not really sure how this plays into my #Fibro issues.

    EBV Viral Capsid AG IGM <36 (neg)="" ebv="" viral="" capsid="" ag="" igg="">750 (pos)
    EBV Nuclear AG EBNA IGG >600 (pos)

    I also have #Fibromyalgia . Tested neg for Lyme. Neg for ANA 7 years ago. Positive for HLA B27.

    Secondary, I feel like my 7 year old just isn't right. He has low IGA and IGB #s so he gets sick a lot. He struggles with some fatigue and still needs a 2 hour nap every day on top of a full night's sleep. All bloodwork normal. Should I test him for EBV?

    Thanks in advance!

    3 people are talking about this