cerebral

Hi, my name is anoushka8. I'm here for support and to share my story with you

#Ce#MightyTogether #cerebral atrophy #CE rebellarataxia

I don't know what this is. I mean, I do but...well, the thing is, I hate my life. There's nothing new, nothing adventurous - just so-called "real life" - and I hate "real life"!

All I really do is wake up in pain, shower (when I can), get dressed, walk down the street to the restaurant I have breakfast in (I hate eating in my apartment- hate it!), am overwhelmed with more pain, walk back up the street trying not to fall on my face because of my balance (I have mild cerebral palsy) and am in pain. Sounds boring, doesn't it? It is! Although, I will say...I get the feeling that I'm losing my train of thought with all of this. Trying to get it all done so everyone's happy, everything's in place, being wherever everyone else wants me. When is anyone going to do that for me? My answer would be - never!

I'm a loner. Always have been, always will be. I enjoy being alone - I'm much more relaxed when I'm alone. So why do people insist on bothering me? I'm also a bit of a misanthrope. I don't hate anyone, I just want to be left alone!

What does this have to do with anything? All that I've written above, except the bits about being a loner and misanthrope causes pain. Throbbing pain. The kind of pain where I have to lay down and wait until the pain passes.

I feel like I'm wasting my life. Who am I kidding? I AM wasting my life, doing nothing for myself and everything for everyone else. It causes pain, my friends, pain! I'm dreading going back to the apartment and reading a book and I like the book - well, sort of. I need to rethink everything, I believe. Where the hell did that come from? It's true, but...my mind wanders about - must be my ADHD.

Ah, well - I'll stop now. I could go on, but I've said enough for now. I'd like to continue this kind of post though, at some point. I don't know!

Two more things...
1) From the title, people are going to be reading this and be totally confused.
2) If you're wondering what I mean by being a loner, check out Robert Redford in the film "Jeremiah Johnson" (1972). I'm not looking to be a mountain man, but I think you'll get the idea. That's if you're interested.

You know something? I'm hungry for a roast beef sandwich! Hopefully, the Shipt order will be here soon! YIPPIE!

🌟 For the past 10 years, I have been honored and privileged to advocate for those with cerebral palsy 🌟

🌟 But as they say, all great things must come to an end at some point in our stories 🌟

After careful consideration, I have made the difficult decision to retire from the advocacy field of Cerebral Palsy. It is a bittersweet moment for me, as I have been so deeply committed to advocating for those affected by this condition over the past ten years. However, I believe that the time has come for me to take my advocacy efforts in a new direction.

📚 I have decided to shift my focus to advocating for literature and ending bans on books in public schools 📚

Throughout my career, I have had the privilege of connecting with so many incredible individuals who have shared their stories with me. However, I have come to realize that advocating for cerebral palsy has consumed most of my time and energies. While I will always be grateful for the experiences and relationships I have built, I believe that the time has come for me to explore new avenues where I can make a positive impact.

📖 I firmly believe in the power of books 📖

Books have the ability to open up new worlds, inspire thought, and challenge perspectives. They provide us with the opportunity to empathize with others, understand different cultures, and gain a deeper understanding of the world around us. Unfortunately, many public schools have implemented book bans that restrict students' access to various literary works. These bans are often based on personal opinions or beliefs rather than promoting intellectual curiosity and critical thinking.

📚 By advocating for literature and ending bans on books, I can make a difference 📚

It is my mission to ensure that all children have access to books that represent the experiences and voices of their peers. Books that challenge societal norms, encourage critical thinking, and promote empathy are essential for children's growth and development. By advocating for the inclusion and celebration of diverse literature in public schools, I hope that we can create a more open-minded and inclusive society for everyone.

🌟 Thank you for your support and for being a part of my advocacy journey 🌟

I want to express my deepest gratitude to each and every one of you who has been part of my advocacy journey. Whether you have been a supporter, , or simply someone who shared my story, I am truly grateful for your support. Your encouragement and belief in my work have been instrumental in my success.

🌟 As this chapter comes to an end, I am excited for what the future holds 🌟

While I am stepping away from advocacy in the field of Cerebral Palsy, I remain committed to making a difference in other areas. I want to continue using my voice to advocate for causes that I am passionate about, and I believe that advocating for literature and the freedom to read is a powerful way to do just that.

🌟 Thank you for joining me on this incredible journey 🌟

May we continue to support each other and fight for a world where everyone has equal opportunities to thrive and express themselves.

As we have entered summer I have found myself thinking of what summer meant for me as child. It meant sleeping in and freedom from school but it also meant only a week or two before it got too hot and my joints started to swell. It meant being incredibley hot in AFOs, trying to chase after my cousins who were running in the backyard. Or when I did finally catch them they were already on to the next destination, where I had to decide do I want to be in pain for the next few days or do I want to have fun now. Usually it just meant playing cards with my mom off to the side waiting for the summer birthday cake to arrive. I’m not saying I hate summer but they aren’t all that when your left watching the other kids. My parents always made sure to adapt things, so I wouldn’t be left out but after a while I learned it was easier to wait. Wait for when summer didn’t mean running around, hours in the pool but instead meant phone calls, travel, walks, and board games for everyone not just me. So, I am thinking about all the young kids with CP who may be feeling left out. If you’re a parent of a kid with a disability who is having similar expirences to what I just described please tell them: I’m sorry it really stinks. I wish thinks were easier but we don’t have to do the same thing as everyone else, we can adapt it or we can make our own summer. summer doesn’t have a rule book no matter what others say. Make summer your own, and in a few years more and more people will join you, settle into your summer instead. Happy summer!

¿ " Everytime I Work As A Cashier... My Wrist × Hand's Hurt... My Sciatica Start's Going... My Entire Body Is Alway's Screaming In Pain.. Everyone Just Think's That Now I Don't Want To Work... And Just Sit At Home And Collect Money ??? Like How Mean Can You Become.. Just Because I'm Not At Work To Pick Up Everyone's Extra Level Of Lazy Work Ethic... I'm Truly So Sick And Tired You.. Should All Read The Amount Of Complaining And Bad Service This Company Get's... And Somehow Me Taking Too Much Time Off... Is Effecting Thier Own Issue's With Having To Work Alittle More When Someone Else Is Out... It's Mind Blowning How These People AKA My Boss And Co-worker's Love To Yell At Me For Not Showing Up... I Do It 1 Day If I Really Don't Feel 100%.. And I Get In Hot Water For It.. I Work My A** Off... And Atleast Customer's See That.. And Appreciate What I Do.. Because They See That I Really Struggle With My #cerebral Palsy... Everytime I Get Off Work I Can't Use My Hand's I Drop Thing's Without Even Knowing Or Feeling It... My Hip's Give Me More Issue's... And Somehow I'm Unmotivated To Do My Task's And Job... And Get Yelled At... I'm Still Looking For Something Else But All I Keep Seeing Are Food Service Job's Only Hiring .. " ? #Anxiety 《 Skaoi Kvitravn 》

#cerebral palsy

° " It Was A Sort Of OK Work Day. I Worked With A New Assistant Manager... But I Got Yelled At By Him. Because The District Manager Called... Asking If I Sold Any Of "The New Crunch Pizza"... I Honestly Told Him No... Because These Manager's Don't Tell Us. When We Are Selling These New Food Item's... And He Made Me Feel Like I Was Lying To Him. At The End Of The Day. I Did Sell One Dumb Pizza Finally. But Customer's Are Not. Intrested. Maybe Later I Wish These People Weren't So Pushy... Like If You Don't Like The Way I Do Thing's... Then Train Someone Else To Your Liking... I'm An Empath I Feel Other People's Bad Energy All The Time. And It Affect's Me. My Boss Doesn't Seem To Understand That I Have #cerebral Palsy #Scoliosis ... I Have To Pace Myself I Will Pull Something.. Plus I Have A Broken Right Foot Lutterly Since Childhood.. So It Hurt's And My Muscle's Get Stretched Alot And I End Up Very Sore. Where The Next Morning... I Can't Get Myself Out Of Bed. My Pain Level Is At A 10 Sometime's 8... I Wish People Would Just Not Be So Ignorant... I Guess It's Profit's And Money... Over The Disabled Person... " × ▪︎ SKAOI KVITRAVN ▪︎ #Thought 's

° " My One Wish Is To Be Treated Like A Human Being... For People To Really Get To Know And Understand Me... And What I Can Bring To The Table... In Life.. Not To Shun Me Just Because #cerebral Palsy #Scoliosis #PTSD #Depression And More Are A Huge Part Of My Life... I'm Not Any Of My Physical × Mental Illnesses... "° ☆▪︎ SKADI KVITRAVN ▪︎☆ #Thought 's

× " My Main 2 Are Visable And Painful.. Being Born With #cerebral Palsy #Scoliosis . Are Costly To Maintain. And Now My Mental Health One's.. Are Draining.. Too At Work When My Male Co-worker's Pass By Me.. My Hypervigilence's Are Turned On... And I Get Jumpy And Have Panic Attack's.. I Don't Like Being Touched At All Anymore... So It's Going To Be Hard For Me To Form Any Kind Of A Romantic Relationship.. I Have Been Single 2 Year's.. And I Might Remain This Way Which Is A Bummer.. I Wish People To Understand Me.. Yes I Need To See A Therapist Eventually... But I Have Massive TRUST ISSUE'S.. And I Understand That One Day Some Guy Will End Up Loving Me For Me... But Right Now.. I'm At A Stand Offish Mode.. I Can't Let Someone In.. And With All Of These Viruse's... How Can Anyone Go On A Date... I'm Like At The Point Where That's Doesn't Matter To Me Anymore... I Love Being Single... Because I Don't Have To Worry About Someone Else.. And Stress Out.. My Last Realtionship Was Co-Dependant.. And I Wasn't Made A 1st Priority... I Felt Like A 3rd Wheel. I'm Happy To Have Experienced Being Married.. But It's Just Not For Me.. And Also I Physically Can't Have Anymore Kids.. It's To Dangerous For Me To Carry And Have One.. These Are My True Reason's.. Please Respect Them... " × Sincerly, ☆▪︎☆ S.K. ☆▪︎☆

#PituitaryTumors