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What's New in summer

Having a Disability & Summer #Summer #Childhood #Disability #cerebral palsy

As we have entered summer I have found myself thinking of what summer meant for me as child. It meant sleeping in and freedom from school but it also meant only a week or two before it got too hot and my joints started to swell. It meant being incredibley hot in AFOs, trying to chase after my cousins who were running in the backyard. Or when I did finally catch them they were already on to the next destination, where I had to decide do I want to be in pain for the next few days or do I want to have fun now. Usually it just meant playing cards with my mom off to the side waiting for the summer birthday cake to arrive. I’m not saying I hate summer but they aren’t all that when your left watching the other kids. My parents always made sure to adapt things, so I wouldn’t be left out but after a while I learned it was easier to wait. Wait for when summer didn’t mean running around, hours in the pool but instead meant phone calls, travel, walks, and board games for everyone not just me. So, I am thinking about all the young kids with CP who may be feeling left out. If you’re a parent of a kid with a disability who is having similar expirences to what I just described please tell them: I’m sorry it really stinks. I wish thinks were easier but we don’t have to do the same thing as everyone else, we can adapt it or we can make our own summer. summer doesn’t have a rule book no matter what others say. Make summer your own, and in a few years more and more people will join you, settle into your summer instead. Happy summer!

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What’s your “safe” summertime activity?

This summer, I am trying to do more than sit in my house and think about how to avoid pain. I want to go to the movies and eat good food. For some reason, this feels impossible to do every summer since I have been diagnosed. So, I am curious, what do you guys do in the summer as a “safe” activity, as in an activity that won’t cause you pain or discomfort? #Chronicpelvicpain #Summer

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Quick Tip Thursday: Be Mindful of Heat-related Complications

Diabetes can affect your body's ability to regulate temperature. Take precautions to avoid heat-related complications like heat stroke. Stay in shaded areas, use sunscreen, wear loose, breathable clothing, and wear a hat and sunglasses when outdoors.

#Diabetes #DiabetesType1 #DiabetesType2 #Diabetestype3 #lada #mody #prediabetes #GestationalDiabetes #JuvenileDiabetesType1 #ChronicIllness #AutoimmuneDisease #Lifestyle #TravelTips #Summer #Heat #Support #SupportGroups #MightyTogether

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Good Night God Bless You 💙✨💙✨💙

Is #Spring really around the corrner? Looking outside from the big dumb of #snow outside. I'M in doubt. This is March, so doesn't really mean #Summer is coming. Any weather can happen. This was a pretty boring weekend.

Never forget you are here for a reason ✨ There is a specific purpose and assignment for all the blessings and challenges your life holds. May we learn to recognize God’s hand in our life, not only during the challenging moments but in the ordinary and simple ones too.

“You make known to me the path of life, in your presence there is fullness of joy; at your right hand are pleasures forevermore.” Psalm 16:11

“The joy of the Lord is your strength” Nehemiah 8:10

Taking Root in Faith

“I have told you this so that my joy may be in you and that your joy may be complete.” John 15:11

#TheMighty #MightyTogether

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It Came and Went

We went from having #Summer temperatures to having #Autumn weather. I have been enjoying it. I know that the hurricane bringing in the cooler weather will not last forever, and eventually it may go back into the 80s, but hopefully we can hang on a little longer.

Living in #Florida is interesting. We live in Central Florida where there are theme parks and lots of places to visit. It is a great vacation location in the world. My husband works in the theme parks, as do many others in my family. Mostly Universal. I used to work there too. I sometimes miss it.

I just want to embrace the holiday season as much as I can, without my focus being on #presents this year. The #Holiday season is always amazing. The special #seasonal drinks are always so good too.. the ones from Dunkin and Starbucks. It's exciting.

Ugh. I am all over the place right now. But this is what's running through my mind.

Much Love!


No worker showed up!!! Today isn't a #Holidays

This is Friday and isn't a hoilday. Kids went to school and stores were open. #monday is #Thanksgiving in #Canada So my 2 days shouldn't effect me. But nope the group home takes the time off. They don't even to bother to call or message you to let you know. Not good. They just do whatever they want.

I think #Summer is gone now. It feels #Falls today.#TheMighty #MightyTogether

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Christmas 🎄⛄ in October 🎃👻

Here is a funny photo!
At Target 🎯 I was walking down the Halloween isle and behold at the next turn and all down this isle to the wall was Christmas! Strangely, there were still #Summer items hanging out. Has #Halloween become a part of #Christmas ? Ha!

Happy SummerHalloweenaChristmasatime!

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What is one thing that you love about summertime?

☀️Summertime shady decks/cool nighttimes☀️

Having fibro can make temperature control an issue. Too hot, too cold, most days I feel like a mixed bag between Princess and the Oea and Goldilocks. Everything ’bothers’ and temperatures need to be ’just right’.

I have always enjoyed the sun and It’s life giving properties. I have managed to get a little sun on my skin while out, and be out on my shady deck enjoying my flower pots. I have a thick foam cushion loveseat which has made sitting out there enjoyable. This summer there have been some cool rainbows also. Sharing from my deck;)

Having painsomnia, gets me up at 3 or 4 am. By then the temperature drops and it’s comfortable to be out, so I go sit on the deck to watch the night sky, and hang with the fruit bats that like to do flybys over my head.
#Fibromyalgia #Painsomnia #Summer #RAINBOWS #Joy #ChronicHeadaches