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    Shine Bright Like a Diamond

    #ChronicFatigue #Fatigue #fibromyalgiafatigue #exhaustion

    So on a personal note we flew high accomplished many things sent love out in many directions only to land on the couch and that’s IT. #crash #Drained #nap

    What IT all means is while we feel like we are getting better trying to do the things we use to do or remembering things that we could have done before diagnosis. We find ourselves in the cycle of #Updays #Downdays .

    This is incredibly frustrating and irritating to say the least. How does one do all the things one is supposed to do when they don’t have enough #Energy and suffer from #ChronicIlless ?

    Like seriously we have to be able to get through a week or two without being completely #overwhelmed .

    Ok like we have taken on some extra #Stress #Work #MentalHealth and sure some #Caregiving . But common like surly we can still get things done. #DoEverything right?…

    Wrong !!!

    This is the reminder that we are in this situation because you didn’t look after yourself #rest #Health #Breakes #timeOff #timeout .

    That’s right super hero you’re going to have to passé a bit better. Not everyday! Not every hour! Not every minute!

    So we are sorry! Please take time to say you are sorry for not looking after You!

    See while you would love to help and save the world… You forgot!

    You have to save you!

    IT is true and the year is ✨2022 IT is true.

    Please 🙏 be kind to you.

    Please 🙏 look after you.

    Please 🙏 take time for you.

    There is only one ☝️ you.

    Someone out there needs this so this is for U

    6 reactions 3 comments

    Post mastectomy #Surgery #Recovery #breast #Pain #exhaustion #Cancer

    I’d love to hear from others.
    I had a bilateral mastectomy with reconstruction on the first of the month
    I still have JP drains
    I still have a ton of pain
    I still have no appetite
    My intestines are still sore and bleeding
    I’m still so so weak
    Is this normal? What should I do


    Does anyone else get really emotional when they're unwell?

    I know that a lot of us feel unwell most of the time. That probably wasn't a very well phrased title. But what I mean is... Do you get easily upset when you have a cold/flu/infection?

    As an example, back in May I picked up a very nasty stomach bug (that my baby nephew ever-so-lovingly decided to share)... And for the entire day, I just kept breaking down into tears. For pretty much no reason. I don't know if it was frustration or if I'd just had enough... But I've noticed it happens every time I'm unwell.

    I've had a cold for about a week now (several COVID tests have come back negative, despite me being certain this isn't an ordinary cold), and I just keep breaking down at the drop of a hat. My sister brought me a slice of my favourite cake from my favourite bakery and I burst into tears. The level of emotion is crazy. I don't like crying even when I'm feeling okay, so when I suddenly start sobbing, I get angry at myself and then usually end up crying more... I keep wondering if it's simply exhaustion? I'm immuno-compromised, so what other people would call a mild illness, is usually something that knocks me off my feet.

    I'd just like to know if there's anyone else out there that's like this? And if you know of a way I could maybe minimise the tears? I feel so silly.

    #chronicillnesswarrior #ChronicPain #POTS #EDS #NAFLD #LiverDisease #Diabetes #InterstitialCystitis #cold #Flu #BPD #Migraines #IBS #exhaustion #tired #emotional #unwell #immunosuppressed


    I’m lost

    I cannot seem to come out of this depressive state. I’m at a loss as to what to do. I’m exhausted all the time and am having bad thoughts. I’m on edge all of the time and I hate myself for not being a better mother to my son. I can’t seem to do anything right anymore. Work is beyond stressful, my health issues have been so bad, and I’m fighting doctor’s avoidances . I’m just done. I’m in a bad place and I don’t know how to climb out. #Depression #exhaustion #badheadspace #imdone

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    Long covid/long hauler Twice? HELP

    I've suffered with long covid since March 2020. literally housebound. I was just beginning to get better after 2 years of hell , and bang! I caught the omicron ba.5 variant. Its been 3 weeks and i have a lot of my long covid symptoms back. I know it's early days but has anybody on here had long covid twice before? Im totally vax'd and boostered. Thank you in advance xxxx scared.

    #COVID #CoronaVirus #longcovid #longhauler #exhaustion #Fatigue #UK

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    Tired of Being Tired #exhaustion #tired #Depression #Christians #lonely #anxious #Anxiety #OCD #ADHD #Aspergers

    I’m so tired of being exhausted. I’m kind of in a limbo state as far as having my own place to live. I’m grateful to my parents for letting me rent from them. I just need to try to stretch my wings. I am so depressed and lonely 😞 day after day is the same. I’m so tired and depressed that so have a hard time even doing things I like to.

    I need #Prayer I want to function as an adult. I feel like a child trapped in a man’s body. I have so many things that have held back my ability to function as an adult. My processing speed is slower than most people, so I have to chew on information for a little bit. I still have embarrassing habits that aren’t sins just not age appropriate. I know my Aspergers has a hand in this. And I feel ashamed to even mention this here I feel so sub-human and like I don’t have a chance to live as an adult.

    I appreciate you all allowing me to get this off my chest. God bless you and thank you for listening and thank you for your prayers 🙏!


    I was thinking about how I want a do over of this year because I feel beaten down and mentally dead. But everything that’s happened this year has been outside of my control, and there isn’t much of anything that I can do change it. So even if the year does restart, everything that’s already happened will happen regardless. If a do over won’t fix or change anything, I at least just want some freaking peace, or a crumb of energy to keep going. #Stress #exhaustion #Burnout #CheckInWithMe

    1 comment

    #exhaustion #BorderlinePersonalityDisorder #Selfcare #enjoyment #PanicDisorder #EUPD #BorderlineStigma #Depression

    Anyone find that they just get no enjoyment out of the things they used to do?

    I used to love spending an hour In the bath, bath bombs, candles and music I struggle to stay in for 10 minutes and then can't manage jt any longer

    Anyone else found this or any tips how to get past this


    Does anybody else feel guilty for taking care of themselves?

    For the last few weeks or so I haven’t been feeling right. I’m constantly exhausted - not tired, I mean fully exhausted. Even blinking feels like it’s taking too much energy. I’ve had several migraines and stress headaches. I’ve been feeling sick a lot, and I’ve had frequent fevers. I did both a Lateral Flow test AND a PCR test for COVID and both were negative.

    I just feel incredibly run down. I’m barely able to sit up without feeling dizzy and/or fainting. So I’ve been lying in bed a lot, working on my writing skills or binge-watching TV shows. And I feel so guilty for it… My mum keeps seeing me struggle around the house and tells me to go to bed. So I have been. But I feel like I’m being so lazy and I hate it. Do any of you have any suggestions on how to not feel so bad about taking care of myself? I’d appreciate any tips and whatnot…

    #chronicillnesswarrior #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #POTS #EhlersDanlos #EDS #NAFLD #BPD #InterstitialCystitis #GERD #Diabetes #Migraines #exhaustion #Depression #Guilt