exhaustion

Well... back at Mayo clinic again. More tests and appointments. I'm sure this will have been another wasted trip. We shall see. #ChronicPain #exhaustion #invisibledisease

I have been feeling exhausted for a while. Despite wanting to sleep, it was never enough. I’ve been feeling a weaken feeling on my muscles. Ten days ago, went I went to my Pilates class, I wasn’t able to raise my legs and arms. Was in so much pain. I thought I was going through a fybro flare. Couldn’t do anything during the weekend. I had no energy. Then, I was able to be seen by my rheumatologist and after the tests, apart from the lupus antibody increase, there was absolutely nothing wrong with my tests. I was so embarrassed, ashamed. Started thinking that my doctors would say I am crazy. Then, today I was talking to my doctor about it and he told me that what I am having is exhaustion and burn out. The symptoms were the way my body was yelling at me to pace down. I know it’s a holistic approach, but that made complete sense. I’ve been doing so much, working so hard… maybe, I am indeed burned out. So, my question for you guys is the following: how do we cope with burn out and exhaustion?
I am starting to feel a bit stronger. My legs have strengthened and my arms are also slowly getting better. It still shakes like a jello, but is improving.

I've been completely exhausted and in pain for quite a while (not counting the chronic pain I have because of cerebral palsy, which is a life long thing). This situation has been going on for six months. I went to the doctor the other day and among other things she had me do a blood level concerning my seizure disorder meds. I got the phone call yesterday - it turns out that my Keppra levels were high, which causes at least exhaustion.

So now, I have to change up my med routine. I take Keppra, 100mg and 500mg twice a day (I also take Lamictal 150mg, but there's no problem there). What my doctor wants me to do is keep me taking Keppra 100mg, but instead of taking the 500mg, I'll take it differently - cut it in half at 250mg. I think it'll wind up being 500mg somehow, but things'll be different because I'm taking it at 250mg at a time. Luckily, all of the instructions will be on the bottle so I'll get it all straight - I have ADHD, so if the information wasn't on the bottle, I'd be in big trouble.

Now, the irony of this is that the Keppra may be making me exhausted, but at the same time I know by experience that any time I change my seizure meds for any reason, it takes me 10 days to 2 weeks to get the cobwebs out of my brain and used to the new dosage.

Ah, my life is so much fun! Reminder: develop a better attitude about life, ASAP! 😉

Oh yeah...about the pain not caused by having cerebral palsy - how am I going to get rid of that? I have no freaking idea!

I feel so exhausted and in pain. Again! I shouldn't really be surprised, because this a fact of life for me. But for the past six months it's been different and I can't figure it out. Is it the cerebral palsy? Could be. Is it my severe depression? Could be. Is it my anxiety? Could be. Is it the side effects from getting off of Cymbalta and Adderall? Could be. Is it an unbelievable amount of stress about being in Kansas? Could be. Is it all five mixed together? Could be. I don't know!

Yesterday, I went to my doctor's and had a conversation about all this. She said that she didn't know, either. Depression can cause exhaustion and pain, stress can too. She wants me to see a neurologist to get my Keppra (seizure med) levels, because if the levels are too high that can make me exhausted, too! She just doesn't know. (At least she was honest about it!).

The only thing I can think of to do is change my life - be more myself. How do I do that? Well, I could be more honest with myself and others, do the things I love to do and use what I have. It's the only plan I can come up with, so I'll start there. I'll simply have to work through my depression, exhaustion and pain to get things done - unless my intuition kicks in and wants me to do something else. I'm a big believer in following intuition - I just want to be more successful at it!

My doctor and I talked about something else that I'd love to tell you about, but that can keep for another time!

"If you would just exercise more, you wouldn't feel so tired". Are you freaking kidding me?! Remember when you had COVID and could barely walk to the bathroom and back to your bed without wanting to collapse into a puddle? THAT is how I feel after 2 minutes of exercise! Argh!!! #frustration #AutonomicDysfunction #HypermobilitySyndrome #cancersurvivor

¿ " Everytime I Work As A Cashier... My Wrist × Hand's Hurt... My Sciatica Start's Going... My Entire Body Is Alway's Screaming In Pain.. Everyone Just Think's That Now I Don't Want To Work... And Just Sit At Home And Collect Money ??? Like How Mean Can You Become.. Just Because I'm Not At Work To Pick Up Everyone's Extra Level Of Lazy Work Ethic... I'm Truly So Sick And Tired You.. Should All Read The Amount Of Complaining And Bad Service This Company Get's... And Somehow Me Taking Too Much Time Off... Is Effecting Thier Own Issue's With Having To Work Alittle More When Someone Else Is Out... It's Mind Blowning How These People AKA My Boss And Co-worker's Love To Yell At Me For Not Showing Up... I Do It 1 Day If I Really Don't Feel 100%.. And I Get In Hot Water For It.. I Work My A** Off... And Atleast Customer's See That.. And Appreciate What I Do.. Because They See That I Really Struggle With My #cerebral Palsy... Everytime I Get Off Work I Can't Use My Hand's I Drop Thing's Without Even Knowing Or Feeling It... My Hip's Give Me More Issue's... And Somehow I'm Unmotivated To Do My Task's And Job... And Get Yelled At... I'm Still Looking For Something Else But All I Keep Seeing Are Food Service Job's Only Hiring .. " ? #Anxiety 《 Skaoi Kvitravn 》