CF

I was always irritated by water, I just felt uncomfortable in it. I never realized how I was affected differently until my friend saw my palms and pointed out how wrinkly they were. I shrugged it off and told her I had showered. She pointed out that I showered hours ago. I didn’t realize typical raisin hands went away so quickly.
Aquagenic wrinkling of the palms and soles. That’s what my dermatologist said, not having much to share about the rare condition except I was told I may be a carrier for cistic fibrosis. That was scary. I decided that day I would probably adopt. Other than that I know nothing for certain.
I’ve done my own research on it. Found out it’s “commonly” called aquagenic keratoderma (AK). Found out it may be a salt imbalance which could be why I’m low on salt. It also has to do with sweat which could be why I started sweating at such a young age. Who knows. There’s not enough research yet.
I found a community on Facebook with others who have the same condition. We are all still so unsure about a lot of things about AK. But knowing someone else is going through what I am going through helps.

#AquagenicWrinkling #aquagenickeratoderma #Anxiety #cisticfibrosis #CF #Support #SupportGroups

I thought I’d be a cool adult now I find myself looking forward to ordering new compression socks!
#PosturalOrthostaticTachycardiaSyndrome #SpoonieFashion #Spoonie #potsielife #Potsie #potsiestrong #POTS #CF