Almost every time I eat, I have to rest for a long time afterward to recover. I haven't found it to be connected to what I'm eating, or how hard it is to make. It's likely just the amount of energy diverted to my stomach to break down the food, but I'm not sure. Does anyone else experience this? #ChronicFatigue #ME #CF
I was always irritated by water, I just felt uncomfortable in it. I never realized how I was affected differently until my friend saw my palms and pointed out how wrinkly they were. I shrugged it off and told her I had showered. She pointed out that I showered hours ago. I didn’t realize typical raisin hands went away so quickly.
Aquagenic wrinkling of the palms and soles. That’s what my dermatologist said, not having much to share about the rare condition except I was told I may be a carrier for cistic fibrosis. That was scary. I decided that day I would probably adopt. Other than that I know nothing for certain.
I’ve done my own research on it. Found out it’s “commonly” called aquagenic keratoderma (AK). Found out it may be a salt imbalance which could be why I’m low on salt. It also has to do with sweat which could be why I started sweating at such a young age. Who knows. There’s not enough research yet.
I found a community on Facebook with others who have the same condition. We are all still so unsure about a lot of things about AK. But knowing someone else is going through what I am going through helps.