Chiari Malformation

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Chiari Malformation
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I’m new here!

Hi, my name is RainbowBabz. In 2025, I was diagnosed with a chiari malformation after a near-syncope event in the shower. Since then, I have struggled with a whole body of symptoms, and have dealt with specialists and my employers not believing that the symptoms existed, let alone that they were at all related to my diagnosis. Now, only six months later, I am unemployed, homeless, and barely able to get out of bed some days. I plan to share some of my experiences as possible, and I look forward to speaking with others who have similar experiences!

#MightyTogether #Anxiety #Depression #AutismSpectrumDisorder #ADHD #Migraine #Dysautonomia #chiarimalformation #homeless #pots #fainting

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I’m new here!

Hi, my name is Shannoneve2. I've been diagnosed with hydrocephalus and have been shunted …. I also have Chiari malformation and have had decompression surgery X2 was curious about others patients in their fifties having to revisit Chiari’s due to failures or for lack of better wording….. “warranty” sticker has expired ???? Thank you in advance for any and all advice/experience.

#MightyTogether

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I'm new here!

Hi, my name is Tamarack53. I'm here because I like to talk with other people who understand my situation. I have been diagnosed with Chiari Malformation and Hydrocephalus along with Fibromyalgia. It has been over 20 years now since my diagnosis. It has been a very difficult ride for me, but I have made it. I keep on fighting. Just thought it would be nice to see if there are some others on this site I have yet to meet. Have a great day and NEVER GIVE UP!!!

#MightyTogether #Depression #Fibromyalgia #PTSD

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I'm new here!

Hi, my name is Mis4Me. I'm here because a friend with different issues shared this site, and it caught my Interest.

#MightyTogether #ChiariMalformation

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