Chronic Daily Headache

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😳What Said What?!😳

When you live with a chronic health condition or disability, especially if you’re a younger looking person, young adult, or an ambulatory wheelchair user, there’s a good chance that you will have been unfortunate enough to have experienced some negative & hurtful comments from people.
There’s the classic comments that people living with Invisible Disabilities will have heard, for example “You don’t look sick.” & “It’s all in your head.”
Then there’s the unfortunate comments that people living with Mental Health conditions such as Depression & Anxiety will have heard, for example “Cheer up.” & “Stop worrying about it.”
And if you’re an Ambulatory Wheelchair User? Wow! The looks alone can be upsetting! I’ve lost count of the number of times I’ve been met by judgemental looks from people when we park our car in a Disabled Parking Space (I am a valid Blue Badge/Disabled Parking Permit holder) because I “don’t look sick/disabled” when I’m sitting in a car. These looks soon change when these people see my wheelchair but by then I’ve already started feeling awkward, embarrassed & like I have done something wrong when all that’s really “wrong” is that I have a neurological disorder which causes debilitating symptoms. It may be a brief moment of prejudice but that is still a brief moment too long in my books. It’s so important that we continue to raise awareness of the various chronic conditions & disabilities because it’s only through making people more aware these issues that change can happen & hopefully people with disabilities & chronic illnesses won’t have to deal with such rude, inappropriate & often upsetting remarks. In the meantime, when we heard comments that are hurtful or prejudice looks, we need to do our best not to let these remarks cause us any further damage or embarrassment – which is something that I definitely still struggle with a lot.
Stay strong, stay Mighty & by the best ‘you’ that you can be!
🧡💙💜💝
#ChronicIllness #ChronicPain #MentalHealth #Anxiety #Arthritis #BackPain #ChronicFatigue #ChronicFatigueSyndrome #FunctionalNeurologicalDisorder #ChronicDailyHeadache #ChronicLungDisease #Disability #ChronicObstructivePulmonaryDisease #ComplexRegionalPainSyndrome #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #Lupus #Fibromyalgia #Grief #ADHD #AnorexiaNervosa #Endometriosis #MightyTogether #MightMinute

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“Listen to Your Body”

When you live with a chronic health condition there’s a good chance that you’ll have heard the phrase “Listen to your body” more than once. Which does sound a lot easier than it actually is because it’s not as easy to get your brain & body to agree!

#ChronicIllness #ChronicIllness #ChronicPain #FND #FunctionalNeurologicalDisorder #Arthritis #BackPain #ChronicFatigue #ChronicDailyHeadache #ChronicLungDisease #EhlersDanlosSyndrome #JointHypermobilitySyndrome #HypermobilitySyndrome #Fibromyalgia

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You Didn’t Ask for This

You didn’t ask for this, but you’re dealing with it nonetheless. Hang in there. Be kind to yourself. It isn’t your fault. There are struggles in life we have no control over.

#ChronicIllness #ChronicPain #ChronicFatigueSyndrome #ChronicDailyHeadache #Migraine

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I’m new here!

Hi, my name is Athenamjt. I just typed a long, boring story of my life living with multiple chronic, disabling illnesses and complications. Unfortunately, I hit the wrong button, and all of it disappeared. Now, I am too tired and depressed to start over. Welcome to the spoonieworld!

#MightyTogether #Anxiety #Depression #Fibromyalgia #Migraine #RheumatoidArthritis #Lupus #irritablebowelsyndrome(IBS) #ChronicPain #ChronicDailyHeadache #Arthritis

24 reactions 9 comments
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I'm New Here!

I am a 41 year old single mom of three amazing sons and a chronic illness warrior. I have been diagnosed with Small Fiber Neuropathy (SFN), Rheumatoid Arthritis(RA), Chronic Fatigue Syndrome, Irritable Bowel Syndrome (IBS), Reynard’s Disease, Hashimoto’s, Exocrine pancreatic insufficiency(EPI), chronic pain, migraines, and daily chronic headaches and anxiety. I have an upcoming appointment at the end of August to see a cardiologist as I have had two abnormal EKGs. #MightyTogether #HashimotosThyroiditis #SFN #RheumatoidArthritis #ChronicFatigue #ChronicDailyHeadache #ExocrinePancreaticInsufficiency #IrritableBowelSyndromeIBS #ChronicIllness #ChronicPain #Migraine #Anxiety

11 reactions 4 comments
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I’m new here!

Hi, my name is emiliabiskup. I'm here because I wish to meet people like me as being alone with this can be challenging!

#MightyTogether #Fibromyalgia #ChronicDailyHeadache

5 reactions 2 comments
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I’m new here!

Hi, my name is TheMom. I'm here because I feel seen by a strong and intelligent community who understands the challenges of chronic illness and/or pain.

#MightyTogether #Arthritis #MultipleEpiphysealDysplasia #SkeletalDysplasia #meniere'sDisease #ChronicDailyHeadache

10 reactions 8 comments
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I’m new here!

Hi, my name is MistyBlue. I'm here because I need to find out more info or managing, finding supports, advice for things like what type of travel insurance does everyone use when they have physical & mental health issues? I would like to be able to articulate my diagnosis correctly & so much more.
Ta.
#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #ADHD #ChronicIllness #ChronicDailyHeadache #ChronicInflammatoryResponseSyndrome #complexpost-traumaticStressDisorder #DissociativeFugue #DegenerativeDiscDisease #SuicidalThoughts #Suicide #PanicAttack #HereditaryBreastAndOvarianCancer #ManicEpisodes #OCD #DepersonalizationDisorder #DerealizationDisorder

1 reaction 1 comment