Chronic Fatigue

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The “Little Things” Are BIG!🌻

Hello, my loves!🥰 I went to Central Market a couple of days ago and purchased my favorite flowers, stargazer lilies! They smell sweet and vibrant, with a hint of soft perfume and an unearthly depth, range, and dimension. The stargazer lily’s vibrant, pink accents, on its soft, white canvas bring life into my space and embody such grace and sophistication.

Their soft, bold, sensual fragrance fibrates throughout my space and fills my entire room, which brings me so much joy and peace. And although these $10 flowers from a grocery store were just a “little” thing, it will continue to share its beauty and fragrance with me throughout the week. And THAT’S a big thing!

Let’s embrace those little things that happen in our lives daily and extract the joy and meaning that they can bring! Love, Wendy🌸💗

What is a “Little Thing” in your life that brings your heart joy?!😍 #ChronicFatigue #ChronicFatigueSyndrome #ChronicEpsteinBarrVirus #Fibromyalgia #MentalHealth #Depression #MultipleChemicalSensitivity

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A very busy week indeed. 🙎‍♀️🤦‍♀️🙋‍♀️ # #Fibromyalgia #ChronicFatigue #Anxiety

Oh yes you can I was a busy bee this week September 15-21. Sometimes different days have more appointments than others. This is how all went for the week which is now ending.

Monday: I did some washing and prepared for the meeting which went ahead in the afternoon. I'm a part of a group, we are making final prepartion for a event wr are planning. More about the event later.
Tuesday: Went to a Health course ( learning about nutrition and what the many names of artifical sugar are), then later in the morning to the gym. Came back home about 3 o'clock and had my afternoon Earl Grey Tea and something to eat. In the evening I went out to dinner with 3 collage girlfriends to a place called Kol in downtown Reykjavík. The food was super good and also the company; we caught up what has happen in each others life's since spring and laughed a lot.
Wednesday: This day was a little bit easier than the 2 before. I went to the dentist at half past 1 and was supposed to meet a group of people at 3 o'clock. In the end it was just me and another girl, we are good friends and had some Tea and cakes. I gave her a lift home (she lives about 5 min. drive from my home) and on the way to her place we did bought groceries.
Thursday: Finally today I met my sister and her 4 Golden Retrievers. 🥰🥰🥰🥰 I went to her place after a course in Learning Methods to Reduce Stress, she and I and the dogs really just chilled together. This was good for me in every way.
Friday: At 11 o'clock I was supposed to meet a psyhcatrist but I OVER SLEPT! 🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️ Instead of panicing I Rang right away and got new appointment with the psyhcatrist (I woke up at 11:05). Later in the day I went to recycle bottles and cans (for drinking use) and got 3.000.- IKR for them in refund. 🙂🙂🙂 Then I went to the gym and back home about 17:15 and had something to eat. At 19:30 in the evening I met up with kids from High School, it's been 40 years since we gratuted from Ölduselsskóli in May 1985 in the year got to be 16 years old. In Iceland the shcool is compulsery from the ages 6-16, after that you can chhose to go working or to some different schools. I am Facebook friends with many of them and we also have group there. It WAS SO MUCH FUN meeting up with them, some I haven't met in 10 years (since the last reunion), some in 20-30 years and some I have meet the last 3 years out and about. The food was delicious, sodas and people came with their own alcohol. Maybe because we are all old and wiser now, nobody got too drunk (believe you me I would have got much sooner home if that's were the case) and just enjoying getting together, talking, remembering old times and catching up. I got home at 00:30 after a great night. 🎉🎉🎉
Saturday: I went to the dentist for a tooth repair at 13:15 and got back around 3 o'clock, buying some groceries on the way home. Relaxed for the rest of the day.
Sunday: Today I sent 12 emails for the event I am planing with others, for the rest of the day I relaxed and took a nap. 👩‍💻🛏🫖🎂💞

Sorry for the very long post people. This week was not normal regarding events and other things. Hope you all have as a good week as you can. REMEMBER!! We are The Mighty.

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I am just too tired! #ChronicFatigue #Depression #AutismSpectrumDisorder #Anxiety

I'm so tired. Beyond exhausted.
There's just too much, I don't really feel like fighting for much. Let's be real, global politics are just overwhelming at this point, every day a new battery of bad news, even with small victories like recently in my country, I feel we're still losing the battle.
And that's not just what is affecting me but mostly it's thanks to that... I see friends suffering because of it and I feel for them. I can't expect a future anymore... I remember as a teen almost getting into adulthood I was like "I'm sure adult life sucks", but I wasn't expecting it to suck so much! I am only being able to live because I got some family support, because the government aid is too low for a person to live with. But part of this family support comes with a cost, comes with power over me and that means abusive behaviour that I just have to accept quietly with my head low.
Being disabled makes everything even worse, I can't get a job due to prejudice, I work my butt off to be qualified for stuff, but this work never seems enough. Because in the eyes of others I'm useless, I'm a burden, I'm an extra cost to consider. So I'm going through university just to get a piece of paper that says I am able to do computer stuff when many programmers get the job because they learn by themselves. And at the university I don't actively learn to code, I learn by myself, but I don't have the right for credibility it seems. I'm so tired.
Recently my biggest source of drainage is thinking how I'm living in this messed world and I'm just beginning my youth to a very clear possible war scenery in the world. It's not only depressing, but at the same time it gives me low expectations on getting my degree and starting to stabilise my life. I feel stuck.
Not only that but there's all this pressure for learning to do stuff, while taking care of my home, and then getting second degree obese and now needing to lose weight. I wasn't very worried because of spite, I don't like fatphobic comments so everty time someone commented on my weight I would make less and less effort for losing some. But now I'm already hating myself, I'm already with thoughts of stopping eating for good... But at the same time I'm so tired, I have so much in mind that I just want to starve myself until I lose the hunger sensibility, I want to eat, and not compulsively, but I just don't want to feel hungry. I don't feel the energy to do physical activities even more now that here's going to summer time and I suffer a lot with allergies caused by excessive heat... So I just don't know how to make a 180° and get a hold on things.
Adult life suck, bills suck, family is abusive, social relationships are depleated because now we're all cranky adults that have no time, hunger also sucks, and global politics don't give a break, I'm too much overwhelmed and it's not only me, but a lot of people are considering that a new war is no matter of if, but when. There's so much more affecting me right now, but I'm too tired to go through my line of thought. I honestly want a escape route from my life, I want to scream, I feel like hurting myself to relieve my emotions, I feel like giving up, there's no antidepressant in the world that will help with it, because it's not a matter of "your body is not synthesizing your hormones correctly", sure there's that, but come on! The outside is so bad, so terrible, so overwhelming that what can an antidepressant do? Also therapy isn't helping much either. Things are so out of control that telling my psychologist my worries won't solve anything, because we can't just make the world leaders act like adults should.
And really, the "stop worrying with stuff you have no control over" speech isn't good in this case, because yes I don't have control over it, but ignoring is even worse, because it will mean I am putting myself to the mercy of the possible worst future foreseeable. I can't not worry about if tomorrow I'll have to fight for a meal, or not worry about if there will be even a tomorrow!
I am in a country that thankfully war related laws are very strict and prevents us from going headfirst on them, but internal politics are also not so well. We have a small victory here and there and then there are people that only worry for their own pockets just destroying everything again.
I'm just tired!
I just want to rest for a single day without worrying about anything, or anyone. I just want some rest.

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Weekend Thoughts 💭

How can you incorporate some ☀️ sunshine, water 💦, nature 🌳 or rest 💤 today?
These are all great suggestions that help us heal and feel happy 😄
Meet me in the comments below 👇
#Addiction #AnorexiaNervosa #Anxiety #Agoraphobia #AutismSpectrumDisorder #ADHD #BorderlinePersonalityDisorder #BipolarDepression #MentalHealth #PTSD #Schizophrenia #Lupus #ChronicFatigue #CeliacDisease #Grief #Cancer #Migraine #SjogrensSyndrome

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I'm new here!

Hi, my name is Aloha621. I'm here because I have PPMS and have been falling more than usual. I even fractured my left foot (this side has been impacted the most). I hardly drive and if I do, it can only be within a few miles. I hate that I am disabled and losing my independence!!! I also hate having to rely on others for help shopping and keeping up in my house. I find myself not caring about the mess these days, which is so unlike me.

On top of my PPMS, my husband is bedridden and I'm his primary caregiver. I also still work full-time because I have to. It's depressing seeing my husband in this state and I just think about that being me in the bed in the future. That scares me big time. I notice my decline more and more. I notice my foggy brain and the chronic FATIGUE, which worries me because it's starting to make my job harder. The fatigue is unbelievable, I find myself drifting off in meetings and at the computer. WTH?!!!

I have a 2 story house that we live in and raised our children in. It's getting so hard to do the stairs, but I remain grateful for the fact that I'm still able to navigate the stairs, but it's not pretty. I am normally a very positive person but this has really been rough. I was diagnosed in 2023 and it's the worst form, PPMS. I mean, really? I didn't even have the luxury of time to slowly get used to this ever-changing new normal. My family doctor always attributed any symptoms to my needing to lose some weight. However, it took me going to a different doctor and about 6 years later (had to start from scratch to figure out what was going on.

There's more but I'm exhausted typing and checking my spelling and sentence formation. Any insight, advice, support, suggestions would be greatly appreciated. I get so lonely and I feel so alone and isolated.
#MightyTogether #MultipleSclerosis

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Question for those who have chronic fatigue as a symptom...

I'm curious how many of u have this issue I've begun having semi recently. Being bed ridden AND knocking out as if u have narcolepsy (but u don't, just CFS and other disorders that also have fatigue as a symptom). So to paint the picture, I got good deep sleep, I got 7-10 hrs of that deep sleep, but as I go thru my day,or when I get home I may just automatically knock out, like literally despite myself/despite my attempt to stay awake and wait for "bedtime". Then when I am finally up again,I still feel myself aka sluggish. Knowing I'm more than physically and mentally rested but my body still feels sluggish. It's baffling how extreme it all is, that I can get legit sleep, legit hrs AND knock out for hrs (a narcoleptic type "nap") wake up and still feel physically sluggish. (Mentally I'll feel good off the "nap" though). So I'm curious how many go thru this....show of hands?? #ChronicFatigue

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Zen 🧘‍♀️

Went home unbelievably nauseous with a migraine since I opened my eyes and I’ve been having a heck of a couple weeks. Yet getting to enjoy this - zen - my GSD girls - nature - a book - quite . Did I mention it’s 75 with a slight breeze blue sky’s and suns out. Ideal for me. #MixedConnectiveTissueDiseaseMCTD #MentalHealth #RheumatoidArthritis #AutonomicDysfunction #ADHD #Anxiety #ChronicFatigue #RaynaudsPhenomenon

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