About 10 days ago, I was unexpectedly and urgently referred to neurosurgery and I'm so scared. The letter came through yesterday saying I'm on the waiting list.
I didn't expect to be referred. I was trying to send a sample but they needed me to see a nurse, which I did and she just said they could do a test.
But then I spoke with a doctor just for a medication review and she saw the notes from my previous chat with the nurse and asked me about it. She said she thinks they won't test it so she needs to double check. She rang me back and told me she has referred me urgently to neurosurgery and I immediately had an anxiety attack.
I was hoping for a simple little test to be done to rule it out. I know my symptoms don't make much sense and they definitely don't seem to be allergy based. I've had the same allergies all my life, I've been affected like this before. It's affecting my life and my work at his point, it's embarrassing.
So at the same time, I'm grateful to have a doctor who's on the ball about all of this and felt it necessary to refer me but I can't help but feel like I'm wasting their time.
What if it all comes back normal? I feel like the doctor will laugh at me and patronise me and act like I'm being a hypochondriac.
It sounds terrible, but I hope they find something wrong just to be like 'see I'm not a hypochondriac, I knew something was wrong'.
Idk, I'm just doubting myself. I find it so hard to advocate for myself. :( I haven't even told my mum because I don't want her to laugh at me basically saying it's nothing and making me feel worse. I'd rather hide it and only say something if the findings do show what I thought.
Either way, maybe they can figure out what's happening and work out a way to stop it happening. I don't want to live with this for the rest of my life.
Any advice/help? Anyone been to see a neurosurgeon?
#EhlersDanlosSyndrome #CerebrospinalFluidLeak #PosturalOrthostaticTachycardiaSyndrome #Anxiety #MentalHealth