Brain Injury

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Why do I have to explain myself 100x?!?

After being involved in a severe accident that included a brain bleed, surgery and led to trauma, I have to continuously explain my triggers to my husband as if they change and it’s all brand new! He is completely unable to understand the parallel between situations and why they could be triggering or why I need to talk through various situations. He says, “it’s a hypothetical, I can’t plan for a hypothetical!” I’m working through triggers so I am ready ahead of time, if they don’t happen awesome! I have to explain my trauma to him repeatedly, which is just reliving it all over again. It makes me not want to tell anyone else because if he… who has been through therapy with me… does not understand… then how will my family and friends? Does this get any easier?

I am 3 1/2 years post accident. Still struggling with my trauma, depression and mental health.

#MentalHealth #Depression #BrainInjury

9 reactions 5 comments
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What are we celebrating?! (MARCH)

national developmental disabilities month
Women’s history
National MS Education and Awareness Month
March 1-31: Alport Awareness Month March 1-31: Brain Injury Awareness Month
March 1-31: Brain Tumor Awareness Month (UK only)
March 1-31: Deep-Vein Thrombosis Awareness Month
March 1-31: Malignant Hyperthermia Awareness Month
March 1-31: Multiple Sclerosis Awareness Month
March 1-31: Myeloma Action Month
March 1-31: National Bleeding Disorders Awareness Month
March 1-31: National Cheerleading Safety Month
March 1-31: National Colorectal Cancers Awareness Month
March 1-31: National Endometriosis Awareness Month
March 1-31: National Kidney Month
March 1-31: National Nutrition Month
March 1-31: Problem Gambling Awareness Month
March 1-31: Save Your Vision Month
March 1-31: Trisomy Awareness Month
March 1-31: Workplace Eye Wellness Month
March 1-6: National Aplastic Anemia & MDS Awareness Week
March 2: World Teen Mental Wellness Day
March 3: World Birth Defects Day
March 3: World Hearing Day
March 4: HPV Awareness Day
March 4: World Obesity Day
March 5: Dissociative Identity Disorder Awareness Day
March 7: National Hospitalist Day
March 10: National Women and Girls HIV/AIDS Awareness Day
March 10-16: Patient Safety Awareness Week
March 10-16: Pulmonary Rehabilitation Week
March 10-16: Sleep Awareness Week
March 11-17: Brain Awareness Week
March 14: World Kidney Day
March 15: World Sleep Day
March 17-23: National Poison Prevention Week
March 18-24: National Drug and Alcohol Facts Week
March 20: National Native American HIV/AIDS Awareness Day
March 20: World Oral Health Day
March 21: World Down Syndrome Day
March 24: World Tuberculosis Day
March 26: Epilepsy Awareness – Purple Day
March 26: American Diabetes Alert Day
March 30: National Doctors’ Day
March 30: World Bipolar Day
March 17: Saint Patrick’s Day
March: autoimmune diseases awareness month

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I'm new here!

Hi, my name is EmeraldEyes59. I've been diagnosed with ADHD, depression, Complex PTSD, and a few other other things, due to a Tramatic Brain Injury I sustained several years ago when I got ran over by a 3/4 ton pickup truck.

#MightyTogether #Anxiety #Depression #PTSD #ADHD

10 reactions 6 comments
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ALL MY LIFE MEDICAL TEST SUBJECT

Burnt-out from the ignorance that comes from the mouths of so called trained medical professionals whom attended society's schools to acquire a stamp of approval that they specialize in whatever 🙄 and obtained A DEGREE.

#Allergies #SpinalMuscularAtrophy #Anxiety #GastroesophagealRefluxDisease #SpinalStenosis #ChronicFatigueSyndrome #BrainInjury #MentalHealth #CardiovascularDisease #RheumatoidArthritis #Osteoporosis #Peripheral #InflammatoryBowelDiseaseIBD #InflammatoryArthritis #CrohnsDisease

34 reactions 9 comments
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Odd cause of dystonic posture

#BrainInjury #Dystonia #Stroke #DegenerativeDiscDisease Hello. How is everyone doing on this fine feburary morning?

I've got a story that up until recently hasn't gotten any kind of spotlight until now. To start, from June 2022 to October of 2023 I saw physical therapy for an issue involving my left arm posture. The pt diagnosed fnd however the way the posture came about would suggest a different cause alltogether. When I would go to sleep my left arm would involuntarily move under my body & when I would wake up I would find it numb. I sleep flat on my back with my head on a few pillows. This arm sliding under my body would happen constantly. One day last march I woke to my forearm in an L position. No matter what the pt did we couldn't get it back down. I've now got a cushion inbetween the arm & chest however I will still find it in the L position despite this. Is there any reason why this would be happening?

Unrelated to this I got an emg done that showed muscle fatigue in a few muscles on the left arm but besides that it was normal. Could whats going on with my sleep be related to whats going on with my muscles & if so what could it mean?

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Feeling broken? Only seeing your flaws? Sometimes those things we feel are flaws are actually what makes us unique, special and extraordinary!

I can get caught in that awful loop of beating myself up, only seeing my flaws, only recognizing things I haven’t done instead of giving myself credit for things I have done, getting stuck in self judgment, only seeming to hear my inner critic’s voice, I can lose all my self confidence, let my self esteem dip and things can look pretty bleak.

Over time more and more I have been able to catch this in the moment, pause, breathe, re-set, and then be gentle with myself and allow myself to shift my energy. I can then take first steps towards better self care…and reverse that repetitive loop, replace it with self respect and start to believe in myself! One situation at a time, I’m getting better … and every time I succeed it can get a little easier the next time. I can see that I have grown along my path and although it can be very hard for me to accept, there is unique beauty to the journey I have been on. I am not broken - I am strong - I have been accepting my flaws and see that as I have picked myself up over and over I have filled myself with gold!

~~~~~~~~~~~~~~~~~~~~~~~~~~

I find doing a gratitude list can help. A while back it was recommended I process a gratitude list every morning. I like to think of my blessings: roof over my head and food on the table; a car that runs and being able to afford insurance & gas for it; MY HEALTH…here I go through all my 5 senses thankful they all work, touch and feel my legs that didn’t at one point and give thanks that parts of me are healing but by bit ! I give thanks for my whole support network: great doctors & health providers, my friends, and my family!!! I find after doing this I start off the day feeling much better about myself!

What is on your gratitude list?

#MentalHealth #Depression #Anxiety #SocialAnxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #BipolarDepression #COVID19 #Parkinsonism #Concussion #BrainInjury #Migraine #Headache #BackPain #neckpain #PhysicalTherapy #HIVAIDS #PTSD #Stigma #PeripheralNeuropathy #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe

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Does anybody want to talk No Driving?

I recently lost my driving privileges because of a documented seizure. I have had reasons to doubt my driving ability in the past and knew this day might be coming, but I guess I am still taking this loss pretty hard. Also, everyone I know is now very worried about me getting run over walking or biking with my near constant vertigo, and other issues.

Where I live, public busses definitely do exist and they are good enough a surprising number of people do use them. Thank goodness. That said, the schedules are still infrequent. The routs are also long. The length of the rout is often not because of distance traveled. It can be because the whole buss map is laid out in an asterisk patern. The busses all go to a single hub downtown, where everyone changes busses in that one place, before all the busses carry on to elsewhere.

Places the busses drop off and pick up can also be a problem for someone like me. This is because there may be no sidewalk or no pedestrian signals, even at the busy, complicated intersections. My service dog and I walk much better if we can rely on both these things.

I can ride a bike sometimes, but the bike lanes alongside the rides in my city are either non-existent or really a mixed bag that includes many flavors of confusing. I am assured, by other cyclists, that this is "confusing" on a level that is really not user friendly for anyone. Basically, the citty can't decide what kinds of bike lane to use, so they have something of everything.

Frequently there is nothing at all in the intersections, or whatever is there can be actively incompatable. This is things like a one way bike lain and a two way bike path both ending abruptly at a busy intersection. Figuring out how to navigate this is not easy. I'm a pretty educated cyclist and I still don't know how it's supposed to be done. This mixed up situation is probably extra hard for me, but actually that difference may also not be that much. I can be fairly normal on a really good day. Everybody seems to be confused, and also, an objective look at the variety of mixed up rules and structures makes it pretty clear that this infact a confusing non-system.

However the streets are, I am determined to keep doing things on my own. I'm determined to get out of the house, stay social, and not soly rely on my wife for rides everywhere. I have a few friends who also drive me some places, but let's be real. My wife is family. Most of this falls on her. She already supports us both financially and does a big share of the housework too. I desperately wish I did more of SOMETHING. Reality is I'd almost always rather do about anything than sit on the couch all day. Sometimes I'm there anyway.

Today, sitting on the couch and doing some phone calls and paperwork was pretty aspirational. I found I could get some things done, but only if I was really careful what I did with my eyes and head.

My wife is an amazing person who swore to love me "in sickness and in health," knowing that sickness was going to be the gueranteed part of that deal. It's amazing to know I am so loved, but also, I know she did not swear to be things like my taxi service and secretary. I want to do the best I can to take care of myself, to the fullest extent I am able, and I also want to be able to sometimes take care of her as well.

I was also my grandparent's caregiver for several years. I remember how much harder things got as soon as they stopped getting out of the house on their own. That is not a bridge I want to cross myself, certainly not any time soon. I'm not quite 40 here.

Anyone else out there in this no driving boat?

#Epilepsy #BrainInjury #Nodriving #Undiagnosed #Caregiving #MentalHealth

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I enjoy watching sports, which can be a distraction from my health challenges. Are there sports, shows you binge watch, or movies that help you too?

Being passionate about sports is a trait my Dad passed on and instilled in me from an early age, and watching and talking about them together was a very bonding experience we had that built over the years. When I was young I was very blessed and had the opportunity to attend a lot of games with him live: football & basketball, some baseball & hockey games, and we even went to Indianapolis for the Indy 500 races twice. His father had taken him to the big race a few times too and to many other games when he was a child, which I think had the same impact on him!

I was never a good athlete, but under his tutelage I became very interested in drama and intrigue with sports and began to understand, appreciate and enjoy all the nuances of the games: teams - their players & coaches, stats, and strengths & weaknesses; types of plays; strategies; the history of the sports; … and I adapted Dad’s favorite teams & players and we followed them very passionately, intently and took the games very seriously. To this day I can get depressed after a game my team loses, and as a kid I’d pout and be in a really bad mood, often for days.

We watched games and followed our teams, not just the games, but almost every day, as we even fought for who got the Sports page first! His excitement, curiosity and dedication were contagious.

As I got older and I moved away to other places I made the “pilgrimage” up to two hours every Sunday to watch football with Dad & on Memorial Weekend went to watch the Indy 500 with him almost every year. We didn’t even miss a minute of games, with Mom being part host, part cook & part waitress … bringing us big homemade deli sandwiches, her legendary guacamole, and yummy desserts she baked. Then during commercials sometimes we would both sprint to different bathrooms for a break, rushing so as not to miss a second of the games!

However, I recently realized I have actually tried to avoid watching big games there since he passed away. I just admitted to myself that over 3 years after he died it still can be emotional watching games in the room where we watched events together. It can be a sad & empty feeling🥲 The first games I watched without him there soon after he died were some of the few things that triggered me to cry when I wasn't processing things well yet. When I sat there in my familiar chair and our team scored I would turn to high five him and saw the empty chair he always sat on next to me and suddenly deeply felt his absence… It was one of the first ways I truly realized he wouldn’t be there to share experiences with me (physically) anymore. It hit me hard. The first time I watched a game without him I completely broke down in tears which was the strongest emotion I had experienced since he died to that point.

I realized that sharing sports with him was so much more than the games, it was something we shared together in almost a ritual format for decades, and looking back I remember how much I always looked forward to being with him for each coming game. So I still am deeply invested and tuned into sporting events and that focus can help me to take a break from pain, depression, anxiety, fear & worry. It’s all I think about for that 2 ½-3 hours, sometimes longer.

🏀🏈⚾️⚽️🏒⚽️⚾️🏈🏀

Do any of you take comfort, find refuge, a healthy escape and/or a distraction in watching sports? Or are there other things you enjoy watching like binging episodes of your favorite show? Or watching a movie trilogy over and over? Or watching thrillers that keep you on the edge of your seat, or action or drama movies that take your complete focus like tunnel vision? Or do you enjoy watching nature, animal or history channels? Was sharing them with family a part of your childhood?

What engrosses & entertains you the most? How do these affect your energy and emotions when you watch them? Do you find it a much needed window away from thinking about your health challenges like I do?

#MentalHealth #Depression #Anxiety #SocialAnxiety #LossOfAParent #Grief #Disability #ChronicPain #ChronicIllness #Selfcare #BipolarDisorder #COVID19 #Migraine #Headache #HIVAIDS #PTSD #Stigma #BrainInjury #Concussion #BackPain #neckpain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe


@texassonrisa
@sparklywartanks

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