Dermatomyositis

Hi, my name is SpoonieNinja. I’ve been through quite a journey with chronic illness, and I want to share my story to encourage and help others who are going through similar battles. One of my passions is creating and collecting miniatures—I love how cute they are. My favorite food is chicken bacon ranch dip with Fritos scoops or Ritz crackers; it’s my safe food, especially when I’m feeling down. One of my biggest dreams is to be on BunnieXO’s podcast to raise awareness about chronic illness. A dream came true for me in 2023 when I met Phix at a concert, and he turned out to be one of the sweetest humans I’ve ever met.

I started a TikTok called SpoonieNinja to help others living with chronic illness, offering encouragement and showing that no one is alone in this fight.

#MightyTogether #Anxiety #Depression #AutismSpectrumDisorder #ADHD #PTSD #OCD #Grief #Cancer #Dermatomyositis

I have read that dermatomyositis may be triggered by EBV. I was diagnosed with this over 20 yrs ago. I wonder why this illness in particular is linked to dermatomyositis?
#Dermatomyositis

Hi, my name is Tink4Neverland. I'm here because I have Fibro, RA, Systemic Lupus, and dermatomyositis. I was diagnosed almost 5 years ago and have never been in remission.
The more I learn, the more I think Fibro is the cause for most of my discomfort. I have read several things posted on Pinterest, and finally decided to join up!

#MightyTogether #Anxiety #Fibromyalgia #RheumatoidArthritis

Hi, my name is intrepidbluejay827. I'm here because I would like to know how everyone else copes on a daily basis… Anything helps 🫶🏻

#MightyTogether #RheumatoidArthritis #Migraine #Lupus #Dermatomyositis

Hi, my name is spanishbird_85. I'm a 37 years oldI female. I live in Spain and the doctors suspect I have Dermatomyositis. I'm starting to feel weak and nervous, not sure what to expect from now on. happy to be here and connect

#MightyTogether #Dermatomyositis

Hi, my name is Robert I'm here because

#MightyTogether #Dermatomyositis

Hi, my name is Chris_mom. I’m new to The Mighty and look forward to sharing my story.

My son was diagnosed with Dermatomyositis in April. He’s 33 and he now has a gtube and can no longer eat or drink anything! He’s very depressed and I’m just looking for help anywhere I can even if it’s just a prayer! Please I want my son to live and also be able to eat!!#MightyTogether

Hi, my name is Susangen_. I'm here because i have questions for others on the same dermatomyositis journey.

#MightyTogether

Hi, my name is Maribell. I'm here because

#MightyTogether #Dermatomyositis #TCellLymphoma