Hi everyone, new to the group and happy to have found it. I was diagnosed with #Dermatomyositis last year when I was 26. I was experiencing red rashes on my hands/knuckles, feet, and knees as well as a lot of joint pain, especially in my hands and wrists.
A few of questions; any answers/discussions are appreciated:
1. Has any one else been diagnosed this young? My doctor told me that it is more common in older adults.
2. Does anyone else experience joint pain? I don’t experience the muscle aches/ fatigue; is this common to not experience this? Will I eventually experience muscle pain/fatigue?
3. My red/itchy areas(hands, feet, knees) did not respond while to cortical steroid creams and eventually I stopped using them and not kind of float by on other creams but nothing seems to truly help. Has this been the case for anyone else?
Thank you to anyone who reads and/or responds. I’m feeling extremely overwhelmed by this diagnosis and quite depressed because I feel like my life will be forever changed and that truly scares me. I’m terrified for how this disease will progress and I don’t want to be unable to do my favorite activities (playing piano/guitar, drawing, hiking).