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    Community Voices

    ADA rights for people with invisible disabilities in healthcare

    I’m working on developing a public list of ADA accommodation ideas for invisible disabilities (eg, cognitive impairment, low vision, anxiety, etc.) in healthcare settings.

    I would love suggestions on accommodations others have been granted (eg, longer appt times, providing a note-taker or audio recording of appts, etc.)

    #ADA #InvisibleDisability #HealthEquity #tbi #migraine #Fibromyalgia #ChronicPain #Anxiety #PTSD #Depression #DisabilityPrideMonth #Dysautonomia #AutonomicDysfunction #vestibulardisorder

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    Community Voices

    Medical assistants and optometrist aren't ophthalmologists

    <p>Medical assistants and optometrist aren't ophthalmologists</p>
    2 people are talking about this

    Why Companies Need to Embrace Disability Pride Month

    It’s July and I’m walking through my local Target’s clothing apparel. Their Pride line is slowly moving from its featured location to being incorporated into each brand’s section. I look eagerly hoping for disability pride merchandise, a shirt, a pin, or a flag, but I find nothing. It’s not just at Target that Disability Pride month has been ignored, it’s most retail companies. I don’t see Disability Pride Month being acknowledged in commercials. I don’t see cool playlists for disabled directors or actors on subscriptions like Netflix or HBOMax. I am disappointed and confused about why disabled people are not being represented and celebrated by major companies this month. So, why is Disability Pride month still not seen in mainstream media, clothing companies, and retail locations? One of the reasons I believe disability pride doesn’t get the visibility that other pride and awareness months do is that disability is still seen as a tragedy. Why would people want to take pride in tragedy? Yes, there are tragedies that can cause a disability. But, that doesn’t have to mean that disability is a tragedy. Having disability pride does not erase the fact that being disabled is hard. We all become disabled at some point in our lives if we live long enough, whether it’s progressive, an accident, or we were born with it. If we aren’t disabled ourselves, we know someone who has some form of disability. Disabled people are everywhere, and many have invisible or hidden disabilities. It’s important for all people to be represented in the mainstream, not just during awareness and pride months. But it is just as important for our pride months to be recognized as they can often reach a larger audience, usually with the help of mainstream companies and media. This year just like many before, mainstream companies have chosen to ignore us. Awareness and pride months are important because it’s a time to counter old beliefs and stigmas. It’s a time for other narratives to be told and for the invisible to be seen. For our children to see themselves. To remind them it’s OK to be proud of who you are. As a child, I never saw my disability anywhere. I wasn’t taught about the disability movement in the 1960s or the ADA. Instead, I was taught to hide my disability for fear of being bullied or told I was seeking attention or being met with sympathy. We are not born with shame, we are taught it. Those stigmas prevented me from getting the help that I desperately needed when I was a teen. I lived in a small town in the 90s and 00s and didn’t know anyone like me with a disability. The only time I saw someone who was disabled in mainstream media, they were filling certain tropes such as inspiration porn, the bitter disabled person, or a character that was supposed to be pitied. Disability was always seen as a tragedy, but my life was more complex than that. In my mid-20s, I finally found my voice and others like me. Social media has been a revolution for disabled individuals and advocates. We are finally finding a community, telling our stories, and feeling less isolated and alone. But if you don’t follow someone who is disabled, you might not know about this revolution. We are still a hidden minority, still fighting to be seen. So this Disability Pride Month, I’m looking toward the big companies. I’m not just asking for a cute disability pride t-shirt and merchandise, I’m asking to be seen. I want everyone to know that this month is Disability Pride Month, especially if it makes people start to question their beliefs on disability.

    Tylia Flores

    Reasons to Celebrate Disability Pride Month If You're Disabled

    Disability Pride Month is here, and as someone living with cerebral palsy, I’m proud to be part of a community full of acceptance, inclusion, and diversity. Here are five reasons why we should celebrate Disability Pride Month as people with disabilities. 1. Our stories of disability can connect us during Disability Pride Month. As members of the disability community, we all have different stories to share with the world. I have learned that while we all have different stories about our disabilities, telling them can connect us with other people with disabilities. 2. Disability Pride Month can give us a voice as people with disabilities. Celebrating Disability Pride Month can eliminate the stigma that comes with having disabilities and the misconceptions about people with disabilities. People might assume that these misconceptions are how our lives really are — even though they’re not. During Disability Pride Month, we can spread awareness about these misconceptions in order to encourage others not to stereotype the disability community. 3. Disability Pride Month can teach people about everyday life with a disability. Disability is a part of many of our everyday lives. Many people with disabilities live their lives to the fullest extent possible despite the obstacles they may face. In a lot of ways, our lives are just like everyone else’s, and we have so much to offer society as a whole. This month is a great time to share how much we can do every day. 4. Disability Pride Month can gives us a chance to come together as people with disabilities. Disability is everywhere. People with disabilities come from all different parts of the world, and this is a great month to celebrate each other’s strengths no matter where we’re from. We may come from different backgrounds, but our shared experience of being people with disabilities comes with many strengths and abilities that we can celebrate together. 5. Disability Pride Month can give us the opportunity to express how we feel about our disabilities. Disability Pride Month can empower us as people with disabilities to be who we truly are without feeling ashamed or embarrassed. Maybe people haven’t always understood our disabilities, or we’ve had a hard time accepting our differences, but this is our time to feel strong and proud. Disability Pride Month is the perfect time to recognize diversity and acceptance in the disability community. The world shines more brightly with disability pride, so what are you waiting for? Celebrate Disability Pride Month in a way that makes you feel good!

    Community Voices
    Community Voices

    What makes you feel most proud of living with your health condition?

    It’s #DisabilityPrideMonth , so let’s talk pride! What makes you feel proud in your life with a health condition? When you do feel shame around your symptoms, how do you cope? Share below!

    I think what makes me the most proud is knowing that my health experiences have made me a kinder, empathetic, more understanding person. Also, I might not be as resilient without them!

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