Join the Conversation on
156 people
0 stories
88 posts
Explore Our Newsletters
What's New in

ADA rights for people with invisible disabilities in healthcare

I’m working on developing a public list of ADA accommodation ideas for invisible disabilities (eg, cognitive impairment, low vision, anxiety, etc.) in healthcare settings.

I would love suggestions on accommodations others have been granted (eg, longer appt times, providing a note-taker or audio recording of appts, etc.)

#ADA #InvisibleDisability #HealthEquity #tbi #migraine #Fibromyalgia #ChronicPain #Anxiety #PTSD #Depression #DisabilityPrideMonth #Dysautonomia #AutonomicDysfunction #vestibulardisorder

See full photo

Medical assistants and optometrist aren't ophthalmologists

Look at the picture.
The difference: my spelling mistakes disappeared once I started mirror-writing
90% of my spelling mistakes go away when I do mirror-writing
I've mixed up letters as far back as elementary school
I remember there were a few times when I had to reread novels three times before I fully understood the plot
The "severity" of dyslexia is a spectrum. Some people mix up letters every once in a while and others struggle with it multiple times a day.
Someone (who doesn't have a medical degree) told me that you can mix up letters and not have dyslexia. This was the same person who realized I couldn't tell the difference between the word regime and reign.
The people who wrote the "scientific" paper saying that you can mix up letters and not have dyslexia aren't ophthalmologists.
One of the biggest flaws in scientific studies (the ones that have later than been debunked) is having a small and biased sample size and mixing up correlation and causation. (A good example is the replication of the "marshmallow test.")
Dr. Sheryl M Handler and Dr. Walter M Fierson (alongside the American Academy of Pediatrics) have debunked the idea that vision therapy can cure someone from mixing up letters.
Vision therapy "curing" learning disabilities is essentially a placebo effect that didn't work for me (as I still make spelling mistakes when I don't mirror-write)
Brain studies are valid and factual, testimonials are a matter of opinion.
While I don't believe in self diagnosing yourself with cancer or twitching on camera to get TikTok views, there are times when starting a conversation about symptoms should be taken seriously
#DisabilityPrideMonth #disabilityawareness #mirrorwriting #Dyslexia #dyslexic #dyslexiaawareness

Vision Therapy for Dyslexia: Smoke and Mirrors

I recently returned from the International Dyslexia Association (IDA) annual conference, which was excellent. One of the talks I attended was using Vision Therapy (VT) as a treatment for dyslexia. That same day I had a question from a parent on VT pop into my DyslexiaHelp in-box.

What makes you feel most proud of living with your health condition?

It’s #DisabilityPrideMonth , so let’s talk pride! What makes you feel proud in your life with a health condition? When you do feel shame around your symptoms, how do you cope? Share below!

I think what makes me the most proud is knowing that my health experiences have made me a kinder, empathetic, more understanding person. Also, I might not be as resilient without them!