I recently have been taking big steps (for me) to accept my chronic illnesses, including applying for disability, publicly identifying as disabled, and starting to speak publicly about my experiences with #medicalgaslighting and #MedicalPtsd that are not uncommon for women with autoimmune and / or neurological conditions.
I have been extremely isolated throughout the pandemic, and have faced a significant amount of retaliation for trying to hold local hospitals accountable to women, BIPOC and other stigmatized #ChronicPain patients. I have learned so much from the online chronic illness communities, and hope to pay the support and advocacy forward to other multiply marginalized women who are also struggling to get the health care and respect they need.
I would love to connect with other #ADA and #OCR health care activists, in particular. I’m sharing the first of my advocacy pieces below - reaching out to advocacy groups who will interview you and help publish your story is a great option for others who are also too shy to write for themselves. I hope to gain that confidence in myself over time, and look forward to building a community of support here at The Mighty!