Ehlers-Danlos Syndrome

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Ehlers-Danlos Syndrome
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    You're not the only zebra out there! Join The Bendy Bunch to talk to people who get it.
    Chronic illness can change the way you navigate everyday tasks — that’s why we’re here to spread the knowledge and help make life with chronic illness a little bit easier. Get advice from people who’ve been there!
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    What’s the most unexpected or entertaining way you’ve dislocated or subluxated a joint?

    Yesterday, I subluxated my jaw on one of these apple sauce pouches (having to eat baby food due to #EhlersDanlosSyndrome , hurting myself on said baby food due to EDS). I have to admit, though, it was pretty funny. Sometimes, you just have to laugh at the pain. I feel like a lot of us have had some experience with injuries that have surprised us or made us chuckle, so please share yours!

    #Hypermobility #ChronicPain #ChronicIllness #CheckInWithMe #Disability #RareDisease

    Had enough of misconceptions about chronic illness?

    The Mighty has a podcast for you because, well, we're fed up with them too. Give our Chronic Illness Misconceptions episode a listen today.

    Listen to The Mighty Podcast
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    How does EDS affect your mental health?

    If you live with chronic illness, you know it’s no walk in the park. Not only do the challenges affect your daily living due to physical symptoms, but it can also negatively impact your mental and emotional health as well.

    How does living with EDS impact you emotionally? What have your experiences been like?

    📚 P.S. Need something to read? Here’s a Mighty story I love on this topic:

    #EhlersDanlosSyndrome #RareDisease #Hypermobility #EhlersDanlosSociety #ChronicIllnessEDS
    #HypermobileTypeEDS #ChronicIllness #ChronicPain #Spoonie #Fibromyalgia
    #MentalHealth #Anxiety #Depression

    You’re Not Alone If You Don’t Have A Diagnosis Yet

    Still solving your own medical mystery? We have a group for you. Seek encouragement and support each other as your search for answers continues.

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