Epilepsy

7 Epilepsy Self-Care Tips to Try in 2025
7 Epilepsy Self-Care Tips to Try in 2025

Hey guys, I don’t think this will get lots of attention, but I wanted to share my story of an experience I faced yesterday.

I’d like to share an experience I recently had at a local restaurant where I was mocked and insulted by the owner and her friend. They called me “weird” and “creepy,” claiming I “intimidate locals” because I walk around town. The truth is, I can’t drive due to my disability and medication—walking is how I stay independent.

They also accused me of not paying for food, even though I do most of the time, or bring friends/family who order. Others in the community do the same or even keep unpaid tabs—but I’m the one singled out. I’m on the autism spectrum and live with multiple disabilities.

I believe this treatment was not only hurtful, but a clear example of ableism. I’m hoping to raise awareness and start a broader conversation about how businesses treat neurodivergent and disabled people. I’d be grateful if you could help share my story or guide me to the right place to tell it.

Thank you for your time and advocacy.
For context, the restaurant is called “The Dale” in Mountain Dale, NY. I have schizophrenia, epilepsy, Asperger’s disorder, and a essential tremor disorder which makes it hard for me to walk, do things independently, and makes me act quiet or very talkative in certain circumstances. I do not have a record of any violence, I just take lots of medications so sometimes I stare off into space or look grimaced.

#Ableism #SchizoaffectiveDisorder #Bipolar1 #EssentialTremor #PTSD #AspergersSyndrome #AutismSpectrumDisorder #AutismSpectrum #MightyMoment

Hi, my name is CareBear95. I'm here because I’m an epileptic who’s fighting on her own and needs help finding the right path to a good healthy life.

#MightyTogether #Anxiety #Depression #Migraine #PTSD #Epilepsy

Hi, my name is Heidi. I'm here because I want to support others and have support myself due to having epilepsy mingled with mental health conditions. It has been a difficult road to navigate. I didn't start with a seizure disorder until I was 18years old. After living that long with a "normal" life it was challenging to begin to have to change everything and watch others, especially my mother, give up part of themselves to help me. Mom has been in this battle since the beginning and watched my thinking process and behaviors change. I know she has cried in private and been worried that each day will be my last. I have also had many moments to laugh about along the way such as, trying to take off the over door after a seizure, talking to random people and coming to with a look of confusion, or coming to and having my kitchen clean after frying sausage on the stove stop and trying to find the sausage and finding it weeks later in a Tupperware dish in the cabinet I kept them in.....needless to say I did not consume the sausage. I just want to be an advocate and educator not just for people with epilepsy (which I do think is desperately needed), but people with co-morbidities and how they affect the person's mental health. At times we are not treated as a whole person, but as our disability and when we describe other symptoms to our doctors, they can be dismissive and talk down to us saying such things as what you are feeling isn't an actual symptom of your illness. As a social worker and formally working with many populations I saw this type of treatment among them. I would see the brokenness within others when they just kept being told they were not good enough or their past and their disability define.

#MightyTogether #Anxiety #Depression #Migraine #Epilepsy

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Hi everyone :) first post, looking for some direction :) I’ve always known that the way I am , was always a little different from the norm, but aside from meltdowns that first appeared during my early teens I was able to “keep it together” for the most part. After essentially being mostly bed ridden for 10 years (my epilepsy was out of control) in my studio, in a very low stimulus environment, I’ve finally been living again the past 9 months. However, whenever I’m thrust into normal life, I get overwhelmed/overstimulated by certain sounds , smells and crowds, need to rush home (I found that putting on noise cancelling headphones helps a lot before I’m to reach my place) and need to rest for a couple of days as I’m absolutely exhausted/drained and my angst, frustration, sadness, anxiety are turned up to a 100. (Meltdowns are common for me the following days if someone talks to me for too long) I suspect that all of this is due to the stroke I suffered as an infant and due to the brain damage I suffered from my seizures due to my epilepsy, which all hit the emotional centres of my brain). However, I have no idea what specialists to contact to see if they can help me further to help me with a diagnosis and also a specialist that can help me to cope with certain behaviours I have due to what I have (like mitigating those I mentioned above). I’ve been doing CBT over the past 6 years but the therapist is not specialised in neurodivergence. My neurologist is solely focused on the medical aspect of things, that’s it. What do you recommend I should do first? Who should I contact? It’s really overwhelming. Thanks so much in advance :)