exotropia

8 years ago my PCP suspected IIH. Said I had all the symptoms. So I had a spinal tap. It came back negative. Then we ruled out IIH and never had any answers as to the frequency and severity of my migraines.
On Friday last week my strabismus surgeon called me. I had left a message about eye pain during my migraine. I figured a nurse would call me...no, the surgeon called me back herself. She expressed big concerns about my exotropia causing my migraines and the possibility I might actually need the surgery. She said I had an appointment scheduled for July but this was very serious. So she found the earliest I can be seen is April 8th. So we scheduled the appointment.
This Monday I saw my headache specialist. I told her my strabismus surgeon wants to see me. She said she's glad except... Well it's just too coincidental you have all the symptoms of IIH still and well I'm just so concerned about it so I need you to have another ST. I'm waiting for central scheduling to call me to schedule stuff. I don't know how an ST will work with my hardware in my lumbar from the surgery. I guess I'm gonna find out.
My PCP is unreachable through email and on the portal. I can't call to talk to anyone. I need to talk to my previous PCP but he won't talk to me since I'm not paying for direct care. Which I might add is bullshit cuz on multiple occasions he told me he thinks of me as his friend and I was his favorite patient cuz I'm eccentric and interesting and interested in being proactive with my health.
Pauley has no idea how scared I am. I tried explaining to her but it kinda went whoosh over her head. I've been trying to reach out to people for connection but it's not working.
I'm also trying to keep myself distracted so I don't end up in a manic episode. My adjustment disorder is mostly under control. I think the increase of my imipramine is helping. We decreased my Zoloft last month. My psychiatrist wants me off Zoloft. He suspects it's causing my overheating and sweating. I know invega trinza causes sweating. It's not just a little bit either. It was in the 60s and sweat was pouring from my neck and forehead.
So I've got a lot going on. And I feel so alone.
#IdiopathicIntracranialHypertension
#exotropia #strabismussurgery #Migraine

I've been sweating a lot for about a week. And I had to use my rescue inhaler today. I feel like someone is standing on my chest.
I had a Bavarian sausage with sauerkraut for late lunch. Now I'm sipping on some coffee.
I'm exhausted. My eyes really hurt. It's been a bad day of double vision.
My vape tank has been leaking and it is very difficult to close the top. I'm probably gonna have to buy a new one. I have to special order the coils for the tank cuz its an old tank.
My tummy hurts. I think the sausage didn't settle.
#exotropia #BackPain #CheckInWithMe

My eyes are at 7. I was thinking of looking into numbing eye drops. I don't know if they're available other than at the eye doctor appointment. I'm gonna email my neuro-ophthalmologist. The constant refocusing and splitting vision is exhausting. The more tired and stressed I get the worse my vision gets. I can split my vision intentionally but 85 percent of the time it's just doing it's own thing.

#exotropia #DoubleVision

The double vision has been happening for 2 years but the exotropia was only found this year. My new eye surgeon told us that the cause could be related to meds I'm taking. She looked at the list of meds from the last year and pointed out at least 2 thirds of them could be the cause. I'm gonna email the list to my neuro-ophthalmologist and my PCP. I'll get their opinion and go from there.

I'm gonna look online for glasses. I've got insurance and it's difficult to get to stores.

#exotropia #eyecare

He sees how badly I'm suffering from my adjustment disorder and he wants to help. He sent me this after our therapy session today. They're suggestions for helping your eyes not hurt.

*Physical Discomfort*

1. Eye Strain Relief:

* Frequent breaks from screens or close-up work.

* Follow the 20-20-20 rule: Every 20 minutes, look at something 20 feet away for 20 seconds.

* Use lubricating eye drops if dry eye or irritation occurs.

2. Vision Therapy:

* Custom exercises (prescribed by an optometrist or ophthalmologist) can help strengthen eye coordination and reduce discomfort.

3. Corrective Lenses:

*Glasses or prisms can help realign the eyes and reduce strain or double vision.

4. Surgical Intervention:

*For some, surgery may be needed if exotropia is causing significant vision problems or discomfort. This is usually considered if other treatments haven’t worked.

#exotropia #Strabismus #stressed

I was feeling very little and made some potato smilies and some toaster scrambles for lunch. I dipped them in dill pickle hummus. It was nummy.

My vision is really bothering me. My eyes keep going into double vision and it takes conscious effort to refocus. It's a lot of strain on my eyes. They're very sore. Just 2 and a half weeks till I see the surgeon. I can handle the wait, I've been dealing with the double vision for about 2 years now.

#foodieadventures #exotropia

I can feel the sad emotions welling up inside.

I was sitting sniffling and fighting back tears and pauley asked what was wrong. I just kinda unleashed all my sadness and told her I'm not sure how much longer I can keep this up. She asked how she could help and all I could think was maybe a bottle of juice. But then I remembered I have canned bubble tea. So I have a can of honeydew flavor bubble tea. And she heated up a cheese stick for me.

#Depression #Anxiety #AdjustmentDisorder #exotropia #Relationships